Re: Hi all -

[Guest guest]

Hi everyone...My name is and I live in upstate NY. I have a son who is

almost 3 who was diagnosed March 31, 2003. We have just moved from home

based

therapy to a center based language rich program. He is doing well with the

adjustment there, not so well at home. I feel a bit of regression. I look

forward to gettingt o know all of you and getting some inside support. I

have alot

of frustrting wanna be medical doctors telling me what I should and should

not

do, MIL, Family and the like.

Hi ,

Welcome to the board. Wanna be medical doctors, huh? Been there. Not fun.

Kathy

[Guest guest]

In a message dated 9/29/03 7:12:56 PM Eastern Daylight Time,

rwinters@... writes:

> Hi ,

> Welcome to the board. Wanna be medical doctors, huh? Been there. Not fun.

>

> Kathy

>

Thanks Kathy!! I am really looking forward to help from the experience of

ya'll.

[Guest guest]

,

Good for you! I'm happy for your recovery, and I am glad you are in the

successful Post Heller category. I hope things continue on the same

path. Isn't life great again?

Jo

[Guest guest]

Dianne,

How wonderful for you to have a " working " vacation at Cam's! Don't

worry about keeping up perfectly with the board, just chime in

whenever you can. It is wonderful that you and your son are getting

some quality time together in such a beautiful spot.

Kathy

> Sorry not to have posted in in quite a while. Once I miss a day or

> so

> on the board it seems to take forever to catch up again. This

upsets

> me as I really would like to keep up with this board better than I

> did

> with the last one. I love the vibe here and feel so much more

> comfortable posting than at the last one!

>

> As some of you may know, I'm house-sitting on Nantucket for Cam

> while

> she and her family are vacationing on a houseboat in Canada. This

is

> my first visit to Nantucket. It's very charming and pretty. My

> sixteen-

> year-old son, Jack, is with me and it's been great having this one

> on

> one time with him. We have managed to get lost twice already on

this

> wee little island. But in all fairness, the town of Nantucket is a

> mishmash of one-way EXTREMELY narrow streets. The shuttle buses own

> the roads during tourist season and do not suffer visitors (unused

> to

> a pick-up truck with manual stick and extremely sensitive brakes)

> wisely. I'm talking one light tap of the brakes and Jack and I are

> peeling our foreheads off Cam and Pete's windshield, sensitive!

> I did take the shuttle into town yesterday (a much smarter choice

> than

> driving ones self) and walked around the cobble

> stoned main street. Fun people watching, 'spensive shops!, but next

> time I'll wear sneakers, my thick-soled sandals were not adequate

to

> the task and my back and hips are complaining about it today! (I

> will

> finally be able to get back to you, Joyce, about those gel insoles,

> as

> up til now I've been living in a great pair of Teva sandals all

> summer)

>

> By the way, I'm using Cam's computer while I'm here. You may notice

> that the smiley " online " icon is active next to her name on the

> board.

> It's just me.

>

> I know this is getting lengthy and I hope I haven't tested your

> patience talking about my vacation here, but I did want to take an

> opportunity to respond to some of the topics that have been on the

> board since I last posted...

>

> First to ; there was a post regarding a change in your surgery

> date, but I can't find the original post that says when your new

> date

> is. I'd like to put it on the calender if you don't mind. If you

> could also let me know the surgeon and location, hospital, and any

> other specifics you would

> care to share. I would like to include email addresses as well, but

> am

> I the only one that is frustrated by the way that only shows

> so

> much of an email address and cuts off before the " @whereever "

> displays? I try clicking the email address, but even when the

> letterhead displays the entire address doesn't! Am I missing

> something

> obvious here?

>

> There are other topics I'd like to chime in on, but I think it

might

> better to respond on the specific posts so it remains on thread.

>

> Signing off here... have missed taking part in the past week or so!

>

> Best to all, Dianne S.

