Re: Work, Fatigue, and limits? Holly THATS IT!

[Guest guest]

thats what I am afraid of. Before I got sick I was SO busy and ever home and my

kids did not see me.

Becuz of my husbands illness I worked so hard so many hours. (to support us)

SOmetimes I hvae viewd my illness as a gift. It let me be home and take better

care of my husband and my kids, even with my limits and my illness....

Gosh if I gets lots better, will I run off and get so busy again or something?

Yes, that is good advice, the kids need you, the housework doesn't and if ya

gotta pace yourself, put the wee ones first. and yes, let them help. Mine,

too, comb my hair, shave me etc. Just as I did for them when they were little.

And hey some o f it is awesome " bonding " time.

- In , Kathe Sabetzadeh <lv2ryd@...> wrote:

>

> Hi Holly:

>

> You are one lucky lady to have such a caring and

> supportive husband. Yes, sometimes those around us

> will see the fatigue on our faces and in our bodies

> before we will acknowledge it. It comes with the

> denial of this whole RA thing, and takes a little time

> to get used to. Face it, we have limits now as to what

> we can do without totally wiping ourselves out and

> then having more pain from overdoing. Yes, fatigue is

> a daily problem, and sometimes it's almost as big a

> problem as the pain itself. When I clean, I do one

> room at a time, and slowly. I do a few loads of

> laundry, and then sit for a while. I can do the

> sheets and then make the bed, and feel totally worn

> out, like I could just crawl back into that freshly

> made bed, no problem, and never get out again lol. You

> need to learn to pace yourself, we just are not who we

> used to be in terms of ability to rush around and do

> our chores all in one day. And with small children to

> take care of, they need you more than your house does,

> so spend your energy on them.

>

> Hang in there -

>

> Kathe in CA

>

>

>

> --- Holly <hollybgroovin2003@...> wrote:

>

> > Hope everyone is doing well today. I just have a

> > couple of questions

> > today. I am home on short term disability and and

> > trying to learn

> > what living with RA and lupus means to me. Does

> > everyone have

> > overwhelming fatigue? I get up in the morning, take

> > a shower, then

> > lay back down. I get up, make the bed, and have to

> > lay back down

> > again. It seems like I have to rest sooo much, I am

> > exhausted. The

> > last 2 nights I have slept very well, but still I am

> > so tired. Is

> > this normal? Also who still able to work and how

> > long were those, who

> > are now on disability, able to work after they first

> > started having

> > symptoms. Just onw more question. When my

> > husband came home last

> > night he saw that I had made the bed, did one load

> > of laundry, and

> > started dinner. He was proud of me even though I

> > was so upset that I

> > physically wasn't able to do more like I used to.

> > After dinner he

> > finished my chores, gave the kids there bath and let

> > me rest. It

> > seems that he understand my limits better than I do.

> > Has anyone else

> > experienced this? And is that even possible? Sorry

> > for the long

> > post, and thanks for your time. Best wishes,

> > Holly

> >

> >

> >

> >

> >

> >

> >

>

>

> Kathe

>

> " To ride a horse is to borrow freedom. "

>

>

>

> __________________________________________________

>

[Guest guest]

you dang on right about the bonding, me and my 3 are having a great time!

dreamer_plus <dreamer_plus@...> wrote: thats what I am afraid of. Before

I got sick I was SO busy and ever home and my kids did not see me.

Becuz of my husbands illness I worked so hard so many hours. (to support us)

SOmetimes I hvae viewd my illness as a gift. It let me be home and take better

care of my husband and my kids, even with my limits and my illness....

Gosh if I gets lots better, will I run off and get so busy again or something?

Yes, that is good advice, the kids need you, the housework doesn't and if ya

gotta pace yourself, put the wee ones first. and yes, let them help. Mine,

too, comb my hair, shave me etc. Just as I did for them when they were little.

And hey some o f it is awesome " bonding " time.

- In , Kathe Sabetzadeh <lv2ryd@...> wrote:

>

> Hi Holly:

>

> You are one lucky lady to have such a caring and

> supportive husband. Yes, sometimes those around us

> will see the fatigue on our faces and in our bodies

> before we will acknowledge it. It comes with the

> denial of this whole RA thing, and takes a little time

> to get used to. Face it, we have limits now as to what

> we can do without totally wiping ourselves out and

> then having more pain from overdoing. Yes, fatigue is

> a daily problem, and sometimes it's almost as big a

> problem as the pain itself. When I clean, I do one

> room at a time, and slowly. I do a few loads of

> laundry, and then sit for a while. I can do the

> sheets and then make the bed, and feel totally worn

> out, like I could just crawl back into that freshly

> made bed, no problem, and never get out again lol. You

> need to learn to pace yourself, we just are not who we

> used to be in terms of ability to rush around and do

> our chores all in one day. And with small children to

> take care of, they need you more than your house does,

> so spend your energy on them.

