Still without a REAL diagnosis

[Guest guest]

Hey guys. Just wanted to update you on my husband's progress. He

has unexplained migrating joint pain since last January and has not

worked in over 2 months. His knees, shoulders and hands are the

worst lately. We went to our new and improved endo about the

hashimoto's diagnosis and she is treating him with Synthroid 1x day

to slightly raise his thyroid function. Also - she sent us to have a

MRI of his brain to check for growths or tumors on his pituitary

gland because of his suddenly low testosterone levels (188).

His RA dr finally relented and put him on doxycycline for a month to

kill lyme disease if he has that. He tested negative, but we all

know that you can have several tests before they come out positive.

All the symptoms were pointing to lyme, so we are treating it that

way. He also sent him to have chest and abdomen CT's done to rule

out bone cancer??? Also lots of new blood tests.

He has been on the meds for about 2 wks now and we have had several

good days. I keep praying that is from the meds, but I am scared the

pain will come back full force any day now because I feel they are

overlooking something.

But... thank goodness we are at least finally on some sort of meds.

It is so very hard to see him deteriorate this way. He was such a

strong manly kind of man He is only 37 yrs old!

Our next step is the Mayo clinic if we can't get answers from the

most recent testing. Just wanted to post an update just in case any

of this rings a bell with anyone out there. We are still without a

real diagnosis.

[Guest guest]

,

I'm right there with your husband. I've had chronic fatigue for ever it

seems now and tons of weird symptoms that started, but as of yet (haven't

gotten the ANA test back yet) still no real reason as to why my joints and

muscles hurt so much, along with hair loss and Raynauds Syndrome. I have

tons of the symptoms of Lupus which is why we are doing the ANA test, my

gosh had it drawn a week ago and still no results yet!! I'm wondering what

that means??? Any one with Lupus know how long the test takes? I know I've

asked this before but no one has chimed in yet.

C Warren

Co-Founder

www.achalasia.us

From: [mailto: ] On

Behalf Of treefrog3781

Sent: Monday, November 13, 2006 8:01 AM

Subject: [ ] Still without a REAL diagnosis

Hey guys. Just wanted to update you on my husband's progress. He

has unexplained migrating joint pain since last January and has not

worked in over 2 months. His knees, shoulders and hands are the

worst lately. We went to our new and improved endo about the

hashimoto's diagnosis and she is treating him with Synthroid 1x day

to slightly raise his thyroid function. Also - she sent us to have a

MRI of his brain to check for growths or tumors on his pituitary

gland because of his suddenly low testosterone levels (188).

His RA dr finally relented and put him on doxycycline for a month to

kill lyme disease if he has that. He tested negative, but we all

know that you can have several tests before they come out positive.

All the symptoms were pointing to lyme, so we are treating it that

way. He also sent him to have chest and abdomen CT's done to rule

out bone cancer??? Also lots of new blood tests.

He has been on the meds for about 2 wks now and we have had several

good days. I keep praying that is from the meds, but I am scared the

pain will come back full force any day now because I feel they are

overlooking something.

But... thank goodness we are at least finally on some sort of meds.

It is so very hard to see him deteriorate this way. He was such a

strong manly kind of man He is only 37 yrs old!

Our next step is the Mayo clinic if we can't get answers from the

most recent testing. Just wanted to post an update just in case any

of this rings a bell with anyone out there. We are still without a

real diagnosis.

[Guest guest]

I can certainly understand your husband's situation. I was whipped at 46

years old by RA and had a doc that figured it out immediately. That was a

bonus for me but it is still devastating to a normally active, can do

anything, male. I keep harping on the fact that depression is a very

important part of treatment early in the program. It seems to amplify the

inability to do formerly normal activities. The best thing you can do is

support him. It will make it easier for him and help him deal with this new

challenge. I hope a diagnosis will come soon, it's hard to not know.

Dennis in Eastexas

" It's not Rocket Surgery "

[ ] Still without a REAL diagnosis

> Hey guys. Just wanted to update you on my husband's progress. He

> has unexplained migrating joint pain since last January and has not

> worked in over 2 months. His knees, shoulders and hands are the

> worst lately. We went to our new and improved endo about the

> hashimoto's diagnosis and she is treating him with Synthroid 1x day

> to slightly raise his thyroid function. Also - she sent us to have a

> MRI of his brain to check for growths or tumors on his pituitary

> gland because of his suddenly low testosterone levels (188).

>

> His RA dr finally relented and put him on doxycycline for a month to

> kill lyme disease if he has that. He tested negative, but we all

> know that you can have several tests before they come out positive.

> All the symptoms were pointing to lyme, so we are treating it that

> way. He also sent him to have chest and abdomen CT's done to rule

> out bone cancer??? Also lots of new blood tests.

>

> He has been on the meds for about 2 wks now and we have had several

> good days. I keep praying that is from the meds, but I am scared the

> pain will come back full force any day now because I feel they are

> overlooking something.

>

> But... thank goodness we are at least finally on some sort of meds.

> It is so very hard to see him deteriorate this way. He was such a

> strong manly kind of man He is only 37 yrs old!

>

> Our next step is the Mayo clinic if we can't get answers from the

> most recent testing. Just wanted to post an update just in case any

> of this rings a bell with anyone out there. We are still without a

> real diagnosis.

>

>