Jump to content
RemedySpot.com

test post

Rate this topic


Guest guest

Recommended Posts

  • 7 years later...

Thanks Tracey !

Just a brief intro, I was diagnosed with CML in Dec 08, 6 months of Gleevec and

while I had a great Hematological Response, no cytogenetic (like still 20/20).

Then onto Sprycel, and even lower CBC counts (2k WBC, 46k Platelets, and slight

anemia). After 3 months on Sprycel, my Cytogenetic 'moved' to 19/20 from 20/20,

but basically no improvement otherwise.

So, dr. is seriously considering a transplant, getting my sisters tested. No

mutations in the June test, running one now to see..

Wondering if anyone else has had or heard of a similar profile, and maybe what

helped ? I have 2 very young boys (7 months and almost 3), and now just

wouldn'be a good time to go for a transplant. One of my best friends had one in

Jan for CML, and he's doing great, but I know it's a tough process.

I am (thanks to learning about Beth) going down to OHSU on Tuesday to possible

see if I am a good candidate for the Ariad trial (I live in Seattle so not too

far).

Just finally, thank you everyone for sharing, and truely enjoy seeing the great

support and encouragement that you all show to each other.

Hans

> >

> > For some reason I haven't been able to post, just testing.

> >

> > Says my messages have to be approved by the group owner....

> >

>

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...