>

> Hang in there -

>

> Kathe in CA

>

>

>

> --- Holly <hollybgroovin2003@...> wrote:

>

> > Hope everyone is doing well today. I just have a

> > couple of questions

> > today. I am home on short term disability and and

> > trying to learn

> > what living with RA and lupus means to me. Does

> > everyone have

> > overwhelming fatigue? I get up in the morning, take

> > a shower, then

> > lay back down. I get up, make the bed, and have to

> > lay back down

> > again. It seems like I have to rest sooo much, I am

> > exhausted. The

> > last 2 nights I have slept very well, but still I am

> > so tired. Is

> > this normal? Also who still able to work and how

> > long were those, who

> > are now on disability, able to work after they first

> > started having

> > symptoms. Just onw more question. When my

> > husband came home last

> > night he saw that I had made the bed, did one load

> > of laundry, and

> > started dinner. He was proud of me even though I

> > was so upset that I

> > physically wasn't able to do more like I used to.

> > After dinner he

> > finished my chores, gave the kids there bath and let

> > me rest. It

> > seems that he understand my limits better than I do.

> > Has anyone else

> > experienced this? And is that even possible? Sorry

> > for the long

> > post, and thanks for your time. Best wishes,

> > Holly

> >

> >

> >

> >

> >

> >

> >

>

>

> Kathe

>

> " To ride a horse is to borrow freedom. "

>

>

>

> __________________________________________________

>

[Guest guest]

my son was 5 when I first got so sick and even he loved to comb my hair. My

girls love to give me hairdos I never woulda thought to wear. all my kids take

advantage of my " rest time " and they seek me out, they talk with me LOTS cuz I

am right there.

I like to think it also is teaching them to be compassionate and caring people.

- In , Billie <candy_pants27@...> wrote:

>

> you dang on right about the bonding, me and my 3 are having a great time!

>

> dreamer_plus <dreamer_plus@...> wrote: thats what I am afraid of. Before I

got sick I was SO busy and ever home and my kids did not see me.

> Becuz of my husbands illness I worked so hard so many hours. (to support us)

> SOmetimes I hvae viewd my illness as a gift. It let me be home and take

better care of my husband and my kids, even with my limits and my illness....

> Gosh if I gets lots better, will I run off and get so busy again or something?

>

> Yes, that is good advice, the kids need you, the housework doesn't and if ya

gotta pace yourself, put the wee ones first. and yes, let them help. Mine,

too, comb my hair, shave me etc. Just as I did for them when they were little.

And hey some o f it is awesome " bonding " time.

>

>

>

>

> - In , Kathe Sabetzadeh <lv2ryd@> wrote:

> >

> > Hi Holly:

> >

> > You are one lucky lady to have such a caring and

> > supportive husband. Yes, sometimes those around us

> > will see the fatigue on our faces and in our bodies

> > before we will acknowledge it. It comes with the

> > denial of this whole RA thing, and takes a little time

> > to get used to. Face it, we have limits now as to what

> > we can do without totally wiping ourselves out and

> > then having more pain from overdoing. Yes, fatigue is

> > a daily problem, and sometimes it's almost as big a

> > problem as the pain itself. When I clean, I do one

> > room at a time, and slowly. I do a few loads of

> > laundry, and then sit for a while. I can do the

> > sheets and then make the bed, and feel totally worn

> > out, like I could just crawl back into that freshly

> > made bed, no problem, and never get out again lol. You

> > need to learn to pace yourself, we just are not who we

> > used to be in terms of ability to rush around and do

> > our chores all in one day. And with small children to

> > take care of, they need you more than your house does,

> > so spend your energy on them.

