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  • 8 months later...

I meant to cut off the original part of this message I wanted to repost the

part about hairloss from Dr Kolb, sorry bout that,

SILLY ME!

----- Original Message -----

From: " Heer " <cjheer@...>

< >

Sent: Saturday, January 26, 2002 2:54 PM

Subject: Fw: I feel unwelcome here. Sorry so longggg.

> Another good repost

> ----- Original Message -----

> From: " Dr. Kolb " <drkolb@...>

> < >

> Sent: Saturday, December 15, 2001 6:14 AM

> Subject: Re: I feel unwelcome here. Sorry so longggg.

>

>

> > Dear Nik: Please take a look at the Mentor saline implant booklet and

the

> > FDA information. They recommend that if you have an autoimmune disease

> > (which alopecia acreata is) that you do not have saline implants. The

> > implants may not be the cause of the hair loss but they can exacerbate

the

> > condition. I believe the hair loss is a combination of nutritional and

> > hormonal conditions which the silicone immune disease can create

although

> > their are many other causes of hair loss as there are other causes of

> > fibromyalgia. Heavy metal testing would also be a good idea. .

> > ----- Original Message -----

> > From: nikkipep <GP369@...>

> > < >

> > Sent: Saturday, December 15, 2001 3:47 AM

> > Subject: I feel unwelcome here. Sorry so longggg.

> >

> >

> > > Ladies,

> > > I'd like everyone to know how I feel, and why I came to this

> > > forum. First I came here from a forum on hair loss, another poster on

> > > the forum (Hairsite) posted the link. So I thought I'd check it out.

> > > Now I'll tell you my story so you can understand why I am

> > > looking into everything. I have had alopecia areata for around 20

> > > years. That is hair loss in round spots, and it can also be diffuse.

> > > It started in my early 20's. They say it is genetic and you can

> > > inherit alopecia areata. No big deal, I have learned to live with it

> > > and had to wear a wig for a year.

> > > My life has been crazy for years, my Dad has had 5 spinal

> > > operations and is not well, and was told he won't be able to get

> > > around in a few years. I have been his caregiver, housekeeper, and my

> > > heart breaks to see my Dad in pain. So my stress is very high.

> > > I got saline Mc Ghan implants October of 93, over the muscle and

> > > they turned out great. I had no complications, they are still soft

> > > and I have no pain in my implants.

> > > A little over 4 years ago, I got pregnant. The only reason I

> > > knew I was pregnant was my dermatologist. I had marks on my skin,

> > > above my lip. Like someone took a pencil and shaded it in. During

> > > this time, my Mom almost died and my Dad is disabled. I was the one

> > > holding down the house. I did not continue with the pregnancy. Now

> > > most pregnancy related things go away within a year. Many peels,

> > > bleach, and gels. I still had the pregnancy mask. It took over 3

> > > years for it to get 75% lighter. The doc said some women keep it for

> > > life. It also took 3 years for my periods to get on track, no thanks

> > > to the nutty endo that put me on aldactone with no birth control.

> > > Thanks to him, giving me 3 periods a month. I have a ferritin level

> > > of 34. Which does not help hair loss, and is a cause of it and it

> > > takes a ferritin of 80 to regrow hair.

> > > Also since age 25, I have had milk in my breast and I high

> > > prolactin level that every doctor blows off. Prolactin is a major

> > > cause of hair loss. I had high prolactin 5 years before implants, and

> > > alopecia areata 10 years before implants.

> > > Today I am a hair stylist, but I was a stripper for 15 years. I

> > > blew both my knees out many times and was a very hard dancer. I

> > > always had ice on one part of my body or another and use to wrap my

> > > knees and right wrist in order to work. Which I covered with leg

> > > warmers and bandanas. I quit dancing for my boyfriend 3 years ago.

> > > Must be love as I quit for no man.

> > > So after the pregnancy, I had the pregnancy mask, short cycles

> > > with heavy bleeding and about 8 months later I noticed hair loss in

> > > an all over shedding of 100 to 300 hairs a day. My hair still grows

> > > back in with thick strands so it is not female pattern baldness. I do

> > > get my areata spots once a year, which grow back in 6 months. I shed

> > > like my cat.

