Guest guest Posted May 24, 2001 Report Share Posted May 24, 2001 Cool thanks Tim!!!!!!! Beck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2001 Report Share Posted May 25, 2001 Thanks for the information Tim and I really appreciate your contribution to this group!! Marci (Mom to ) Oklahoma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2002 Report Share Posted January 26, 2002 I meant to cut off the original part of this message I wanted to repost the part about hairloss from Dr Kolb, sorry bout that, SILLY ME! ----- Original Message ----- From: " Heer " <cjheer@...> < > Sent: Saturday, January 26, 2002 2:54 PM Subject: Fw: I feel unwelcome here. Sorry so longggg. > Another good repost > ----- Original Message ----- > From: " Dr. Kolb " <drkolb@...> > < > > Sent: Saturday, December 15, 2001 6:14 AM > Subject: Re: I feel unwelcome here. Sorry so longggg. > > > > Dear Nik: Please take a look at the Mentor saline implant booklet and the > > FDA information. They recommend that if you have an autoimmune disease > > (which alopecia acreata is) that you do not have saline implants. The > > implants may not be the cause of the hair loss but they can exacerbate the > > condition. I believe the hair loss is a combination of nutritional and > > hormonal conditions which the silicone immune disease can create although > > their are many other causes of hair loss as there are other causes of > > fibromyalgia. Heavy metal testing would also be a good idea. . > > ----- Original Message ----- > > From: nikkipep <GP369@...> > > < > > > Sent: Saturday, December 15, 2001 3:47 AM > > Subject: I feel unwelcome here. Sorry so longggg. > > > > > > > Ladies, > > > I'd like everyone to know how I feel, and why I came to this > > > forum. First I came here from a forum on hair loss, another poster on > > > the forum (Hairsite) posted the link. So I thought I'd check it out. > > > Now I'll tell you my story so you can understand why I am > > > looking into everything. I have had alopecia areata for around 20 > > > years. That is hair loss in round spots, and it can also be diffuse. > > > It started in my early 20's. They say it is genetic and you can > > > inherit alopecia areata. No big deal, I have learned to live with it > > > and had to wear a wig for a year. > > > My life has been crazy for years, my Dad has had 5 spinal > > > operations and is not well, and was told he won't be able to get > > > around in a few years. I have been his caregiver, housekeeper, and my > > > heart breaks to see my Dad in pain. So my stress is very high. > > > I got saline Mc Ghan implants October of 93, over the muscle and > > > they turned out great. I had no complications, they are still soft > > > and I have no pain in my implants. > > > A little over 4 years ago, I got pregnant. The only reason I > > > knew I was pregnant was my dermatologist. I had marks on my skin, > > > above my lip. Like someone took a pencil and shaded it in. During > > > this time, my Mom almost died and my Dad is disabled. I was the one > > > holding down the house. I did not continue with the pregnancy. Now > > > most pregnancy related things go away within a year. Many peels, > > > bleach, and gels. I still had the pregnancy mask. It took over 3 > > > years for it to get 75% lighter. The doc said some women keep it for > > > life. It also took 3 years for my periods to get on track, no thanks > > > to the nutty endo that put me on aldactone with no birth control. > > > Thanks to him, giving me 3 periods a month. I have a ferritin level > > > of 34. Which does not help hair loss, and is a cause of it and it > > > takes a ferritin of 80 to regrow hair. > > > Also since age 25, I have had milk in my breast and I high > > > prolactin level that every doctor blows off. Prolactin is a major > > > cause of hair loss. I had high prolactin 5 years before implants, and > > > alopecia areata 10 years before implants. > > > Today I am a hair stylist, but I was a stripper for 15 years. I > > > blew both my knees out many times and was a very hard dancer. I > > > always had ice on one part of my body or another and use to wrap my > > > knees and right wrist in order to work. Which I covered with leg > > > warmers and bandanas. I quit dancing for my boyfriend 3 years ago. > > > Must be love as I quit for no man. > > > So after the pregnancy, I had the pregnancy mask, short cycles > > > with heavy bleeding and about 8 months later I noticed hair loss in > > > an all over shedding of 