Guest guest Posted November 5, 2006 Report Share Posted November 5, 2006 Hi Lizzy! You found the right place here. We all know what your going through. It seems most people around us have no idea what we go through each day. If they could feel it just for a day, they would change how they react to us for sure. But since that won't happen, we are stuck feeling alone in this nasty disease. But your not alone here. :-) Have you tried finding an article that describes how serious and painful this disease is and having them read it? Stick it in front of your boyfriends nose. It may not help, but you never know. I did that with my hubby and it made a little bit of a difference. Sometimes loved ones don't want to face the seriousnness of this disease or are just ignorant and think of it as just arthritis. So it wouldn't hurt to make a little noise if you know what I mean and make them aware of this horrible disease. Just a few tips. May not help. but you never know! :-) Your new pal, lisreg <lisreg@...> wrote: My name is Lizzy and am 33 years old. I am from Texas and was diagnosed with arithritis 10 years ago, but diagnosed with RA about 2- 1/2 years ago. Of course, I have my good days and my bad ones. What I cannot stand is how some of my family even my boyfriend don't seem to have any understanding as to how I feel with this thing I have. They seem as if they think I am over-reacting. And I cannot stand it. As the days go by, I feel myself getting more and more depressed. I try to do what I can to keep myself busy (I have 4 girls), but at night, it is the worst. I try to sleep but can't sometimes. It seems the only time I am able to sleep is when I take pain medication. I don't want to become dependent on those. I guess I just need someone to talk to and I am hoping this is where I can do that. This is where I know people will understand what I am going thru. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2006 Report Share Posted November 5, 2006 Hi Lizzy: Sorry to hear you are feeling so down. Yes, this is the right place to come for understanding...........I can relate to the nighttime thing. There are nights that I am awake off an on all night and then before I know it I have to get ready for work..................rarely do others understand how we feel. Taking pain medication does not mean you will be dependent on it and no one should have to be in pain. My rheumy also prescribes xanex at bedtime to help with sleep............I would hate to think how I would feel without it................I go all week on little sleep and then seem to crash on the weekends.,,,,, Do not be afraid to take pain medication....you need to.........and feel free to email me anytime if you would like to talk...............Hang in there girl..........we all understand and I know there are others way worse off than me. Gentle Hugs Pat in So Ore lisreg <lisreg@...> wrote: My name is Lizzy and am 33 years old. I am from Texas and was diagnosed with arithritis 10 years ago, but diagnosed with RA about 2- 1/2 years ago. Of course, I have my good days and my bad ones. What I cannot stand is how some of my family even my boyfriend don't seem to have any understanding as to how I feel with this thing I have. They seem as if they think I am over-reacting. And I cannot stand it. As the days go by, I feel myself getting more and more depressed. I try to do what I can to keep myself busy (I have 4 girls), but at night, it is the worst. I try to sleep but can't sometimes. It seems the only time I am able to sleep is when I take pain medication. I don't want to become dependent on those. I guess I just need someone to talk to and I am hoping this is where I can do that. This is where I know people will understand what I am going thru. --------------------------------- Everyone is raving about the all-new . --------------------------------- Low, Low, Low Rates! Check out Messenger's cheap PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2006 Report Share Posted November 5, 2006 Pat: Thank you so much for your advice. I never thought about asking my doctor for some med to help me sleep. Just like you, by the time I fall asleep, it is time for me to get up. And sometimes getting up is so painful. Right now I have Tramadol and Loratab. I try to stay away from them as much as possible. I have an appointment with my RA doctor next week. And I am going to ask her. Thanks again. It is good to know that there is somewhere I can get support. My name is Lizzy and am 33 years old. I am from Texas and was > diagnosed with arithritis 10 years ago, but diagnosed with RA about 2- > 1/2 years ago. Of course, I have my good days and my bad ones. What I > cannot stand is how some of my family even my boyfriend don't seem to > have any understanding as to how I feel with this thing I have. They > seem as if they think I am over-reacting. And I cannot stand it. As the > days go by, I feel myself getting more and more depressed. I try to do > what I can to keep myself busy (I have 4 girls), but at night, it is > the worst. I try to sleep but can't sometimes. It seems the only time > I am able to sleep is when I take pain medication. I don't want to > become dependent on those. I guess I just need someone to talk to and > I am hoping this is where I can do that. This is where I know people > will understand what I am going thru. > > > > > > > --------------------------------- > Everyone is raving about the all-new . > > --------------------------------- > Low, Low, Low Rates! Check out Messenger's cheap PC-to- Phone call rates. