Guest guest Posted November 13, 2006 Report Share Posted November 13, 2006 > PREDISONE DON'T DO A THING FOR > ME. I HOPE ALL IS WELL WITH YOU. > That means that RA is probably not your problem (inflammation). Pris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2006 Report Share Posted November 13, 2006 In a message dated 11/13/06 6:34:59 PM, foxybratgirlkm@... writes: > Dear Pris, > Hello, I don't mean to sound rude. But, i have really bad inflamation. I do > not know why the predisone doesnt work for me. it used to. But, now i have to > take a medidose pack.>>> > You are not rude at all! So it USED to work for you....... I know it is used as a diagnostic to see if you have RA.....if it works for you, you probably have RA instead of foibro, I have heard, assuming you have symptoms of both... Perhaps you need a stronger dose.....how much is in the medidose pack? Isn't that just a weeks supply? Pris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2006 Report Share Posted November 13, 2006 so what do they have you on now? Sorry you had such a bad experience with it. Joy KIMBERLY <foxybratgirlkm@...> wrote: THE FIRST TIME HUMIRA MADE ME SICK LONGER THAN I SHOULD HAVE BEEN WITH THE COMMON COLD. THIS LAST TIME WHAT HAPPEND WAS ON MONDAY I STARTED OUT WITH A MIGRAIN AND IT WILL USUALLY GO AWAY WHEN I GO TO SLEEP AND IT WILL BE GONE IN THE MORNING. WELL, THAT MONDAY I TOOK MY SHOT OF HUMIRA, AND THE NEXT MORNING I GOT UP WITH THE MIGRAIN STILL AND THROWING UP. I WAS AT THE DOCTORS ON TUES. URGENT CARE ON WED. THEN THE HOSPITAL FRI NIGHT. I COULD NOT EVEN KEEP WATER IN MY SYSTEM, I WAS ON DIFFRENT MEDS TO TEY TO HELP ME WHICH NEVER WORKED I MUST OF THREW UP 10 TIMES A DAY AND WAS GOING TO THE BATHROOM. I NEVER SLEPT SO MUCH IN MY LIFE!! THEY FIGURED OUT BETWEEN MY REGULAR DOC. AND MY RA DOC. THAT THE HUMIRA WAS MESSING WITH ME. IF YOU HAVE TO TAKE IT PLEASE MAKE SURE THAT YOU FEEL TOTALLY FINE. I HAVE BEEN SO TRAUMATIZED FROM THE WHOLE SITUATION. IT TOOK ABOUT 9 DAYS TO FEEL NORMAL AGAIN. I STILL FEEL A LITTLE WEIRD, DON'T EAT AS MUCH AND EVERTIME I GET A HEADACHE I TAKE SOMETHING RIGHT AWAY. I'M SICK OF ALL THESE MED CHANGES. PREDISONE DON'T DO A THING FOR ME. I HOPE ALL IS WELL WITH YOU. LOVE, KIM PS: SORRY ABOUT THE LONG POST Joy ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Visit Joy's Homepage and Reading Room! http://jhoormann-ivil.tripod.com Come see My Dog Salsa! http://www.geocities.com/jhoorm01/Salsa.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2006 Report Share Posted November 13, 2006 Dear Joy, Thanks for writing. now they want me on MTX and they want to start me on Oncia. The predisone don't do anything for me becuase i have such bad inflamation the thing that does work id a medidose pack where the pills are 6,5,4,3,2,1, I take that for a bad flare. But, they have to see what the insurance will pay for hopefuuly the oncia, becuase my doc said remicade is just like the Humira but, stronger and thru an IV. this is so scary for me. I'm 27 and sometimes I feel like 87. I can't even run my daycare in my home anymore. I'm looking to get into something else. The group warned me in the begining about the daycare. Keep in touch. Love, kim Joy <jhoorm01@...> wrote: so what do they have you on now? Sorry you had such a bad experience with it. Joy KIMBERLY <foxybratgirlkm@...