> >

> > Hang in there -

> >

> > Kathe in CA

> >

> >

> >

> > --- Holly <hollybgroovin2003@> wrote:

> >

> > > Hope everyone is doing well today. I just have a

> > > couple of questions

> > > today. I am home on short term disability and and

> > > trying to learn

> > > what living with RA and lupus means to me. Does

> > > everyone have

> > > overwhelming fatigue? I get up in the morning, take

> > > a shower, then

> > > lay back down. I get up, make the bed, and have to

> > > lay back down

> > > again. It seems like I have to rest sooo much, I am

> > > exhausted. The

> > > last 2 nights I have slept very well, but still I am

> > > so tired. Is

> > > this normal? Also who still able to work and how

> > > long were those, who

> > > are now on disability, able to work after they first

> > > started having

> > > symptoms. Just onw more question. When my

> > > husband came home last

> > > night he saw that I had made the bed, did one load

> > > of laundry, and

> > > started dinner. He was proud of me even though I

> > > was so upset that I

> > > physically wasn't able to do more like I used to.

> > > After dinner he

> > > finished my chores, gave the kids there bath and let

> > > me rest. It

> > > seems that he understand my limits better than I do.

> > > Has anyone else

> > > experienced this? And is that even possible? Sorry

> > > for the long

> > > post, and thanks for your time. Best wishes,

> > > Holly

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> >

> >

> > Kathe

> >

> > " To ride a horse is to borrow freedom. "

> >

> >

> >

> > __________________________________________________

> >

[Guest guest]

my son was 5 when I first got so sick and even he loved to comb my hair. My

girls love to give me hairdos I never woulda thought to wear. all my kids take

advantage of my " rest time " and they seek me out, they talk with me LOTS cuz I

am right there.

I like to think it also is teaching them to be compassionate and caring people.

- In , Billie <candy_pants27@...> wrote:

>

> you dang on right about the bonding, me and my 3 are having a great time!

>

> dreamer_plus <dreamer_plus@...> wrote: thats what I am afraid of. Before I

got sick I was SO busy and ever home and my kids did not see me.

> Becuz of my husbands illness I worked so hard so many hours. (to support us)

> SOmetimes I hvae viewd my illness as a gift. It let me be home and take

better care of my husband and my kids, even with my limits and my illness....

> Gosh if I gets lots better, will I run off and get so busy again or something?

>

> Yes, that is good advice, the kids need you, the housework doesn't and if ya

gotta pace yourself, put the wee ones first. and yes, let them help. Mine,

too, comb my hair, shave me etc. Just as I did for them when they were little.

And hey some o f it is awesome " bonding " time.

>

>

>

>

> - In , Kathe Sabetzadeh <lv2ryd@> wrote:

> >

> > Hi Holly:

> >

> > You are one lucky lady to have such a caring and

> > supportive husband. Yes, sometimes those around us

> > will see the fatigue on our faces and in our bodies

> > before we will acknowledge it. It comes with the

> > denial of this whole RA thing, and takes a little time

> > to get used to. Face it, we have limits now as to what

> > we can do without totally wiping ourselves out and

> > then having more pain from overdoing. Yes, fatigue is

> > a daily problem, and sometimes it's almost as big a

> > problem as the pain itself. When I clean, I do one

> > room at a time, and slowly. I do a few loads of

> > laundry, and then sit for a while. I can do the

> > sheets and then make the bed, and feel totally worn

> > out, like I could just crawl back into that freshly

> > made bed, no problem, and never get out again lol. You

> > need to learn to pace yourself, we just are not who we

> > used to be in terms of ability to rush around and do

> > our chores all in one day. And with small children to

> > take care of, they need you more than your house does,

> > so spend your energy on them.

> >

> > Hang in there -

> >

> > Kathe in CA

> >

> >

> >

> > --- Holly <hollybgroovin2003@> wrote:

> >

> > > Hope everyone is doing well today. I just have a

> > > couple of questions

> > > today. I am home on short term disability and and

> > > trying to learn

> > > what living with RA and lupus means to me. Does

> > > everyone have

> > > overwhelming fatigue? I get up in the morning, take

> > > a shower, then

> > > lay back down. I get up, make the bed, and have to

> > > lay back down

> > > again. It seems like I have to rest sooo much, I am

> > > exhausted. The

> > > last 2 nights I have slept very well, but still I am

> > > so tired. Is

> > > this normal? Also who still able to work and how

> > > long were those, who

> > > are now on disability, able to work after they first

> > > started having

> > > symptoms. Just onw more question. When my

> > > husband came home last

> > > night he saw that I had made the bed, did one load

> > > of laundry, and

> > > started dinner. He was proud of me even though I

> > > was so upset that I

> > > physically wasn't able to do more like I used to.

> > > After dinner he

> > > finished my chores, gave the kids there bath and let

> > > me rest. It

> > > seems that he understand my limits better than I do.

