Re: Having a very hard time! (((((((((Holly)))))))))))

[Guest guest]

Holly:

Sweetie, you're not a failure - don't ever think of

yourself in such ways. You have a disease, a ruthless

and almost unstoppable foe, and fighting it takes all

of your strength. I truly do empathize with what you

are going through, and can only imagine what it would

have been like if my children had been as young as

yours when I was first dx. Those first few months,

the first year actually, was the hardest, as I was

trying to mentally come to grips with such fatigue and

pain as I had never experienced before. We all

understand, Holly, and truly feel your pain. I don't

see why your doctor has not given you something for

sleep. I take Trazodone too, but I take 2 pills 3x a

day with a muscle relaxant (I have FM too), and it

does not make me sleepy in the least. I am on Ambien

CR and Zanaflex (also muscle relaxant at night) and

finally for the first time in years am getting sleep.

I think the plain Ambien would be worth a shot for

you, although it really puts me out, and to have a

young child need you during the night, I don't know

how easy it would be to wake up readily for that. I

have also taken Amitriptyline and Elavil for sleep,

but neither reached the success I have had with

Ambien. I wish I could help you out more, but my

words and cyber hugs are all I can offer you, my

friend. Blessings to you, and hang in there, we are

here for you -

Kathe in CA

--- Holly <hollybgroovin2003@...> wrote:

> I know everyone has been through this before with

> depression and pain

> and dealing with this and all, but I am having such

> a hard time.I'm in

> so much pain I feel like I'm going crazy. I can't

> pick up my youngest

> son, I can't buckle him in his car seat, I can't

> button anything, I

> can't use anything that involves a pump (like

> shampoo). I am not

> getting any sleep almost at all and then I have to

> wake up early in

> the morning to watch my kids. I can't take a nap or

> rest during the

> day because I don't have anyone to help with the

> kids. I just started

> disability so I can't afford to pay someone to watch

> the kids. I'm

> tires and in pain and depressed. I feel like a

> failure because I

> can't hardly do any housework. I am just a mess. I

> don't leave the

> house and have become very antisocial which is

> definately not me

> because I am usually a hyperactive person. Don't

> get me wrong my

> family is supportive, but they don't really

> understand. My doctor use

> to have me on something called Tramadol (not sure if

> that is right) to

> help me sleep, but it didn't help. I take 2 lortab

> 10 3 times a day,

> but they wear off within 1-2 hours. My doctor told

> me to take them

> right before bed to help me sleep, but it doesn't.

> So I find myself

> literally staying up until I'm exhausted which is

> usually around 4 or

> 5 a.m. I know I wouldn't be in as much pain or as

> emotional if I were

> getting sleep. Are there any websites with products

> for arthritis

> support? Thanks everyone, Holly

>

>

>

>

>

>

Kathe

" To ride a horse is to borrow freedom. "

__________________________________________________

[Guest guest]

Holly:

I hit send, and then thought, oh you idiot! I take

TRAMADOL three times a day, not TRAZODONE! Dang this

Fibro Fog! My brain is a sieve - literally loosing

information as I breathe lol. Anyway, yes, I have

also tried Trazodone for sleep, and it did help, but

nothing like the Ambien. Sorry for the mistaken

transposing of medications................. ye gods.

Kathe in CA

--- Kathe Sabetzadeh <lv2ryd@...> wrote:

>

> Holly:

>

> Sweetie, you're not a failure - don't ever think of

> yourself in such ways. You have a disease, a

> ruthless

> and almost unstoppable foe, and fighting it takes

> all

> of your strength. I truly do empathize with what

> you

> are going through, and can only imagine what it

> would

> have been like if my children had been as young as

> yours when I was first dx. Those first few months,

> the first year actually, was the hardest, as I was

> trying to mentally come to grips with such fatigue

> and

> pain as I had never experienced before. We all

> understand, Holly, and truly feel your pain. I

> don't

> see why your doctor has not given you something for

> sleep. I take Trazodone too, but I take 2 pills 3x

> a

> day with a muscle relaxant (I have FM too), and it

> does not make me sleepy in the least. I am on

> Ambien

> CR and Zanaflex (also muscle relaxant at night) and

> finally for the first time in years am getting

> sleep.

> I think the plain Ambien would be worth a shot for

> you, although it really puts me out, and to have a

> young child need you during the night, I don't know

> how easy it would be to wake up readily for that. I

> have also taken Amitriptyline and Elavil for sleep,

> but neither reached the success I have had with

> Ambien. I wish I could help you out more, but my

> words and cyber hugs are all I can offer you, my

> friend. Blessings to you, and hang in there, we are

> here for you -

>

> Kathe in CA

>

> --- Holly <hollybgroovin2003@...> wrote:

>

> > I know everyone has been through this before with

> > depression and pain

> > and dealing with this and all, but I am having

> such

> > a hard time.I'm in

> > so much pain I feel like I'm going crazy. I can't

> > pick up my youngest

> > son, I can't buckle him in his car seat, I can't

> > button anything, I

> > can't use anything that involves a pump (like

> > shampoo). I am not

> > getting any sleep almost at all and then I have to

> > wake up early in

> > the morning to watch my kids. I can't take a nap

> or

> > rest during the

> > day because I don't have anyone to help with the

> > kids. I just started

> > disability so I can't afford to pay someone to

> watch

> > the kids. I'm

> > tires and in pain and depressed. I feel like a

> > failure because I

> > can't hardly do any housework. I am just a mess.

> I

> > don't leave the

> > house and have become very antisocial which is

> > definately not me

> > because I am usually a hyperactive person. Don't

> > get me wrong my

> > family is supportive, but they don't really

> > understand. My doctor use

> > to have me on something called Tramadol (not sure

> if

> > that is right) to

> > help me sleep, but it didn't help. I take 2

> lortab

> > 10 3 times a day,

> > but they wear off within 1-2 hours. My doctor

> told

> > me to take them

> > right before bed to help me sleep, but it doesn't.

>

> > So I find myself

> > literally staying up until I'm exhausted which is

> > usually around 4 or

> > 5 a.m. I know I wouldn't be in as much pain or as

> > emotional if I were

> > getting sleep. Are there any websites with

> products

> > for arthritis

> > support? Thanks everyone, Holly

> >

> >

> >

> >

> >

> >

>

>

> Kathe

>

> " To ride a horse is to borrow freedom. "

>

>

>

> __________________________________________________

>