[Guest guest]

Hey Kathy,

Whooee, if this is working, I found myself a new career! I'm

staying in a beautiful home on a gem of an island for twelve days,

with the same responsibilities I'd have if I were renting a place,

but rent free!

Hope to see you in chat tomorrow night. I think I've pretty much

exhausted my sitting time at this point, I can't feel my feet!

xoxo Dianne

> > Sorry not to have posted in in quite a while. Once I miss a day

or

> > so

> > on the board it seems to take forever to catch up again. This

> upsets

> > me as I really would like to keep up with this board better than

I

> > did

> > with the last one. I love the vibe here and feel so much more

> > comfortable posting than at the last one!

> >

> > As some of you may know, I'm house-sitting on Nantucket for Cam

> > while

> > she and her family are vacationing on a houseboat in Canada.

This

> is

> > my first visit to Nantucket. It's very charming and pretty. My

> > sixteen-

> > year-old son, Jack, is with me and it's been great having this

one

> > on

> > one time with him. We have managed to get lost twice already on

> this

> > wee little island. But in all fairness, the town of Nantucket is

a

> > mishmash of one-way EXTREMELY narrow streets. The shuttle buses

own

> > the roads during tourist season and do not suffer visitors

(unused

> > to

> > a pick-up truck with manual stick and extremely sensitive

brakes)

> > wisely. I'm talking one light tap of the brakes and Jack and I

are

> > peeling our foreheads off Cam and Pete's windshield, sensitive!

> > I did take the shuttle into town yesterday (a much smarter choice

> > than

> > driving ones self) and walked around the cobble

> > stoned main street. Fun people watching, 'spensive shops!, but

next

> > time I'll wear sneakers, my thick-soled sandals were not

adequate

> to

> > the task and my back and hips are complaining about it today! (I

> > will

> > finally be able to get back to you, Joyce, about those gel

insoles,

> > as

> > up til now I've been living in a great pair of Teva sandals all

> > summer)

> >

> > By the way, I'm using Cam's computer while I'm here. You may

notice

> > that the smiley " online " icon is active next to her name on the

> > board.

> > It's just me.

> >

> > I know this is getting lengthy and I hope I haven't tested your

> > patience talking about my vacation here, but I did want to take

an

> > opportunity to respond to some of the topics that have been on

the

> > board since I last posted...

> >

> > First to ; there was a post regarding a change in your

surgery

> > date, but I can't find the original post that says when your new

> > date

> > is. I'd like to put it on the calender if you don't mind. If

you

> > could also let me know the surgeon and location, hospital, and

any

> > other specifics you would

> > care to share. I would like to include email addresses as well,

but

> > am

> > I the only one that is frustrated by the way that only

shows

> > so

> > much of an email address and cuts off before the " @whereever "

> > displays? I try clicking the email address, but even when the

> > letterhead displays the entire address doesn't! Am I missing

> > something

> > obvious here?

> >

> > There are other topics I'd like to chime in on, but I think it

> might

> > better to respond on the specific posts so it remains on thread.

> >

> > Signing off here... have missed taking part in the past week or

so!

> >

> > Best to all, Dianne S.

[Guest guest]

I think we'll all be begging Cam to let us house-sit, if you keep talking

like that.

:^)

[ ] Re: Hi all -

> Hey Kathy,

>

> Whooee, if this is working, I found myself a new career! I'm

> staying in a beautiful home on a gem of an island for twelve days,

> with the same responsibilities I'd have if I were renting a place,

> but rent free!

>

> Hope to see you in chat tomorrow night. I think I've pretty much

> exhausted my sitting time at this point, I can't feel my feet!

>

> xoxo Dianne

>

>

>> > Sorry not to have posted in in quite a while. Once I miss a day

> or

>> > so

>> > on the board it seems to take forever to catch up again. This

>> upsets

>> > me as I really would like to keep up with this board better than

> I

>> > did

>> > with the last one. I love the vibe here and feel so much more

>> > comfortable posting than at the last one!

>> >

>> > As some of you may know, I'm house-sitting on Nantucket for Cam

>> > while

>> > she and her family are vacationing on a houseboat in Canada.

