Re: Re: I feel so alone

[Guest guest]

Lizzy,

I hope it helped. Sometimes I'm afraid to say to my husband that I'm having a

good day, because I believe he thinks I'm pain free, which is not the case. Know

what I mean.? It is very frustrating. MAybe when there can be no hugs for your

girls, give kisses instead! You probably already do that. But also, maybe buy

them each a special stuffed animal or doll and tell them to pretend it is you

and they can hug it as long and as tight as they want. Maybe that sounds lame,

but I just thought I'd say that.

Yes, I'm a dork! :-)

Your friend,

lisreg <lisreg@...> wrote:

: Those sound like some very good ideas. I never thought about

that. I am going to try it. I just don't think he will become more

sympathic or not. If not, he is gonna have to go. But you are right.

It is a nasty disease and no one can understand what we are going

thru without them having it. I really don't wish this on anyone, but

I just wish they would understand. What I hate sometimes is how I

have to tell my girls no hugs because it hurts mommy. My girls and I

are very close to where we hug each other day and night...lol..and I

hate telling them no to hug me because it hurts. At least they

understand. I think they are about the only ones who do. I am glad I

found this group. Now I know where to go for support! Thank you,

. Thank you very much!

Lizzy

> My name is Lizzy and am 33 years old. I am from Texas and

was

> diagnosed with arithritis 10 years ago, but diagnosed with RA about

2-

> 1/2 years ago. Of course, I have my good days and my bad ones. What

I

> cannot stand is how some of my family even my boyfriend don't seem

to

> have any understanding as to how I feel with this thing I have.

They

> seem as if they think I am over-reacting. And I cannot stand it. As

the

> days go by, I feel myself getting more and more depressed. I try to

do

> what I can to keep myself busy (I have 4 girls), but at night, it

is

> the worst. I try to sleep but can't sometimes. It seems the only

time

> I am able to sleep is when I take pain medication. I don't want to

> become dependent on those. I guess I just need someone to talk to

and

> I am hoping this is where I can do that. This is where I know

people

> will understand what I am going thru.

>

>

>

>

>

>

>

[Guest guest]

Lizzy

My hubby is the same way and tell's me I will die early with all the meds

I take. Just what I want to hear. My kids are not as bad but not very

supportive and tease me because I walk so slow. It is like, geez at least

I am walking at all. If you ever want to chat lmk.

Joy

>

> Lizzy,

> Hello, I am also from Texas. You are not alone. My husband has

no clue.

> However my daughters are very in tune. He just thinks I am lazy

or whatever.

>

> You can not educate those that are not willing to learn...so I

just ignore

> him. you could try taking him to the doc with you so he can see

and learn

> what is going on. But if he refuses...well there is not much

more you can do.

>

> Toni

>

>

>

[Guest guest]

Lizzy

My hubby is the same way and tell's me I will die early with all the meds

I take. Just what I want to hear. My kids are not as bad but not very

supportive and tease me because I walk so slow. It is like, geez at least

I am walking at all. If you ever want to chat lmk.

Joy

>

> Lizzy,

> Hello, I am also from Texas. You are not alone. My husband has

no clue.

> However my daughters are very in tune. He just thinks I am lazy

or whatever.

>

> You can not educate those that are not willing to learn...so I

just ignore

> him. you could try taking him to the doc with you so he can see

and learn

> what is going on. But if he refuses...well there is not much

more you can do.

>

> Toni

>

>

>

[Guest guest]

I'm also in Texas, and have had a number of problems caused by social

inconsiderations. I fell to RA in 1990 and was laid off my job not long

after, because " everybody has arthritis " . I lost all my so-called friends,

and even had trouble with my wife for a while. The main problem is that we

still look the same, just say we " can't do that right now " . Then, I was

bed-ridden for a couple of years, and home-bound for more than that. Now my

wife can tell me how I feel just by hearing my voice, and we're closer than

ever. Our youngest daughter, named Lizzy, BTW, is living next door and is a

real life-saver. She has had to do triage for both of us and call the

ambulance a few times. The main thing I've learned is that I know who I can

count on, and it's on one hand. Those of us on the group are rich in

friendship, so we always have that to look forward to.

Larry, you said you don't choose to have depression. I don't agree with

that. Depression is a standard part of our challenging health issues.

There's only the extent we try to allow it to intrude. You have it better

than a lot of us because we don't have the wonderful distractions you have.

More power to you.

Dennis in Eastexas

" It's not Rocket Surgery "

[ ] Re: I feel so alone

> hi lizzy,

> I am in texas, and my hubby doesn't get it either, we are here for

> you if you need us. Cassy

>

>

>>

>> Lizzy,

>> Hello, I am also from Texas. You are not alone. My husband has

> no clue.

>> However my daughters are very in tune. He just thinks I am lazy

> or whatever.

>>

>> You can not educate those that are not willing to learn...so I

> just ignore

>> him. you could try taking him to the doc with you so he can see

> and learn

>> what is going on. But if he refuses...well there is not much

> more you can do.

>>

>> Toni