Re: have yet another dx to add to my list

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[ ] have yet another dx to add to my list

Hi all,

Went for my Remicade today. Took my partner with me to help me talk to my

rheumy, who we both like alot. On top of the RA, OA, spinal stenosis, asthma,

diabetes (thanks to prednisone), I now have an official dx of Fibromyalgia.

I explained to him, I don't WANT another dx, but I need to know what is going

on with me.

Don't remember if I posted here or not, but I am having a knee replacement on

11/27. There is no cartliage left, and the bones above and below are necrotic

(again, years of prednisone use).

When the rheumy told me to 'get as much rest as possible'. I laughed. My

partner had to have her ACL reconstructed, and has been in a brace and on

crutches for almost 3 wks. We have 2 special needs kids, one who needs constant

supervision. She has been unable to help much, but is improving and doing more

every day.

Which is good, b/c end of the month we switch roles, and I'll be post op and

she'll be doing everything.

T

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[Guest guest]

T,

My mom's name was . I am missing her a lot these days, probably

b/c of the holidays fast approaching.

Sorry about the new diagnosis. Don't you hate that? That is my

biggest concern everytime I go to the doctor's office. The last time

i was there the PA mentioned I may have overlapping conditions

because they have been unable to get the RA under control. I have

prednisone damage as well to my hips, worse on the left but both

pretty shot. Hips are very needed in a woman for many reasons and

for me losing use of my hips is just absolutely unacceptable in my

mind. I didn't complain much when the shoulders went, the elbows

went, the feet/toes went, the wrists went, the fingers went, the

knees are always swollen, but I did complain when my hips went,

mainly b/c I warned them while it was happening and they just stood

there doing nothing. Kind of like they are right now with severe

skin problems on both lower legs. Looks so bad I am afraid of ulcers

forming. I am afraid of another diagnosis coming out of it as well.

The dermatologist says it's dermatitis; however, it is getting worse

and is painful.

You guys should get help with the kids. God bless you for caring for

special needs children, but I remember how difficult it was caring

for my daughter with special needs, the lifting and changing diapers,

PT appts, many doctor appts., etc. I always wondered if her quality

of care was adequate with a mom in my condition (i never felt it was

and voiced my concerns to family always), so with the both of you in

such a condition, you should get family over or hire someone for a

short time to help out.

Sorry about the added diagnosis and good luck on the surgery this

month.

peace and healing,

Ebony

>

> Hi all,

> Went for my Remicade today. Took my partner with me to help me

talk to my rheumy, who we both like alot. On top of the RA, OA,

spinal stenosis, asthma, diabetes (thanks to prednisone), I now have

an official dx of Fibromyalgia.

> I explained to him, I don't WANT another dx, but I need to know

what is going on with me.

> Don't remember if I posted here or not, but I am having a knee

replacement on 11/27. There is no cartliage left, and the bones above

and below are necrotic (again, years of prednisone use).

> When the rheumy told me to 'get as much rest as possible'. I

laughed. My partner had to have her ACL reconstructed, and has been

in a brace and on crutches for almost 3 wks. We have 2 special needs

kids, one who needs constant supervision. She has been unable to help

much, but is improving and doing more every day.

> Which is good, b/c end of the month we switch roles, and I'll be

post op and she'll be doing everything.

>

> T

>

>

> ---------------------------------

> Get your email and see which of your friends are online - Right on

the new .com

>

>

[Guest guest]

> There is no cartliage left, and the bones above and below are necrotic

> (again, years of prednisone use).>>>

>

How many years and howe much prednisone?

Do you mean you have osteoporosis?

Thanks,

Pris

[Guest guest]

,

Sorry about your added fibromyalgia diagnosis.

Best of luck to you for your knee replacement surgery! Let us know how it

goes.

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] have yet another dx to add to my list

> Hi all,

> Went for my Remicade today. Took my partner with me to help me talk to my

> rheumy, who we both like alot. On top of the RA, OA, spinal stenosis,

> asthma, diabetes (thanks to prednisone), I now have an official dx of

> Fibromyalgia.

> I explained to him, I don't WANT another dx, but I need to know what is

> going on with me.

> Don't remember if I posted here or not, but I am having a knee

> replacement on 11/27. There is no cartliage left, and the bones above and

> below are necrotic (again, years of prednisone use).

> When the rheumy told me to 'get as much rest as possible'. I laughed. My

> partner had to have her ACL reconstructed, and has been in a brace and on

> crutches for almost 3 wks. We have 2 special needs kids, one who needs

> constant supervision. She has been unable to help much, but is improving

> and doing more every day.

> Which is good, b/c end of the month we switch roles, and I'll be post op

> and she'll be doing everything.

>

> T

[Guest guest]

Hi, my mother's name was also , and I, too, am missing her this holiday

season. My daughter is another , named after her beloved grandmother.

And my granddaughters each carry one of their great-grandmother's names as

their middle names.

