antibiotic therapy last week

October 18, 2006

Re: MrsRose to Letisha (below)

I was diagnosed with Polymyalagia Rheumatica in July (although my problems

started in May or maybe much earlier), and had a lost summer with a high dose of

Prednisone (80 mg./da for awhile). It turned me into a Zombie, up all hours of

the night, eating constantly, hyperactive, WEIRD. I had a temple biopsy July 5

where the surgeon took 2 " pieces of artery from each temple to rule out Giant

Cell Arteritis which could cause blindness. Then I experienced withdrawal as I

tried to lower the dose per my Dr's direction.

Prednizone eased the shooting pains in my head, pain in ears, jaws, throat,

joints, but getting off of it is something else. I'm still on 10 mg./da. I esp.

worry about my bones for which I've been using a compounded bio-identical

Progesterone cream, calcium-mag supplements and weight bearing exercise. The

Poly-Rheu knocked me out for any kind of work or exercise all summer and early

fall. I have always been very active and engaged, and this past summer about all

I could do was groan in pain, watch my garden and house fall apart around me,

and sleep (after I reduced the Prednisone). My sed rate in September was 119,

89, & 89. My family Dr's recommendation was to increase Prednisone each time. I

refused, and called my nephew, Mike.

Mike had been diagnosed with Rheumatoid Arthritis four years before had gone

through his family Dr.'s recommendations and Rheumatologist's treatment which

included some of the chemo drugs, was not doing well, and could hardly get up

and down. He was 40 yrs. of age, married, 3 young children, high school

principal working on a doctorate. He was a state wrestling champion in High

School, very fit.

Nephew Mike had made an appointment earlier with Dr. Sinnott in Ida Grove,

IA, who marches to a different drummer. Dr. Sinnott treats all connective

tissue diseases as infections/allergies, with antibiotic IVs (Minocycline), 2

900 mg. a day for 5 days followed by a LONG oral Minocycline 100 mg.(or other

Tetracycline family) therapy. (these were MY doses at least) But Mike cancelled

his first appointment, and only made a second one when he became so debilitated

he could do nothing. It is now 4(?) years later, he's still taking some

Minocycline orally, but he is able to function well, is off of the harsh drugs,

has completed his doctorate, keeps busy with his work and family and tells me

" Dr. Sinnott saved my life, Aunt Bev! Go see him. " The mother of a college

friend, who recommended Dr. Sinnott to Mike, also had R.A. I don't know how

long her treatment lasted, but Mike says for the past 3 years she has been

totally drug free - including antibiotics - and shows no symptoms of R.A. Dr.

Sinnott aims for " remission " , not " cure. "

Dr. Sinnott's antibiotic therapy is based on the late Dr. McPherson

Brown's earlier research, writing and therapy. See The Road Back Foundation,

read /The New Arthritis Breakthrough/ by the late Henry Scammell. Putting it

mildly, it is not well accepted by the pharmaceutical companies nor the medical

profession for various reasons. Don't be surprised if you Dr. thinks of it as

" quack " medicine, or insists on seeing " studies. "

Drs. Brown & Sinnott's belief: many of the so called auto-immune diseases like

R.A., Lupus, Scleroderma...are actually triggered by " left over " bacteria

(micoplasma) from a previous infection which didn't get totally wiped out. they

stay in the body, undetected, until something causes them to strike a part of

the body, the joints, heart valves, eyes, skin...and do their damage. The usual

drugs to treat them, including Methotrexate, Plaquenil, gold... may ease the

SYMPTOMS for awhile (while the disease progresses), IF the patient can remain on

them, but they do not get at the CAUSE of the disease, which this intense

antibiotic therapy does.

Dr. Sinnott requires a person's medical record sent to him, a urine test and

some blood tests at the Ida Grove, IA hospital. He has a one hour face to face

consultation with new patients. What seems to set him apart from other

alternative practitioners is that he requires the high dose IVs for 5 days,

followed by one of the oral tetracyclines long term.