> > > OK, this is also what I have noticed but not to the point of

> > > telling a doctor.

> > > Mild joint pain, wrists, elbow, and kness, not everyday, and it

> > > seems to come with my period. ( my friend and I chart our joint pain,

> > > she has no implants.) Feet and hands have been swollen first 5 mins

> > > in AM. Not everyday, maybe 3 times a month. Heel pain, not everyday

> > > and only when I sit weird or my feet are up higher then my body.

> > > This last thing is what lead me here. I had burning skin for a few

> > > weeks. My back, butt, shoulders and side of my body, top of legs.

> > > After the burn I broke out, butt, chest back, top of legs. All but a

> > > few on my back have cleared up now.

> > > Now, my hair loss can be my areata or my pregnancy, because if my

> > > hormones did not go back to normal on their own. I need a doctor to

> > > correct it, and that is a guessing game even for a great doc. If it

> > > is my areata gone diffusa, well I'll have to deal as I'll probably go

> > > bald and there is no cure.

> > > As for my joint pain, I did dance for 15 years and the pain is mild

> > > not even enough to take a pill. Heel pain 5 inch heels will kill your

> > > feet and the damage might be from that.

> > > Burning skin is why I came here and why I will never post again. I

> > > started taking a hair supplement. I never really looked at everything

> > > in it. When I talked to my derm's nurse today, she told me it might

> > > be the biotin in my hair supplement. See I stopped taking it and no

> > > burning skin. The only reason I know I have a problem on biotin, as I

> > > overdosed on it years ago. Why? Well, as a dancer we had to be tan

> > > and sexy. So biotin in a high dose, makes your skin hot and red.

> > > Under black lights it looks like a killer tan. I took way to much and

> > > ended up in the ER. They had ice bags all over me, my body was

> > > burning up. Later the ER Doc yelled at me telling me high doses of

> > > biotin causes organ failure. Biotin can cause burning skin. My skin

> > > has not burned since I stopped taking it a month ago. I will take it

> > > now to prove my point.

> > > I came on this forum for advice and to learn what implants can do.

> > > I thought I had made a friend. It seems I am not welcome here unless

> > > I believe everything that is wrong with me is implant related, even

> > > if I had the problem before implants.

> > > Now yes I do believe implants can be harmful to some women. Yes my

> > > eyes are open. Here is my point to everyone and the friend I thought

> > > I had on this forum.

> > > Isn't it in my best interest to find out why my prolactin is high,

> > > could be a pituitary tumor. which can cause hair loss and my hormones

> > > to be off. Or should I blow it off say it's my implants and get them

> > > out and keep the tumor? Now I'm not saying that is what is wrong.

> > > High prolactin levels can be from a pituitary tumor. Since the hair

> > > loss, high prolactin levels, and some of the joint pain were pre

> > > implants shouldn't I look in all directions?

> > > Now it seems I am not welcome here because I won't blame it on my

> > > implants right away and I'm exploring everything. It seems if I'm

> > > not willing to get them out, I am not wanted or allowed to be

> > > informed and up to date on the implant info. When I told my friend

> > > that I have in the past had a reaction to biotin, she said why are

> > > you on the forum then. Well if you didn't get sick, most of you would

> > > still have implants. If it is not my implants why should I rip them

> > > out. If my scalp biopsy comes back it is not my areata. I'll have to

> > > look at my implants as the cause. YES if it is the implants I will

> > > get them out. Maybe I'm nuts, but I think I'll make sure I don't have

> > > a brain tumor from the prolactin before I run to explant. Yes, I'm

> > > looking at other reasons, as half of what is wrong with me was pre

> > > implants.

> > > I'd like to stay on the forum to keep up on all the info. I won't

> > > post or e mail anyone, as I have been asked why I'm even here.

> > > I hope you all get better and wish you the best. Nik

> > >

> > >

> > >

> > >

> > >

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