Re: new rheumy with resource from here, THANK YOU!

[Guest guest]

dreamer,

So sorry to hear about the continuing problems with your son's eye. What's

the prognosis?

That's great about your new rheumatologist. You deserve him.

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] new rheumy with resource from here, THANK YOU!

>I had posted my rheumy retired and I could not find a new one. Someone

>here gave me resources to find a new one...

>

> well, my son had a new crisis with his darned eye and we have been living

> in hospitals and hotels for a month, so I had not gotten rhemuy called

> yet. Yesterday I called and to my amazement they said I could go in

> right then!

> The new rheumy spent THREE hours with me! (gathering and discussing

> history, and checking every single joint on me)

> He took tons of XRays and 9 bottles of bood and did urine.and I go back in

> 2 weeks.

> He was AMAZING......it was a very very very different experience than

> have ever had rom any kind of doc before. So, thank you!!!!

[Guest guest]

The eye doc is now not sure if the eye will regain any vision at all, after all,

BUT he is fairly sure my son will get to keep the eye.rather than have it

removed. Problem is, if it is not functional, I am not all so convinced it is

so great to get to keep it, - it depends then to me on how it looks, an right

now it is pretty ugly. BUT, not ALL hope is lost- it could still come

around..maybe.

At the moment I think for me, I had already jumped to worst case in my

imagination at the first of all this- but the effect of the 2 surgeries on my

son overall is causing me the most difficulty. The first surgery my son did not

take one single pain med and never had a single complaint, he did not wake

quickly from anesthesia, but, he did not have lingering effects. This time he

is still taking Rx pain meds, he is still not eating well, not sleeping, still

in much pain. I am not sure if it is post surgical, post anesthesia or mourning

his vision.

I think the novelty of living in hotels is wearing off for him, too, as is his

isolation from peers.

But yes, for me, it was awesome for me to bump into a doc who took time with

me.gave me time, etc. It sure felt different to be the patient instead of the

caregiver. and I am grateful to have found such a patient one.

- In , " " <Matsumura_Clan@...> wrote:

>

> dreamer,

>

> So sorry to hear about the continuing problems with your son's eye. What's

> the prognosis?

>

> That's great about your new rheumatologist. You deserve him.

>

>

>

> Not an MD

>

> I'll tell you where to go!

>

> Mayo Clinic in Rochester

> http://www.mayoclinic.org/rochester

>

> s Hopkins Medicine

> http://www.hopkinsmedicine.org

>

>

> [ ] new rheumy with resource from here, THANK YOU!

>

>

> >I had posted my rheumy retired and I could not find a new one. Someone

> >here gave me resources to find a new one...

> >

> > well, my son had a new crisis with his darned eye and we have been living

> > in hospitals and hotels for a month, so I had not gotten rhemuy called

> > yet. Yesterday I called and to my amazement they said I could go in

> > right then!

> > The new rheumy spent THREE hours with me! (gathering and discussing

> > history, and checking every single joint on me)

> > He took tons of XRays and 9 bottles of bood and did urine.and I go back in

> > 2 weeks.

> > He was AMAZING......it was a very very very different experience than

> > have ever had rom any kind of doc before. So, thank you!!!!

>

[Guest guest]

So sorry to hear that, dreamer. I'll keep praying for a miracle for the

little guy.

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Re: new rheumy with resource from here, THANK YOU!

>

> The eye doc is now not sure if the eye will regain any vision at all,

> after all, BUT he is fairly sure my son will get to keep the eye.rather

> than have it removed. Problem is, if it is not functional, I am not all

> so convinced it is so great to get to keep it, - it depends then to me on

> how it looks, an right now it is pretty ugly. BUT, not ALL hope is lost-

> it could still come around..maybe.

> At the moment I think for me, I had already jumped to worst case in my

> imagination at the first of all this- but the effect of the 2 surgeries on

> my son overall is causing me the most difficulty. The first surgery my

> son did not take one single pain med and never had a single complaint, he

> did not wake quickly from anesthesia, but, he did not have lingering

> effects. This time he is still taking Rx pain meds, he is still not

> eating well, not sleeping, still in much pain. I am not sure if it is

> post surgical, post anesthesia or mourning his vision.

> I think the novelty of living in hotels is wearing off for him, too, as is

> his isolation from peers.

>

> But yes, for me, it was awesome for me to bump into a doc who took time

> with me.gave me time, etc. It sure felt different to be the patient

> instead of the caregiver. and I am grateful to have found such a patient

> one.

[Guest guest]

I have to say that I have been very impressed with my rheumatologist

too, so far. She has spent a LOT of time with me, and seen me

frequently. When I've had a problem, she has called me back within

a few hours, and has fit me in on short notice in an emergency. She

really listens to what I have to say, and is very kind and caring.

From what I hear, I got very lucky!

--- In , " dreamer_plus " <dreamer_plus@...>

wrote:

>

> I had posted my rheumy retired and I could not find a new one.

Someone here gave me resources to find a new one...

>

> well, my son had a new crisis with his darned eye and we have been

living in hospitals and hotels for a month, so I had not gotten

rhemuy called yet. Yesterday I called and to my amazement they

said I could go in right then!

> The new rheumy spent THREE hours with me! (gathering and

discussing history, and checking every single joint on me)

> He took tons of XRays and 9 bottles of bood and did urine.and I go

back in 2 weeks.

> He was AMAZING......it was a very very very different experience

than have ever had rom any kind of doc before. So, thank you!!!!

>

[Guest guest]

Yes you are lucky ! In some areas of our country

rheumatologists aren't available.

I've had both good and incompetent. So glad you've got a good one.

a

On Mar 23, 2006, at 7:49 AM, Randall wrote:

> I have to say that I have been very impressed with my rheumatologist

> too, so far. She has spent a LOT of time with me, and seen me

> frequently. When I've had a problem, she has called me back within

> a few hours, and has fit me in on short notice in an emergency. She

> really listens to what I have to say, and is very kind and caring.

>

> From what I hear, I got very lucky!

>

>