Re: Crazy? Lori

[Guest guest]

Lori:

I am sorry to hear of your daughter loosing her hair -

it is hard enough for me to see my hair thinning, at

age 52, let alone be going bald at 13 - such a

sensitive age - how awful for her.

Is the Mtx and Humira working well for her RA? I am

on Enbrel and Mtx, have tried to do without one or the

other, only to find that I need the combo to have

relief of my RA. All you can do is try it, see if the

RA becomes more active and flares up without the Mtx,

and then make your decision based on the results.

Would your daughter choose hair over increased pain?

I would hope that this does not happen, but it could,

so you need to be prepared for that too.

I hope that, for her sake, she is able to go off of

the Mtx, and her hair begin to grow back in. Have you

tried Nioxin hair treatments? They have some great

shampoos and hair conditioning stuff that worked well

for me. Just a thought.

I am sorry that your daughter has to go through hair

loss on top of the RA - too young to be feeling so

damned old - and I will be keeping her and you too in

my prayers - Best of luck - hang in there -

Kathe in CA

--- Lori Maynard <lorimaynard@...> wrote:

> Am I crazy to want to take my 13 yo daughter off MTX

> because she is losing

> her hair in great clumps? If she had cancer I

> wouldn't stop chemotherapy.

> Am I crazy to do this?

>

>

>

> She cried for a couple of hours tonight and we

> bought a couple of hats but

> she is so depressed about the hair loss and the big

> bald spot on top of her

> head is getting bigger every day.

>

>

>

> I wonder how much faster RA will progress without

> the MTX if I keep her on

> Humira and Minocyn. My doctor is convinced that

> Humira works best when

> accompanied by MTX.

>

>

>

> I don't mean to be whining here, but I value your

> input because you all are

> living with this disease and I'm not. I'm just

> trying to keep my daughter

> as healthy as possible both physically and

> emotionally.

>

>

>

> Lori in NJ

>

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> [Non-text portions of this message have been

> removed]

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