> This

>> is

>> > my first visit to Nantucket. It's very charming and pretty. My

>> > sixteen-

>> > year-old son, Jack, is with me and it's been great having this

> one

>> > on

>> > one time with him. We have managed to get lost twice already on

>> this

>> > wee little island. But in all fairness, the town of Nantucket is

> a

>> > mishmash of one-way EXTREMELY narrow streets. The shuttle buses

> own

>> > the roads during tourist season and do not suffer visitors

> (unused

>> > to

>> > a pick-up truck with manual stick and extremely sensitive

> brakes)

>> > wisely. I'm talking one light tap of the brakes and Jack and I

> are

>> > peeling our foreheads off Cam and Pete's windshield, sensitive!

>> > I did take the shuttle into town yesterday (a much smarter choice

>> > than

>> > driving ones self) and walked around the cobble

>> > stoned main street. Fun people watching, 'spensive shops!, but

> next

>> > time I'll wear sneakers, my thick-soled sandals were not

> adequate

>> to

>> > the task and my back and hips are complaining about it today! (I

>> > will

>> > finally be able to get back to you, Joyce, about those gel

> insoles,

>> > as

>> > up til now I've been living in a great pair of Teva sandals all

>> > summer)

>> >

>> > By the way, I'm using Cam's computer while I'm here. You may

> notice

>> > that the smiley " online " icon is active next to her name on the

>> > board.

>> > It's just me.

>> >

>> > I know this is getting lengthy and I hope I haven't tested your

>> > patience talking about my vacation here, but I did want to take

> an

>> > opportunity to respond to some of the topics that have been on

> the

>> > board since I last posted...

>> >

>> > First to ; there was a post regarding a change in your

> surgery

>> > date, but I can't find the original post that says when your new

>> > date

>> > is. I'd like to put it on the calender if you don't mind. If

> you

>> > could also let me know the surgeon and location, hospital, and

> any

>> > other specifics you would

>> > care to share. I would like to include email addresses as well,

> but

>> > am

>> > I the only one that is frustrated by the way that only

> shows

>> > so

>> > much of an email address and cuts off before the " @whereever "

>> > displays? I try clicking the email address, but even when the

>> > letterhead displays the entire address doesn't! Am I missing

>> > something

>> > obvious here?

>> >

>> > There are other topics I'd like to chime in on, but I think it

>> might

>> > better to respond on the specific posts so it remains on thread.

>> >

>> > Signing off here... have missed taking part in the past week or

> so!

>> >

>> > Best to all, Dianne S.

>

>

>

>

>

>

> scoliosis veterans * flatback sufferers * revision candidates

>

[Guest guest]

Well um, what I meant to say was what a lovely TENT Cam and Pete

have.... yeah..., a lovely MINERS tent!,yea, an it's right at the

mouth of a acrid mine.. a coal.. no, a COBBLESTONE mine, yeah,

that's the ticket... and I hafta mine those stones 4...no, 8 HOURS a

DAY, just so I can get a meal.. a, a bowl of gruel, yea! And it's

gray gruel ... with mealy bugs in it!

That's what I meant to say.

(did I mention that Nantucket's an arid wasteland?)

> >> > Sorry not to have posted in in quite a while. Once I miss a

day

> > or

> >> > so

> >> > on the board it seems to take forever to catch up again. This

> >> upsets

> >> > me as I really would like to keep up with this board better

than

> > I

> >> > did

> >> > with the last one. I love the vibe here and feel so much more

> >> > comfortable posting than at the last one!

> >> >

> >> > As some of you may know, I'm house-sitting on Nantucket for

Cam

> >> > while

> >> > she and her family are vacationing on a houseboat in Canada.

