Re: Off Humira for another two weeks! Toni

[Guest guest]

Hi Toni:

Sorry you have to go off your Humira because of your

cold. I do the same thing too, when I am sick, I go

off my Enbrel, and, boy, can I feel the difference - I

look so forward to being healthy again so I can shoot

up lol.

That is so awful about that lady with RA that you met.

I don't understand how she would not be able to find

some kind of medical transportation so that she would

be able to get to a rheumy. Her being able to only be

on pain meds and Celebrex, and no DMARD, is not

controlling the disease, which is showing up in her

surgery history. How sad.

Hang in there -

Kathe in CA

--- Ms radar <aclavern33@...> wrote:

> Well, I finally called the rheummy about my killer

> cold that started a

> week ago. He said no humira for another two weeks

> until we are sure

> this is gone. I have mixed feelings about this...at

> least I did get 4

> days of relief after the initial acid in the skin

> from the shot! So

> now I even miss the total 8 decent days I would have

> had.

>

> I am going to talk to him about going to weekly

> shots since It only

> seems to work for 4 days and cause the drug is so

> far free to

> me...thanks to Humira Share Program...Maybe I can

> tough out the acid

> in the skin with each injection until it runs out

> and get him to

> change me to something less caustic!! ICK

>

> I was talking to a lady at the docs office while I

> was waiting for my

> parents to finish with there appnt. She also has RA

> and she wants to

> try HUmira...but she can not get it cause she is on

> medicaide and no

> rheummy in this area takes medicaid and she refuses

> to travel to see

> one. So she only takes tylenol, Ultracet and

> Celebrex forher RA. She

> so far has had both knees replaced and is doing very

> poorly. I feel

> bad for her. I told her maybe she needs to bite the

> bullet and

> travel..she claims she can no longer drive and none

> of her adult kids

> drive. she can not afford hotels, bus and such.

>

> Sad situation..

>

> Toni

>

>

>

>

>

>

>

>

>

Kathe

" To ride a horse is to borrow freedom. "

__________________________________________________

[Guest guest]

Kathe,

Yes it is very sad. But if life we make choices. This lady has

chosen not to get the care she needs. She has already had two knee

replacements and is not doing well those. She also told me about

worstening anemia...all this stuff deals with her untreated RA.

This also paints a picture were we are going healthcare wise for

those that can not afford commerical insurance. This lady did not

work enough to qualify for SSDI so all she gets is SSI. SSI here in

texas has medicaid only. The medicaid system here once you leave one

of the major medical center is almost NONE EXISISTANT!!!

You are in far better shape if you have commerical insurance and

medicaid..but this poor lady does not. So for now all she has is a

family practice doc. Who has already told her he can not prescribe

DMARDS because he is not qualified to monitor or treat her RA. Plus

the medicaid here in Texas will not even pay for the meds unless they

are approved by medicaid and the treating doc has to be a specialist

that says she must have them.

So she is in a really bad place.

Toni

>

> > Well, I finally called the rheummy about my killer

> > cold that started a

> > week ago. He said no humira for another two weeks

> > until we are sure

> > this is gone. I have mixed feelings about this...at

> > least I did get 4

> > days of relief after the initial acid in the skin

> > from the shot! So

> > now I even miss the total 8 decent days I would have

> > had.

> >

> > I am going to talk to him about going to weekly

> > shots since It only

> > seems to work for 4 days and cause the drug is so

> > far free to

> > me...thanks to Humira Share Program...Maybe I can

> > tough out the acid

> > in the skin with each injection until it runs out

> > and get him to

> > change me to something less caustic!! ICK

> >

> > I was talking to a lady at the docs office while I

> > was waiting for my

> > parents to finish with there appnt. She also has RA

> > and she wants to

> > try HUmira...but she can not get it cause she is on

> > medicaide and no

> > rheummy in this area takes medicaid and she refuses

> > to travel to see

> > one. So she only takes tylenol, Ultracet and

> > Celebrex forher RA. She

> > so far has had both knees replaced and is doing very

> > poorly. I feel

> > bad for her. I told her maybe she needs to bite the

> > bullet and

> > travel..she claims she can no longer drive and none

> > of her adult kids

> > drive. she can not afford hotels, bus and such.

> >

> > Sad situation..

> >

> > Toni

> >

> >

> >

> >

> >

> >

> >

> >

> >

>

>

> Kathe

>

> " To ride a horse is to borrow freedom. "

>

>

>

> __________________________________________________

>