> wrote: THE FIRST TIME HUMIRA MADE ME SICK LONGER THAN I SHOULD HAVE BEEN WITH THE COMMON COLD. THIS LAST TIME WHAT HAPPEND WAS ON MONDAY I STARTED OUT WITH A MIGRAIN AND IT WILL USUALLY GO AWAY WHEN I GO TO SLEEP AND IT WILL BE GONE IN THE MORNING. WELL, THAT MONDAY I TOOK MY SHOT OF HUMIRA, AND THE NEXT MORNING I GOT UP WITH THE MIGRAIN STILL AND THROWING UP. I WAS AT THE DOCTORS ON TUES. URGENT CARE ON WED. THEN THE HOSPITAL FRI NIGHT. I COULD NOT EVEN KEEP WATER IN MY SYSTEM, I WAS ON DIFFRENT MEDS TO TEY TO HELP ME WHICH NEVER WORKED I MUST OF THREW UP 10 TIMES A DAY AND WAS GOING TO THE BATHROOM. I NEVER SLEPT SO MUCH IN MY LIFE!! THEY FIGURED OUT BETWEEN MY REGULAR DOC. AND MY RA DOC. THAT THE HUMIRA WAS MESSING WITH ME. IF YOU HAVE TO TAKE IT PLEASE MAKE SURE THAT YOU FEEL TOTALLY FINE. I HAVE BEEN SO TRAUMATIZED FROM THE WHOLE SITUATION. IT TOOK ABOUT 9 DAYS TO FEEL NORMAL AGAIN. I STILL FEEL A LITTLE WEIRD, DON'T EAT AS MUCH AND EVERTIME I GET A HEADACHE I TAKE SOMETHING RIGHT AWAY. I'M SICK OF ALL THESE MED CHANGES. PREDISONE DON'T DO A THING FOR ME. I HOPE ALL IS WELL WITH YOU. LOVE, KIM PS: SORRY ABOUT THE LONG POST Joy ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Visit Joy's Homepage and Reading Room! http://jhoormann-ivil.tripod.com Come see My Dog Salsa! http://www.geocities.com/jhoorm01/Salsa.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2006 Report Share Posted November 13, 2006 Dear Pris, Hello, I don't mean to sound rude. But, i have really bad inflamation. I do not know why the predisone doesnt work for me. it used to. But, now i have to take a medidose pack. And that does wonders. I had a regular doc for a year tell me I didnt have RA, while I suffered tremendously for that year after I told him I did have it. The RA doc. dx me again with it. I was siging papers to have carpal tunnel surgery, becuase my reg. doc said that's what it was. Then the hand surgeon said I cant do this surgery. It wont help you something else is going on. SO, he called my reg. doc. and told him I had RA and he did not like that and got rid of me as his patient. I was glad. I have a great reg. doctor now that I have been waiting for. She works well with my RA doc. Love, Kim NELLIESTAR@... wrote: > PREDISONE DON'T DO A THING FOR > ME. I HOPE ALL IS WELL WITH YOU. > That means that RA is probably not your problem (inflammation). Pris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2006 Report Share Posted November 14, 2006 You sound like me. Only the medrol dosepaks work for me too. That's because it starts you out with 24 mg of medicine. Anything lower than that does nothing for me. Problem is I am not interested in staying at a dose that high with my current joint damage caused by years of prednisolone use and steroid injections. Also the prednisolone seems to go to work faster in my body and the prednisone takes longer so maybe that is what's happening with you also. peace, Ebony > > > > PREDISONE DON'T DO A THING FOR > > ME. I HOPE ALL IS WELL WITH YOU. > > > > That means that RA is probably not your problem (inflammation). > Pris > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2006 Report Share Posted November 14, 2006 Yes it's just a week supply. but, it does good for a couple weeks. I asked the doctor about the fibro, he said I did not have that. I thought I did. Love, Kim NELLIESTAR@... wrote: In a message dated 11/13/06 6:34:59 PM, foxybratgirlkm@... writes: > Dear Pris, > Hello, I don't mean to sound rude. But, i have really bad inflamation. I do > not know why the predisone doesnt work for me. it used to. But, now i have to > take a medidose pack.>>> > You are not rude at all! So it USED to work for you....... I know it is used as a diagnostic to see if you have RA.....if it works for you, you probably have RA instead of foibro, I have heard, assuming you have symptoms of both... Perhaps you need a stronger dose.....how much is in the medidose pack? Isn't that just a weeks supply? Pris Quote Link to comment Share on other sites More sharing options...
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