Fw: Question about RA

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----- Original Message -----

From: " Helen Wattier (by way of ilena rose) " <helenmw@...>

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Sent: Saturday, December 29, 2001 6:23 PM

Subject: Question

> Please post ,

> I have not written for some time. I have been going through

> some terrible times the past few months and in the months to

> come.

>

> I think posted that I have Mgus,which as I understand

> is something of undetermined cause. I had two bone marrow's

> in July and that is the dx that came back. I went back in

> December to have a 24 hour urine and blood tests. I was

> called by the cancer doctor on Friday and he said it also

> was in the blood but it was the same and no worse at this

> time. He did not know how this fit in with all my other

> problems but he felt it needed to be checked every six

> months. When I saw the other doctor I see I told him I

> though I had broken my little finger and he looked at it and

> said; " you have rheumatoid arthritis, you need to see a

> rheumalogist and we now may need to use the replacement

> therapy for you immune deficiency. It is so weird because my

> hands have hurt so bad for so long, I take celebrex which

> helps and all of a sudden it is not working as well. Last

> year I had to have all of my rings made larger and did not

> think why, I just did it. As I discovered rhuematoid is also

> an immune deficiency along with my IGG deficiency. It just

> seems to get worse and worse. More complicated by the day

> and no doctor wants to discus silicone. They all refer back

> to the study at Mayo Clinic. I think they know they are not

> sure and that is the safest thing for them to do. They do

> not want to get into unfamiliar water because they may not

> have the answer, plus they all are a part of what has

> happened to us.

>

> I would just like to hear from others what you have done for

> rheumatoid arthritis, how it is treated etc.

> Thanks

> Helen

>

>