100 to 300 hairs a day. My hair still grows > > > back in with thick strands so it is not female pattern baldness. I do > > > get my areata spots once a year, which grow back in 6 months. I shed > > > like my cat. > > > OK, this is also what I have noticed but not to the point of > > > telling a doctor. > > > Mild joint pain, wrists, elbow, and kness, not everyday, and it > > > seems to come with my period. ( my friend and I chart our joint pain, > > > she has no implants.) Feet and hands have been swollen first 5 mins > > > in AM. Not everyday, maybe 3 times a month. Heel pain, not everyday > > > and only when I sit weird or my feet are up higher then my body. > > > This last thing is what lead me here. I had burning skin for a few > > > weeks. My back, butt, shoulders and side of my body, top of legs. > > > After the burn I broke out, butt, chest back, top of legs. All but a > > > few on my back have cleared up now. > > > Now, my hair loss can be my areata or my pregnancy, because if my > > > hormones did not go back to normal on their own. I need a doctor to > > > correct it, and that is a guessing game even for a great doc. If it > > > is my areata gone diffusa, well I'll have to deal as I'll probably go > > > bald and there is no cure. > > > As for my joint pain, I did dance for 15 years and the pain is mild > > > not even enough to take a pill. Heel pain 5 inch heels will kill your > > > feet and the damage might be from that. > > > Burning skin is why I came here and why I will never post again. I > > > started taking a hair supplement. I never really looked at everything > > > in it. When I talked to my derm's nurse today, she told me it might > > > be the biotin in my hair supplement. See I stopped taking it and no > > > burning skin. The only reason I know I have a problem on biotin, as I > > > overdosed on it years ago. Why? Well, as a dancer we had to be tan > > > and sexy. So biotin in a high dose, makes your skin hot and red. > > > Under black lights it looks like a killer tan. I took way to much and > > > ended up in the ER. They had ice bags all over me, my body was > > > burning up. Later the ER Doc yelled at me telling me high doses of > > > biotin causes organ failure. Biotin can cause burning skin. My skin > > > has not burned since I stopped taking it a month ago. I will take it > > > now to prove my point. > > > I came on this forum for advice and to learn what implants can do. > > > I thought I had made a friend. It seems I am not welcome here unless > > > I believe everything that is wrong with me is implant related, even > > > if I had the problem before implants. > > > Now yes I do believe implants can be harmful to some women. Yes my > > > eyes are open. Here is my point to everyone and the friend I thought > > > I had on this forum. > > > Isn't it in my best interest to find out why my prolactin is high, > > > could be a pituitary tumor. which can cause hair loss and my hormones > > > to be off. Or should I blow it off say it's my implants and get them > > > out and keep the tumor? Now I'm not saying that is what is wrong. > > > High prolactin levels can be from a pituitary tumor. Since the hair > > > loss, high prolactin levels, and some of the joint pain were pre > > > implants shouldn't I look in all directions? > > > Now it seems I am not welcome here because I won't blame it on my > > > implants right away and I'm exploring everything. It seems if I'm > > > not willing to get them out, I am not wanted or allowed to be > > > informed and up to date on the implant info. When I told my friend > > > that I have in the past had a reaction to biotin, she said why are > > > you on the forum then. Well if you didn't get sick, most of you would > > > still have implants. If it is not my implants why should I rip them > > > out. If my scalp biopsy comes back it is not my areata. I'll have to > > > look at my implants as the cause. YES if it is the implants I will > > > get them out. Maybe I'm nuts, but I think I'll make sure I don't have > > > a brain tumor from the prolactin before I run to explant. Yes, I'm > > > looking at other reasons, as half of what is wrong with me was pre > > > implants. > > > I'd like to stay on the forum to keep up on all the info. I won't > > > post or e mail anyone, as I have been asked why I'm even here. > > > I hope you all get better and wish you the best. Nik > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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