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2006 Report Share Posted November 5, 2006 : Those sound like some very good ideas. I never thought about that. I am going to try it. I just don't think he will become more sympathic or not. If not, he is gonna have to go. But you are right. It is a nasty disease and no one can understand what we are going thru without them having it. I really don't wish this on anyone, but I just wish they would understand. What I hate sometimes is how I have to tell my girls no hugs because it hurts mommy. My girls and I are very close to where we hug each other day and night...lol..and I hate telling them no to hug me because it hurts. At least they understand. I think they are about the only ones who do. I am glad I found this group. Now I know where to go for support! Thank you, . Thank you very much! Lizzy > My name is Lizzy and am 33 years old. I am from Texas and was > diagnosed with arithritis 10 years ago, but diagnosed with RA about 2- > 1/2 years ago. Of course, I have my good days and my bad ones. What I > cannot stand is how some of my family even my boyfriend don't seem to > have any understanding as to how I feel with this thing I have. They > seem as if they think I am over-reacting. And I cannot stand it. As the > days go by, I feel myself getting more and more depressed. I try to do > what I can to keep myself busy (I have 4 girls), but at night, it is > the worst. I try to sleep but can't sometimes. It seems the only time > I am able to sleep is when I take pain medication. I don't want to > become dependent on those. I guess I just need someone to talk to and > I am hoping this is where I can do that. This is where I know people > will understand what I am going thru. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2006 Report Share Posted November 6, 2006 Lizzy, Hello, I am also from Texas. You are not alone. My husband has no clue. However my daughters are very in tune. He just thinks I am lazy or whatever. You can not educate those that are not willing to learn...so I just ignore him. you could try taking him to the doc with you so he can see and learn what is going on. But if he refuses...well there is not much more you can do. Toni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2006 Report Share Posted November 6, 2006 Hi Lizzy, Are you still living in Texas? I am in Texas close to Houston. I understand how you feel and family and friends, will never totally understand arthritis, esp. rheumatoid. What really gets me is some of the commercials that say the person can take a certain over the counter pill and almost turn flip flops. It just does not happen. We are here if you need to talk. Khaki --------------------------------- Sponsored Link Free Uniden 5.8GHz Phone System with Packet8 Internet Phone Service Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2006 Report Share Posted November 6, 2006 Hi Lizzy, dont feel alone. We all understand how you feel. You can email me at anytime to just vent if you would like Have a good day! > > My name is Lizzy and am 33 years old. I am from Texas and was > diagnosed with arithritis 10 years ago, but diagnosed with RA about 2- > 1/2 years ago. Of course, I have my good days and my bad ones. What I > cannot stand is how some of my family even my boyfriend don't seem to > have any understanding as to how I feel with this thing I have. They > seem as if they think I am over-reacting. And I cannot stand it. As the > days go by, I feel myself getting more and more depressed. I try to do > what I can to keep myself busy (I have 4 girls), but at night, it is > the worst. I try to sleep but can't sometimes. It seems the only time > I am able to sleep is when I take pain medication. I don't want to > become dependent on those. I guess I just need someone to talk to and > I am hoping this is where I can do that. This is where I know people > will understand what I am going thru. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2006 Report Share Posted November 6, 2006 Hi Lizzy. Please know you're not alone! this bunch has certainly helped me so much, just by being here. Have a good night. In , " lisreg " <lisreg@...> wrote: > > My name is Lizzy and am 33 years old. I am from Texas and was > diagnosed with arithritis 10 years ago, but diagnosed with RA about 2- > 1/2 years ago. Of course, I have my good days and my bad ones. What I > cannot stand is how some of my family even my boyfriend don't seem to > have any understanding as to how I feel with this thing I have. They > seem as if they think I am over-reacting. And I cannot stand it. As the > days go by, I feel myself getting more and more depressed. I try to do > what I can to keep myself busy (I have 4 girls), but at night, it is > the worst. I try to sleep but can't sometimes. It seems the only time > I am able to sleep is when I take pain medication. I don't want to > become dependent on those. I guess I just need someone to talk to and > I am hoping this is where I can do that. This is where I know people > will understand what I am going thru. