New with fibro and possibly lupus

October 12, 2006

Hello everyone. I think I may have joined this group months ago but

dropped off as I didn't have a diagnosis. My dr now thinks I have

fibromyalgia but is referring me to a rheumatologist to make sure I

don't have lupus. My ANA came back negative but my mom had lupus

(she passed in '03) and I have so many of the symptoms but then they

are also similar to fibro. I have a book on fibro and CFS and it

seems like I have tons of the symptoms from both diseases. My main

problem is I am sick all the time. I catch every single virus that

circulates in my town (no joke) and it takes me a week longer to

recover than anyone else in my family. My second biggest complaint

is my lack of energy and ability to walk around while shopping or at

the fair without feeling like I will pass out. I have heard of

something called neuro mediated hypotension or something like that

where a person's blood pressure drops when they are standing? I

don't know if that's what I have but it's the only explanation I've

found when it comes to fibro and CFS. I also have heat intolerance -

it makes me so sick if I get hot. And I have a stomach condition

called gastroparesis which I was diagnosed with last year. The

nerves in my stomach don't function properly and so it slows the

motility in my intestines and I suffer from nausea almost daily. I

take anti-emetics for this and I'm currently on Wellbutrin XL to try

and help with my energy. The only pain I feel is in my back, neck

and shoulders. It is extreme achiness like I am always coming down

with something. I've got numerous other issues but these are the

main ones that bother me. I hope to get to know all of you and find

what has helped you the most. I wasn't always this sick and I

really hope to recover somewhat! I'm only 31 years old and I have

no children. I had a miscarriage in March and now I'm thinking

there is no way I could try and get pregnant again with how awful I

feel lately. I work 4 days a week and am calling in sick so often

that they are starting to get annoyed with me. I know if I was to

get pregnant again that I would have to quit because I had such

terrible morning sickness last time which was exacerbated by my

stomach condition that I could not work. Okay thanks if you made it

this far! Charisse

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