Dr. Sinnott is a soft spoken, warm, attentive small town Dr. (D.O.) Ida Grove is

in western Iowa, pop. 2000+! He does not advertise, all his patients come via

word of mouth or the internet. He treats ALL connective tissue diseases. He has

done this therapy in Ida Grove, IA's Horn hospital for 20 years, with 80-85%

success rate, never had a malpractice suit. His patients come from almost all

the states and 6 foreign countries. There were 5 of us at the same motel while I

was there! Some have to come back for the IV therapy more than once, some have

to remain on low dose antibiotics for a LONG time, but the testimonials written

in journals which a local motel has kept since 2000, can't say enough for Dr.

Sinnott, this therapy, the hospital and staff, the community...

I did not have Herxheimer reaction to the IVs - yet. I can't honestly say that

I notice a remarkable change - yet, slightly less stiff and sore, even though we

are experiencing cold, wet weather right now and I chill easily. I may be

unusual as to reactions, since I did not get Moon Face or gain weight on

Prednisone, in fact I lost 10 lbs., nor did I get a " metallic " taste while

having Minocycline IVs.

My sed rate at Horn Hosp. last week was 65 (yes, I realize, different lab doing

the sed rate).

I am to call Dr. Sinnott back in 6 weeks to report how I'm doing. By then I

should know more IF and/or how much it is helping me. The 150+ testimonials I

read in the motel's " journals " were powerful.

http://www.sinnottandtobenmedarts.com/

http://rheumatic.org/started.htm

_http://www.arthritistrust.org_

NOT AN ENDORSEMENT. Dr. Sinnott is not listed on this site. Scroll down to MV,

Micoplasma vaccine, re antibiotic treatment of R.A.

local pharmacists might know doctors who would be open to this therapy.

> 3. Re: Hello Everyone

> Posted by: " MRSROSE2000@... " MRSROSE2000@...

> Date: Tue Oct 17, 2006 1:03 pm (PDT)

>

> Letisha....If I were you I would do all the research I could on Antibiotic

> therapy and give it a try with an experienced doctor. Most rheumatologists

> will refuse or tell you it does not work. I am here in Tennessee and can

tell

> you on the majority of people who give it a fair trial...one to two years)

> find major relief. See if you can order any of the books by Henry Scammell

and

> read them thoroughly.

> I went on standard therapies for eight years and went slowly downhill

> all during that time. Joints started to twist and I was very close to being

> wheelchair bound. I threw caution to the wind and traveled across the state

to

> an experienced doctor who treated with antibiotics in spite of my doctor

> insisting I was being foolish. I asked the new doctor how many patients were

> able to reach remission. He stated 70% if they stuck with the program. I

> asked him if there was anyone who did not get some relief. He stated even

those

> who did not reach remission got great relief and were able to get off many of

> the more toxic meds and pain meds. I now have an internist here in

> Nashville, Tenn who prescribes me Minocin and after reviewing my records has

put

> several others on it. I asked him how they were all doing. He said all of

them

> had significant pain relief over time. He is sold on antibiotic therapy.

> I have been in remission for six years now and many joints have been

> able to rebuild. At your age you might be able to do even better... as I am

59.

> Everyone I have gotten to try Minocin has had a marked decrease in pain and

> number of meds they needed over time. Several have, like myself, reached

> remission. This is something you really need to research as you have many

> years in front of you and you need to live them as painfree and medicine free

as

> you can. Martha

>

October 18, 2006

Hi Bev

Has he ever been on any kind of Glucosamine along with a nutritional supplement

regime of all the required multi vitamins and minerals? Boy does the

Glucosamine work good for me. I know it is something natural and with no side

effects and can quit at any time. I also make sure I take lots of strong

antioxidants along with a good calcium/magnesium/vit D mix. That seems to do

the trick for me.

A lot of drugs we get put on only clog up our immune system making things worse

in the end. Not only that but they can be so addictive and you have to wean off

them so slowly. Sometimes too when you are taking more than one...they react to

each other cusing one or the other not to work. I was lucky though I caught

mine in the early stages and got my defense system built up early in the game.

It takes time.

I am building a website on arthritis as it is all around my family and some of

the tears and disabilities can be a lot to handle. Decided to take a course and

get to know how and why our bodies do this to us. ) We certainly not for the

most part are born this way.

Will let you all know when it is ready for the web. Am also putting out a

monthly newsletter also on different topics. There are so many different types

(close to the 200) of arthritis and a lot with the same type of symptoms.

Am new to this site and hope to see you all around. Please feel free to email

me any time.

juliehope@...

rheumatic antibiotic therapy last week