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2006 Report Share Posted November 6, 2006 hi lizzy, I am in texas, and my hubby doesn't get it either, we are here for you if you need us. Cassy > > Lizzy, > Hello, I am also from Texas. You are not alone. My husband has no clue. > However my daughters are very in tune. He just thinks I am lazy or whatever. > > You can not educate those that are not willing to learn...so I just ignore > him. you could try taking him to the doc with you so he can see and learn > what is going on. But if he refuses...well there is not much more you can do. > > Toni > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2006 Report Share Posted November 6, 2006 Hey Lizzy, I am 34, and I know what you are going through...I feel like I have been robbed of everything sane in this world..my friends and family just don't understand what i am going through either...I'm here if you need me... In , Alvarez <bureau97504@...> wrote: > > Hi Lizzy: Sorry to hear you are feeling so down. Yes, this is the right place to come for understanding...........I can relate to the nighttime thing. There are nights that I am awake off an on all night and then before I know it I have to get ready for work..................rarely do others understand how we feel. Taking pain medication does not mean you will be dependent on it and no one should have to be in pain. My rheumy also prescribes xanex at bedtime to help with sleep............I would hate to think how I would feel without it................I go all week on little sleep and then seem to crash on the weekends.,,,,, > > Do not be afraid to take pain medication....you need to.........and feel free to email me anytime if you would like to talk...............Hang in there girl..........we all understand and I know there are others way worse off than me. > > Gentle Hugs > Pat in So Ore > > lisreg <lisreg@...> wrote: My name is Lizzy and am 33 years old. I am from Texas and was > diagnosed with arithritis 10 years ago, but diagnosed with RA about 2- > 1/2 years ago. Of course, I have my good days and my bad ones. What I > cannot stand is how some of my family even my boyfriend don't seem to > have any understanding as to how I feel with this thing I have. They > seem as if they think I am over-reacting. And I cannot stand it. As the > days go by, I feel myself getting more and more depressed. I try to do > what I can to keep myself busy (I have 4 girls), but at night, it is > the worst. I try to sleep but can't sometimes. It seems the only time > I am able to sleep is when I take pain medication. I don't want to > become dependent on those. I guess I just need someone to talk to and > I am hoping this is where I can do that. This is where I know people > will understand what I am going thru. > > > > > > > --------------------------------- > Everyone is raving about the all-new . > > --------------------------------- > Low, Low, Low Rates! Check out Messenger's cheap PC-to- Phone call rates. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2006 Report Share Posted November 7, 2006 Hey Lizzy, this is Jane from Texas. I raised four kids on my own, too. My kids are the greatest, they have all read up on all the stuff I have and have never complained, especially the youngest who doesn't really remember ever having a " healthy " mom. She's 19 and this all started 15 years ago. I broke up with my ex boyfriend in 98 and have not pursued a relationship since that time, I just don't have the time or the energy between work, church, family and friends. My children are grown or in college now, so life is a little easier, I can come home from work and " Crash " most days if I want to! Feel free to e me anytime you need to rant or w/e, i've been where you are, hang in there girl, we'll make it through this! May God bless you and yours. From beautiful downtown Dallas.... Jane > > My name is Lizzy and am 33 years old. I am from Texas and was > diagnosed with arithritis 10 years ago, but diagnosed with RA about 2- > 1/2 years ago. Of course, I have my good days and my bad ones. What I > cannot stand is how some of my family even my boyfriend don't seem to > have any understanding as to how I feel with this thing I have. They > seem as if they think I am over-reacting. And I cannot stand it. As the > days go by, I feel myself getting more and more depressed. I try to do > what I can to keep myself busy (I have 4 girls), but at night, it is > the worst. I try to sleep but can't sometimes. It seems the only time > I am able to sleep is when I take pain medication. I don't want to > become dependent on those. I guess I just need someone to talk to and > I am hoping this is where I can do that. This is where I know people > will understand what I am going thru. