Re: I need to be a speed reader...

[Guest guest]

Dear Jenna:

Thank you for the info on the doctors. I'll say a prayer for your recovery (and for all here). Thanks for taking the time to write and be of support to us.

Pearl

[Guest guest]

e, you'll have to excuse my ignorance amidst this medical lingo... is CA cancer?

Pearl

[Guest guest]

e,

Check out http://www.lanelabs.com/for MGN-3. One of

the cancers they say it has been effective with is

multiple myeloma.

Rogene

--- e Rene <e_Rene@...> wrote:

> I was also dx'd with SLE (lupus) in 1999(?). Since

> then, my ANA titers went up and down, but were

> always positive. However, in December, my ANA

> titers were negative and have continued to be

> negative. My rheumy feels that my ANA titers were a

> false positive and that I probably never had lupus,

> but instead a undifferentiated mixed connective

> tissue disease. He feels strongly that my implants

> caused the elevated ANA as well as the symptoms

> indicative of SLE. While that is great news that I

> may have never had SLE, my rheumatoid factor is

> gradually going up and I still, without a doubt,

> have FMS. But in turn for " getting rid " of the SLE,

> I now have CA. But anyway, I think it is entirely

> possible that implants can be directly related to a

> dx of SLE and that it is possible to reverse this dx

> with removal of the implants and with time.

>

> e

>

> ----- Original Message -----

> From: el_jeena

> Sent: Monday, February 04, 2002 9:59 PM

>

> Subject: I need to be a speed

> reader...

>

> Wow, I need to read faster to keep with this forum.

> I can't be on

> here as much as I would like and I have just now

> read what I have

> missed today.

>

> Today has been a hectic day for me today, and my

> body can't take

> much " hecticness " . (is that a word?) Oh well, I am

> doing much

> better than I was with implants, but it is all

> relative, since most

> people would not want to live in my body now.

>

> Sometimes I get down, just because I need the

> shoulder replacement,

> then I read things like people having faulty joints

> and I just freak

> out. This is exactly why I won't submit to this.

> Yet, I have no real

> quality of life without being able to use my arms

> properly. I sure

> someone would be on this group who has had a

> shoulder replacement and

> they could tell me about it...not that I hope there

> is anyone who has

> had to go through this nightmare.

>

> I just wish I had gotten my implants removed

> sooner....then I would

> not have lost my joints. They were ok til 1999. I

> could kick myself

> a 1000 times over. I also would not have lost half

> of my breast. I

> have been thinking about that again today. I know I

> need a few little

> things done to my breast to improve it, but I am

> such a major

> chicken. I keep thinking I should leave well enough

> alone. I am

> seriously thinking of getting a pretty viney flower

> tattooed on it

> and call it quits. Seriously. I wouldn't feel it.

>

> All in all, I am very grateful that I was able to be

> explanted. That

> would never have been possible without finally

> getting my

> disability.

>

> Pearl, you asked where Dr. Melmed and Dr. Shaw are.

> I think Dr. Shaw

> is in CA. and Dr. Melmed is in Dallas area.

>

> Also, my numbness in my hands went away when I was

> explanted. Dr.

> Feng said the implants were pressing against a nerve

> that goes to the

> hand. She said some P/Ss damage that nerve when

> putting implants in

> and in the worst cases, they sever it, in which case

> you never get it

> back. I am very thankful she carefully got my

> implants off the nerve

> and I have feeling back. I couldn't even pick up a

> dime.

>

> Someone asked about me having lupus. Yes, I was told

> I do. Some tests

> say I do, but I fully believe this can turn around.

> I have gone off

> Prednisone and so far, so good. I have only gotten a

> few sores and

> symptoms resembling a flare and I am refusing to go

> back on it. Wish

> me luck.

>

> Well, hope all of you can have a nice, peaceful,

> painfree night.

> Anymore, a good night's sleep is better than gold

> for me.

> Sleep....ahhhhh...something I get a little more of

> since

> explantation. I have been hospitalized before for

> not being able to

> sleep at all for 5 days straight. Not fun.

>

> Love to all...

>

>

>

>

>