I know how you feel - it seems like my docs are continually adding dxs. Oh,

you hurt there - must be Polymyalgia Rheumatica. Oh, the meds aren't doing

it - must be Fibromyalgia. Oh, guess what - you have osteopinia from the

prednisone, despite the Fosamax and the calcium. Oh, and diabetes, too.

Dry eyes? Fog? oh well, that's the medications as well as the Fibro and the

Sjogrens . . . your knee? You have no meniscus left because you reacted to

the dye they used for your breast MRI (had to have a lump removed, at least

it was benign!), and the swelling shredded what was left of the meniscus.

It's too bad for arthroscopy, but since the bone is still good, we can't do

a knee replacement, either. Hip pain? you're compensating for the knee . .

.. does it ever end? I keep wondering what will be next.

T, you are one of my heroes, caring for not one, but two special needs

children. My son works with autistic children, and I watch him come home

from school exhausted, battered and bruised, because he is the only one on

the staff with the physical strength to lift/help some of the older

children. I simply cannot image how you manage with this awful condition!

God bless you and your partner.

On 11/8/06, T <spinningdyke@...> wrote:

>

> Hi all,

> Went for my Remicade today. Took my partner with me to help me talk to

> my rheumy, who we both like alot. On top of the RA, OA, spinal stenosis,

> asthma, diabetes (thanks to prednisone), I now have an official dx of

> Fibromyalgia.

> I explained to him, I don't WANT another dx, but I need to know what is

> going on with me.

> Don't remember if I posted here or not, but I am having a knee

> replacement on 11/27. There is no cartliage left, and the bones above and

> below are necrotic (again, years of prednisone use).

> When the rheumy told me to 'get as much rest as possible'. I laughed. My

> partner had to have her ACL reconstructed, and has been in a brace and on

> crutches for almost 3 wks. We have 2 special needs kids, one who needs

> constant supervision. She has been unable to help much, but is improving and

> doing more every day.

> Which is good, b/c end of the month we switch roles, and I'll be post op

> and she'll be doing everything.

>

> T

>

--

South Pasadena, CA

See my galleries! - http://www.pbase.com/arenared986

[Guest guest]

hang in there, sweetie. I know it's hard, I got blindsided on my

last rheumy visit too. (PMR.) My mama's name was , she had RA

too. She was one of the toughest people I have ever known, and her

sense of humor kept her going. Sounds like yall may have a lot in

common! Doctors are sometimes just clueless about all the hats we as

women have to wear, aren't they. Hoping a speedy recovery for your

and your life partner.

God bless.

Jane

>

> Hi all,

> Went for my Remicade today. Took my partner with me to help me

talk to my rheumy, who we both like alot. On top of the RA, OA,

spinal stenosis, asthma, diabetes (thanks to prednisone), I now have

an official dx of Fibromyalgia.

> I explained to him, I don't WANT another dx, but I need to know

what is going on with me.

> Don't remember if I posted here or not, but I am having a knee

replacement on 11/27. There is no cartliage left, and the bones

above and below are necrotic (again, years of prednisone use).

> When the rheumy told me to 'get as much rest as possible'. I

laughed. My partner had to have her ACL reconstructed, and has been

in a brace and on crutches for almost 3 wks. We have 2 special needs

kids, one who needs constant supervision. She has been unable to

help much, but is improving and doing more every day.

> Which is good, b/c end of the month we switch roles, and I'll be

post op and she'll be doing everything.

>

> T

>

>

> ---------------------------------

> Get your email and see which of your friends are online - Right on

the new .com

>

>

[Guest guest]

Ebony:

Sweetie, don't ever doubt that you were the most perfect mom that

your daughter could have had - she chose you because she knew you

would take care of her and love her, and you did all that you could.

I am also missing my mom more these days, and also it is no doubt

holiday related, because my mom loved the holidays and really did

them up right. Keeping you and all of the group in my prayers -

Kathe in CA

> >

> > Hi all,

> > Went for my Remicade today. Took my partner with me to help me

> talk to my rheumy, who we both like alot. On top of the RA, OA,

> spinal stenosis, asthma, diabetes (thanks to prednisone), I now

have

> an official dx of Fibromyalgia.

> > I explained to him, I don't WANT another dx, but I need to know

> what is going on with me.

> > Don't remember if I posted here or not, but I am having a knee

> replacement on 11/27. There is no cartliage left, and the bones

above

> and below are necrotic (again, years of prednisone use).

> > When the rheumy told me to 'get as much rest as possible'. I

> laughed. My partner had to have her ACL reconstructed, and has been

> in a brace and on crutches for almost 3 wks. We have 2 special

needs

> kids, one who needs constant supervision. She has been unable to

help

> much, but is improving and doing more every day.

> > Which is good, b/c end of the month we switch roles, and I'll

be

> post op and she'll be doing everything.

> >

> > T

> >

> >

> > ---------------------------------

> > Get your email and see which of your friends are online - Right

on

> the new .com

> >

> >