> > This

> >> is

> >> > my first visit to Nantucket. It's very charming and pretty. My

> >> > sixteen-

> >> > year-old son, Jack, is with me and it's been great having this

> > one

> >> > on

> >> > one time with him. We have managed to get lost twice already

on

> >> this

> >> > wee little island. But in all fairness, the town of Nantucket

is

> > a

> >> > mishmash of one-way EXTREMELY narrow streets. The shuttle

buses

> > own

> >> > the roads during tourist season and do not suffer visitors

> > (unused

> >> > to

> >> > a pick-up truck with manual stick and extremely sensitive

> > brakes)

> >> > wisely. I'm talking one light tap of the brakes and Jack and I

> > are

> >> > peeling our foreheads off Cam and Pete's windshield,

sensitive!

> >> > I did take the shuttle into town yesterday (a much smarter

choice

> >> > than

> >> > driving ones self) and walked around the cobble

> >> > stoned main street. Fun people watching, 'spensive shops!, but

> > next

> >> > time I'll wear sneakers, my thick-soled sandals were not

> > adequate

> >> to

> >> > the task and my back and hips are complaining about it

today! (I

> >> > will

> >> > finally be able to get back to you, Joyce, about those gel

> > insoles,

> >> > as

> >> > up til now I've been living in a great pair of Teva sandals

all

> >> > summer)

> >> >

> >> > By the way, I'm using Cam's computer while I'm here. You may

> > notice

> >> > that the smiley " online " icon is active next to her name on

the

> >> > board.

> >> > It's just me.

> >> >

> >> > I know this is getting lengthy and I hope I haven't tested

your

> >> > patience talking about my vacation here, but I did want to

take

> > an

> >> > opportunity to respond to some of the topics that have been on

> > the

> >> > board since I last posted...

> >> >

> >> > First to ; there was a post regarding a change in your

> > surgery

> >> > date, but I can't find the original post that says when your

new

> >> > date

> >> > is. I'd like to put it on the calender if you don't mind. If

> > you

> >> > could also let me know the surgeon and location, hospital, and

> > any

> >> > other specifics you would

> >> > care to share. I would like to include email addresses as

well,

> > but

> >> > am

> >> > I the only one that is frustrated by the way that only

> > shows

> >> > so

> >> > much of an email address and cuts off before the " @whereever "

> >> > displays? I try clicking the email address, but even when the

> >> > letterhead displays the entire address doesn't! Am I missing

> >> > something

> >> > obvious here?

> >> >

> >> > There are other topics I'd like to chime in on, but I think it

> >> might

> >> > better to respond on the specific posts so it remains on

thread.

> >> >

> >> > Signing off here... have missed taking part in the past week

or

> > so!

> >> >

> >> > Best to all, Dianne S.

> >

> >

> >

> >

> >

> >

> > scoliosis veterans * flatback sufferers * revision candidates

> >

[Guest guest]

Perhaps we've found the meeting location for our first " convention. " I

am sure Cam wouldn't mind at all!

HA!

kam

> I think we'll all be begging Cam to let us house-sit, if you keep

talking

> like that.

>

> :^)

[Guest guest]

<dakirb1@...> wrote: Has anyone else had a bad reaction to

Remicade?

In a way, I've been lucky. my rheumy put me on MTX, 10 mgr weekly and

prednisone 2.5 daily [also folic acid] and so far I had no bad reaction to

anything. This is obviously the right stuff for me. Keep your fingers crossed.

Has anyone else had RA to pop up overnight? Yap, it takes you by surprise ...

when you least expect it. I could not get out of bed one day, just like that.

For once, my husband was speechless.

Take care.

[Guest guest]

Hi

Good luck for the 16th March not too long to wait, I can understand

being nervous I was too before my surgery.

Astrid and Anita had there surgery very recently and are now both

doing very well.

It will be all worth it, let us know how it goes will be thinking of

you.

Take care

Pippa

>

> Hi it's just wanted to let you all know that I've got the

> heller's next Friday (16th March). All at very short notice so I

> haven't got too long to worry about it. I'm really nervous but I

hope

> it will all be worth it!! Had my pre-assesment today and that went

> well. I'll keep you posted on how it all goes!

>