Re: Work, Fatigue, and limits? Holly

[Guest guest]

Hi Holly:

You are one lucky lady to have such a caring and

supportive husband. Yes, sometimes those around us

will see the fatigue on our faces and in our bodies

before we will acknowledge it. It comes with the

denial of this whole RA thing, and takes a little time

to get used to. Face it, we have limits now as to what

we can do without totally wiping ourselves out and

then having more pain from overdoing. Yes, fatigue is

a daily problem, and sometimes it's almost as big a

problem as the pain itself. When I clean, I do one

room at a time, and slowly. I do a few loads of

laundry, and then sit for a while. I can do the

sheets and then make the bed, and feel totally worn

out, like I could just crawl back into that freshly

made bed, no problem, and never get out again lol. You

need to learn to pace yourself, we just are not who we

used to be in terms of ability to rush around and do

our chores all in one day. And with small children to

take care of, they need you more than your house does,

so spend your energy on them.

Hang in there -

Kathe in CA

--- Holly <hollybgroovin2003@...> wrote:

> Hope everyone is doing well today. I just have a

> couple of questions

> today. I am home on short term disability and and

> trying to learn

> what living with RA and lupus means to me. Does

> everyone have

> overwhelming fatigue? I get up in the morning, take

> a shower, then

> lay back down. I get up, make the bed, and have to

> lay back down

> again. It seems like I have to rest sooo much, I am

> exhausted. The

> last 2 nights I have slept very well, but still I am

> so tired. Is

> this normal? Also who still able to work and how

> long were those, who

> are now on disability, able to work after they first

> started having

> symptoms. Just onw more question. When my

> husband came home last

> night he saw that I had made the bed, did one load

> of laundry, and

> started dinner. He was proud of me even though I

> was so upset that I

> physically wasn't able to do more like I used to.

> After dinner he

> finished my chores, gave the kids there bath and let

> me rest. It

> seems that he understand my limits better than I do.

> Has anyone else

> experienced this? And is that even possible? Sorry

> for the long

> post, and thanks for your time. Best wishes,

> Holly

>

>

>

>

>

>

>

Kathe

" To ride a horse is to borrow freedom. "

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