> > > Has anyone else

> > > experienced this? And is that even possible? Sorry

> > > for the long

> > > post, and thanks for your time. Best wishes,

> > > Holly

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> >

> >

> > Kathe

> >

> > " To ride a horse is to borrow freedom. "

> >

> >

> >

> > __________________________________________________

> >

[Guest guest]

i'm actually kinda glad i got fibro/cfs. because who knows, i could have kept

on living life for tomorrow....instead of enjoying the here and now. not

appreciating what i have instead of always dreaming of better. i can honestly

say, I am thankful for my life and my girls lifes. I pray that God will keep

working in our lives to make it even better. I know God has great things in

store for me and my girls. I can't wait to see what!!!

dreamer_plus <dreamer_plus@...> wrote: my son was 5 when I first got so

sick and even he loved to comb my hair. My girls love to give me hairdos I

never woulda thought to wear. all my kids take advantage of my " rest time " and

they seek me out, they talk with me LOTS cuz I am right there.

I like to think it also is teaching them to be compassionate and caring people.

- In , Billie <candy_pants27@...> wrote:

>

> you dang on right about the bonding, me and my 3 are having a great time!

>

> dreamer_plus <dreamer_plus@...> wrote: thats what I am afraid of. Before I

got sick I was SO busy and ever home and my kids did not see me.

> Becuz of my husbands illness I worked so hard so many hours. (to support us)

> SOmetimes I hvae viewd my illness as a gift. It let me be home and take

better care of my husband and my kids, even with my limits and my illness....

> Gosh if I gets lots better, will I run off and get so busy again or something?

>

> Yes, that is good advice, the kids need you, the housework doesn't and if ya

gotta pace yourself, put the wee ones first. and yes, let them help. Mine,

too, comb my hair, shave me etc. Just as I did for them when they were little.

And hey some o f it is awesome " bonding " time.

>

>

>

>

> - In , Kathe Sabetzadeh <lv2ryd@> wrote:

> >

> > Hi Holly:

> >

> > You are one lucky lady to have such a caring and

> > supportive husband. Yes, sometimes those around us

> > will see the fatigue on our faces and in our bodies

> > before we will acknowledge it. It comes with the

> > denial of this whole RA thing, and takes a little time

> > to get used to. Face it, we have limits now as to what

> > we can do without totally wiping ourselves out and

> > then having more pain from overdoing. Yes, fatigue is

> > a daily problem, and sometimes it's almost as big a

> > problem as the pain itself. When I clean, I do one

> > room at a time, and slowly. I do a few loads of

> > laundry, and then sit for a while. I can do the

> > sheets and then make the bed, and feel totally worn

> > out, like I could just crawl back into that freshly

> > made bed, no problem, and never get out again lol. You

> > need to learn to pace yourself, we just are not who we

> > used to be in terms of ability to rush around and do

> > our chores all in one day. And with small children to

> > take care of, they need you more than your house does,

> > so spend your energy on them.

> >

> > Hang in there -

> >

> > Kathe in CA

> >

> >

> >

> > --- Holly <hollybgroovin2003@> wrote:

> >

> > > Hope everyone is doing well today. I just have a

> > > couple of questions

> > > today. I am home on short term disability and and

> > > trying to learn

> > > what living with RA and lupus means to me. Does

> > > everyone have

> > > overwhelming fatigue? I get up in the morning, take

> > > a shower, then

> > > lay back down. I get up, make the bed, and have to

> > > lay back down

> > > again. It seems like I have to rest sooo much, I am

> > > exhausted. The

> > > last 2 nights I have slept very well, but still I am

> > > so tired. Is

> > > this normal? Also who still able to work and how

> > > long were those, who

> > > are now on disability, able to work after they first

> > > started having

> > > symptoms. Just onw more question. When my

> > > husband came home last

> > > night he saw that I had made the bed, did one load

> > > of laundry, and

> > > started dinner. He was proud of me even though I

> > > was so upset that I

> > > physically wasn't able to do more like I used to.

> > > After dinner he

> > > finished my chores, gave the kids there bath and let

> > > me rest. It

> > > seems that he understand my limits better than I do.

> > > Has anyone else

> > > experienced this? And is that even possible? Sorry

> > > for the long

> > > post, and thanks for your time. Best wishes,

> > > Holly

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> >

> >

> > Kathe

> >

> > " To ride a horse is to borrow freedom. "

> >

> >

> >

> > __________________________________________________

> >