Guest guest Posted July 3, 2006 Report Share Posted July 3, 2006 Hi everyone, I know I have been absent a long time, but I have been thinking of you. As today is another hot, humid day I decided to just relax most of it instead of flying around like a demented Tasmanian Devil. For those of you who don't know me and are reading this, I have Dercum's disease which is sort of like fibromyalgia, but adding in hundreds of painful lipomas all over my body. My most recent surgery to remove a large lipoma was in late May, and had a golf-ball sized tumor removed from my right forearm and sent to the doctor in California who is researching the disease. It took a long time to heal, and seriously interfered with my gardening! Been dealing with our daughter's ex and his family, who have squatted in daughter's house (which is on the market) and refuse to move or pay rent. I shudder to think what the house looks like inside, but we'll soon find out when the court-ordered eviction takes place. Meanwhile he is making our life miserable. My husband, Ron, is scheduled for deep brain stimulation surgery July 28 to relieve his Parkinson's symptoms. He is part of a study group from St. Hospital in Indianapolis, and will be the 3rd patient to undergo the surgery at this earlier stage in the disease. He spoke to a man last week who was #2, and the man said it has " exceeded his expectations! " They are hoping that by doing the surgery earlier in the disease it might either stop or reverse the course of the disease. After Ron is recovered from his surgery and has his " pacemaker " turned on, then I am due to have surgery on my right achilles' tendon, which is sporting a rather large tumor, along with one in the arch on that foot making it difficult to walk. Well, that's bout all my news for now. I hope everyone is enjoying a good Independence Day holiday (for those who celebrate it) and I join those who are suffering much more pain from the heat and humidity! Peace, Judi Quote Link to comment Share on other sites More sharing options...
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