Re: arava Carol/Esther's mom

[Guest guest]

Carol:

Wow, Esther has really been through a lot in the last

year, and so have you. She is a very lucky woman to

have such a supportive mom as you. Blessings and

prayers coming Esther's way.

Kathe in CA

--- Esther Finlaw <honeynut@...> wrote:

> Hi a, , June and all who responded. I think

> of you all so often.

>

> Esther has a mild case of pancreatitis... so they

> say.... but she says

> the pain is great. She is scheduled to have a

> colonscopy and at same

> time they are going to scope and see if she has any

> ulcers. She has been

> on so much medication since the age of eight....now

> she is 36. I am

> hoping this is a side effect of the Arava because if

> so, the Gastro

> doctor said once it is out of her body....(.could

> take up to 6 weeks),

> then her symptoms will go away. He too said that

> Lupus patients

> develope pancreatitis also. She still has to have

> another blood test

> for the Lupus. Her Rhuemmy has her on this

> powder....Cholestyramine...mixed with water 3 times

> a day. He said this

> will get the Arava out faster. ?????

>

> Actually of all the medications she has ever taken

> only prednisone worked.

> Also, aspirin....which has a bad rap. She was on

> aspirin when her

> Still's Disease first started and it worked great

> until she had a major

> flare around the age of nine. After that, she has

> never been put back on

> it....but I think it worked a lot better than these

> others.

>

> She was on Kineret for about 8 months. She kept

> getting bladder

> infections and then finally last Nov. she had both a

> urine and a blood

> infection. Was in hospital for 3 weeks with

> that.....came home on IV

> antibiodics and then in Dec. developed a totally

> different bacteria

> urine and blood infection. was back in for another

> week. I told her

> Rheummy that I thought Kineret was the blame. Then

> he started her on

> this Arava. He had also tried methotrexdate

> (spg.??) and that made her

> blood go wacky. I really don't think she can take

> these stronger

> arthritis drugs.

>

> Didn't mean to write a book, LOL

> Gentle hugs to all of you,

> Carol aka Esther's Mom

>

>

>

> a Papola wrote:

>

> > I'm so sorry Esther is suffering with this.

> Although pancreatitis is

> > a listed side

> > effect of Arava, I don't know of anyone here that

> has had this happen

> > as a

> > result of Arava.

> > Do her doctors expect it will be reversible upon

> discontinuation of

> > Arava?

> >

> > a

> >

> >

> > On Mar 31, 2006, at 2:16 AM, Esther Finlaw wrote:

> >

> > > My daughter has been taking Arava and now she

> has pancreatitis which

> > > they think came from Arava. The pain of this is

> greater than the

> > > pain of

> > > her arthritis and she cannot enjoy food right

> now. Just wonder if

> > > anyone

> > > else had this side effect.

> > >

> > > Carol.....Esther's Mom

> >

> >

> >

[Guest guest]

Thank you Kathe in CA for those kind words. Actually we have been

through a lot ever since she was first diagnoised way back in 1976.

Blessings and prayers back at ya. Nice to meet you.

Carol aka/Esther's Mom

Kathe Sabetzadeh wrote:

> Carol:

>

> Wow, Esther has really been through a lot in the last

> year, and so have you. She is a very lucky woman to

> have such a supportive mom as you. Blessings and

> prayers coming Esther's way.

>

> Kathe in CA

>

> --- Esther Finlaw <honeynut@...> wrote:

>

> > Hi a, , June and all who responded. I think

> > of you all so often.

> >

> > Esther has a mild case of pancreatitis... so they

> > say.... but she says

> > the pain is great. She is scheduled to have a

> > colonscopy and at same

> > time they are going to scope and see if she has any

> > ulcers. She has been

> > on so much medication since the age of eight....now

> > she is 36. I am

> > hoping this is a side effect of the Arava because if

> > so, the Gastro

> > doctor said once it is out of her body....(.could

> > take up to 6 weeks),

> > then her symptoms will go away. He too said that

> > Lupus patients

> > develope pancreatitis also. She still has to have

> > another blood test

> > for the Lupus. Her Rhuemmy has her on this

> > powder....Cholestyramine...mixed with water 3 times

> > a day. He said this

> > will get the Arava out faster. ?????

> >

> > Actually of all the medications she has ever taken

> > only prednisone worked.

> > Also, aspirin....which has a bad rap. She was on

> > aspirin when her

> > Still's Disease first started and it worked great

> > until she had a major

> > flare around the age of nine. After that, she has

> > never been put back on

> > it....but I think it worked a lot better than these

> > others.

> >

> > She was on Kineret for about 8 months. She kept

> > getting bladder

> > infections and then finally last Nov. she had both a

> > urine and a blood

> > infection. Was in hospital for 3 weeks with

> > that.....came home on IV

> > antibiodics and then in Dec. developed a totally

> > different bacteria

> > urine and blood infection. was back in for another

> > week. I told her

> > Rheummy that I thought Kineret was the blame. Then

> > he started her on

> > this Arava. He had also tried methotrexdate

> > (spg.??) and that made her

> > blood go wacky. I really don't think she can take

> > these stronger

> > arthritis drugs.

> >

> > Didn't mean to write a book, LOL

> > Gentle hugs to all of you,

> > Carol aka Esther's Mom

> >

> >

> >

> > a Papola wrote:

> >

> > > I'm so sorry Esther is suffering with this.

> > Although pancreatitis is

> > > a listed side

> > > effect of Arava, I don't know of anyone here that

> > has had this happen

> > > as a

> > > result of Arava.

> > > Do her doctors expect it will be reversible upon

> > discontinuation of

> > > Arava?

> > >

> > > a

> > >

> > >

> > > On Mar 31, 2006, at 2:16 AM, Esther Finlaw wrote:

> > >

> > > > My daughter has been taking Arava and now she

> > has pancreatitis which

> > > > they think came from Arava. The pain of this is

> > greater than the

> > > > pain of

> > > > her arthritis and she cannot enjoy food right

> > now. Just wonder if

> > > > anyone

> > > > else had this side effect.

> > > >

> > > > Carol.....Esther's Mom

> > >

> > >

> > >