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CMT is not just physical problems for me either, but there have been and

still are lots of things that I have not and can not do. So CMT has

controlled my lifestyle, by not being able to do things that I would love to

do. Essential tremor, which I've always had, has kept me from doing things.

Even though we all have CMT, some of us are not as weak as others. It's

different for each of us.

My daughter is much stronger than I, always has been. I'm thankful for that.

But there are lots of things that she can't do either.

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Hi Everyone,

Gretchen sorry for the delay in replying

to your post.

I don`t think you understood my

original post, I was saying that in

choosing to say that you did not let

CMT affect your lifestyle gives the

impression that we can decide how

much we are affected. CMT is a

physical condition over which we have

no control of the progression so we

cannot say that any one of us `lets`

CMT affect us.

Emotional problems, depression etc.

can be very real aspects of dealing

with a physical disability but are not

strictly symptoms of the condition. I

can`t deny that if you have emotional

problems dealing with CMT then the

physical symptoms may appear much

worse than they actually are so when

you come to terms with your feelings,

the physical problems will appear to

improve.

I don`t have emotional problems, just

physical ones and the way my lifestyle

is restricted is beyond my control.

I really just wanted you to think about

your choice of words particularly as

you are such a high profile CMTer.

Joyce.

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  • 10 months later...

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  • 4 years later...
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From: "michele <sea_shell81@...>Subject: Emailing: lifestyleDate: Sun, 30 Apr 2006 16:21:34 -0700

The message is ready to be sent with the following file or link attachments:Shortcut to: http://bragg.com/bragglifestyle/lifestyle.htmlNote: To protect against computer viruses, e-mail programs may prevent sending or receiving certain types of file attachments. Check your e-mail security settings to determine how attachments are handled.

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  • 4 years later...

I am not allowed to be on any of the biologic meds, because i have a great

infection risk..but i have started to try to meditate and get through the pain..

with out being on all the pain pills my doctor wants me on...I dont like the way

i feel on the pain meds, so i tried meditation and found out it helps alot...i

never thought about cutting out my coffee, i am a serious coffee drinker.. I do

know that stress brings my attacks on real bad.. so i am trying to de-stress my

life some.. if that is possible...I try to stay positive also..this disease is

awful and painful and crippling..but i keep pushing myself everyday and try to

focus on the positive.. and have the best quality of life i can.. find my reason

to smile everyday.......

\

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