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2010 Report Share Posted August 3, 2010 I have an 11 year old girl in the same situation. i really feel for you. it is so hard and exhausting. if you ever want a shoulder to cry on, you can call me! :0) we can cry together .On Aug 3, 2010, at 12:54 PM, tvau37@... wrote: I feel like I am the only person who understands my child...no help from schools...he has New diagnosis of PPD NOS and ADHD, anxiety also interfears. Last 5 years of his life no meds worked for him I now know why. I feel Middle school is going to be too much...he doesn't understand social cues and kids take advantage and make fun. He is sad a lot. He is now 11 years old. I am very scared for him....Tammy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2010 Report Share Posted August 3, 2010 where are you from? I feel like I am the only person who understands my child...no help from schools...he has New diagnosis of PPD NOS and ADHD, anxiety also interfears. Last 5 years of his life no meds worked for him I now know why. I feel Middle school is going to be too much...he doesn't understand social cues and kids take advantage and make fun. He is sad a lot. He is now 11 years old. I am very scared for him....Tammy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2010 Report Share Posted August 3, 2010 yes he has an IEP the diagnosis of PPD NOS was over the summer...he has an IEP for ADHD and of course they do not follow it until the state test roll around then they cram everything into one week....I am so sick of it all...I was told he could not have one on one help. Can I get it for him now? From: rushen janice <jrushen@...>Subject: Re: ( ) I feel so alone Date: Tuesday, August 3, 2010, 8:17 PM You're not alone...we are here. I know how you feel though...cause I feel like that too at times. I think it goes with our "job". My son is 14 and was dx with ADHD in 3rd grade and then PDD NOS at the beginning of 6th....by the middle of 6th grade it was changed to AS. He is on Adderall XR (but sometimes takes a break in the summer), he is also on Xanax when he needs it for Anxiety. At night he takes a small dose of Geodon for anger and it helps him sleep too! At school, does your child have an IEP? A case manager? What type of classes is he in? Can he have a Paraprofessional (aide) with him...even if it is for only part of the day? I know 6th grade can be very difficult...children can be so mean at this stage of life...you might want to consider an Aide for a year to get him thru. Post any time...I am sure there are others with thoughts too! Jan "In the Midst of Difficulty lies Opportunity" Albert Einstein Success is not measured by one's position but by the obstacles one has overcome to obtain that position From: "tvau37@..." <tvau37@...> Sent: Tue, August 3, 2010 1:54:34 PMSubject: ( ) I feel so alone I feel like I am the only person who understands my child...no help from schools...he has New diagnosis of PPD NOS and ADHD, anxiety also interfears. Last 5 years of his life no meds worked for him I now know why. I feel Middle school is going to be too much...he doesn't understand social cues and kids take advantage and make fun. He is sad a lot. He is now 11 years old. I am very scared for him....Tammy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2010 Report Share Posted August 3, 2010 Yes you can. And, an IEP is a LEGAL DOCUMENT that must be followed or they are breaking the law. You have to go to wrights law and read up ...you have to speak or shout loudly....make them squirm...you have the upper hand...not them. Remember, the squeeky wheel gets the oil! ADvocate for him or get him an adovcate. And, go to 's Law and read .....you son has RIGHTS! Fight for what he is allowed. It can be a pain...but in the long run worth it. "In the Midst of Difficulty lies Opportunity" Albert Einstein Success is not measured by one's position but by the obstacles one has overcome to obtain that position From: Tammy <tvau37@...> Sent: Tue, August 3, 2010 8:29:26 PMSubject: Re: ( ) I feel so alone yes he has an IEP the diagnosis of PPD NOS was over the summer...he has an IEP for ADHD and of course they do not follow it until the state test roll around then they cram everything into one week....I am so sick of it all...I was told he could not have one on one help. Can I get it for him now? From: rushen janice <jrushen (DOT) com>Subject: Re: ( ) I feel so alone Date: Tuesday, August 3, 2010, 8:17 PM You're not alone...we are here. I know how you feel though...cause I feel like that too at times. I think it goes with our "job". My son is 14 and was dx with ADHD in 3rd grade and then PDD NOS at the beginning of 6th....by the middle of 6th grade it was changed to AS. He is on Adderall XR (but sometimes takes a break in the summer), he is also on Xanax when he needs it for Anxiety. At night he takes a small dose of Geodon for anger and it helps him sleep too! At school, does your child have an IEP? A case manager? What type of classes is he in? Can he have a Paraprofessional (aide) with him...even if it is for only part of the day? I know 6th grade can be very difficult... children can be so mean at this stage of life...you might want to consider an Aide for a year to get him thru. Post any time...I am sure there are others with thoughts too! Jan "In the Midst of Difficulty lies Opportunity" Albert Einstein Success is not measured by one's position but by the obstacles one has overcome to obtain that position From: "tvau37att (DOT) net" <tvau37@...> Sent: Tue, August 3, 2010 1:54:34 PMSubject: ( ) I feel so alone I feel like I am the only person who understands my child...no help from schools...he has New diagnosis of PPD NOS and ADHD, anxiety also interfears. Last 5 years of his life no meds worked for him I now know why. I feel Middle school is going to be too much...he doesn't understand social cues and kids take advantage and make fun. He is sad a lot. He is now 11 years old. I am very scared for him....Tammy Quote Link to comment Share on other sites More sharing options...
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