Prednisone weaning

[Guest guest]

I also played around with my Prednisone dosage. Thankfully I was never on more

than 10 mg a day, with an occasional increase to 15, for a flair. I was talking

with my sister last night and she said you should never stop prednisone without

weaning (which we know) however, the real danger is if you are on a high dosage,

over 50 mg. At that dosage the adrenal gland stops producing normally and the

prednisone takes over for it. If you stop cold or don't wean off slowly enough

you can cause damage to your kidneys. After weaning the adrenal gland begins to

work on it's own again. My sister has had Lupus for many years and at one time

was on 80 mg of Pred a day, she was very active in her care and learned as much

as she could about the disease and it's treatment, now she takes nothing and has

not had a flare for years.

Patsy

El Mirage, AZ

DX 2005 Stage 1 PBC

AIH/SLE/RA/COPD

Just a woman of letters....

[Guest guest]

Patsy,

Oh my, I can't imagine taking that high of a dosage. My daughter sometimes has

to take high doses for her asthma. But it makes her very hyper.\

My boss also has or had lupus and now she is in remission I guess they call

it.

The other day though she was asking me who my rheumatologist was because

her knees are bothering her and her GP said she needed to reestablish a

relationship

with an RA.

Pat Murray <patsy56er@...> wrote:

I also played around with my Prednisone dosage. Thankfully I was never

on more than 10 mg a day, with an occasional increase to 15, for a flair. I was

talking with my sister last night and she said you should never stop prednisone

without weaning (which we know) however, the real danger is if you are on a high

dosage, over 50 mg. At that dosage the adrenal gland stops producing normally

and the prednisone takes over for it. If you stop cold or don't wean off slowly

enough you can cause damage to your kidneys. After weaning the adrenal gland

begins to work on it's own again. My sister has had Lupus for many years and at

one time was on 80 mg of Pred a day, she was very active in her care and learned

as much as she could about the disease and it's treatment, now she takes nothing

and has not had a flare for years.

Patsy

El Mirage, AZ

DX 2005 Stage 1 PBC

AIH/SLE/RA/COPD

Just a woman of letters....

[Guest guest]

> was also diagnosed with MS just before Christmas of last year.

> The Neuro I was seeing prescribed me 2500mg of Prednisone a day for

> 10 days, and that was it>>>

>

Holy Smokes!

Does anyome know how much preddy is usually in the shots they give you for

bursitis? One gram?

Pris

[Guest guest]

> The Neuro I was seeing prescribed me 2500mg of Prednisone a day fo

>

How did you feel?

20 mg has me swinging from the chandeliers, starving, thirsty, unable to

sleep, hot, moody......

Hope you are doing well! That is a lot to cope with..

Hugs,

Pris

[Guest guest]

Pat:

I was also diagnosed with MS just before Christmas of last year.

The Neuro I was seeing prescribed me 2500mg of Prednisone a day for

10 days, and that was it. I questioned her about tapering, and that

I had RA and would flare, etc. - but she said it was going to be

fine.

Well, STUPID ME. I knew better. Not only did the 2500mg of

Prednisone NOT help my MS relapse, when I was finished the 10 day

treatment, I then had the worst RA flare of my life. I started back

on my 10mg dose of Prednisone, but after your body has as much as I

had, it does not respond to the 10mg! It was a long and painful

flare, to say the least. I have since fired that Neuro, and am

being assigned a new one soon.

Taper whenever you are on this drug no matter how much you are

increasing it. I became so ill from it that I should have been

hospitalized, but was too stubborn to leave my kids at Christmas

time.

Best of luck,

in Calgary, Canada

PS - on that high of a dose, I gained 25 pounds by day 5!!!!!!!!!!!!

[Guest guest]

Usually the mega predisone is given by an IV and then with a follow-up of

consistent blood sugar tests.

Rose

----- Original Message -----

From: NELLIESTAR@...

> was also diagnosed with MS just before Christmas of last year.

> The Neuro I was seeing prescribed me 2500mg of Prednisone a day for

> 10 days, and that was it>>>

>

Holy Smokes!

Does anyome know how much preddy is usually in the shots they give you for

bursitis? One gram?

Pris

[Guest guest]

Geoff,

You have a beautiful website with the well written web page

<http://www.healingyou.org/prednisone.html>www.healingyou.org/prednisone.html

on the topic of Prednisone weaning.

The following web page is also very informative and well written:

www.sarcinfo.com/weaning.htm. That page addresses Prednisone weaning

in context of the disease sarcoidosis.

In January of this year, I was able to wean myself off Prednisone

after one year for polymyalgia rheumatica. Starting at 10 mg per

day, I was instructed to drop 1 mg every three weeks at first and 1/2

mg every three weeks at the end. I went slower than instructed, with

lengthy plateaus for vacations and setbacks. I think that the key is

not to go any faster than indicated by the gradual healing of the

body, which is helped along by the Prednisone.

I am now off Prednisone completely, but my symptoms are not totally

gone. My body gives be plenty of symptoms two days before rainstorms,

and I sometimes look longingly at my remaining 1 mg Prednisone pills.

I have resisted them so far.

Sincerely, Harald

[Guest guest]

If you can stay away from pred. for a while, it would be good.

I stayed on it too long and now the endocrinologist said I must stay on

5 mg. forever if i want to live. I am down to 5mg. I have had severe

osteoporosis

and have to take Forteo. (that bad) The Cushings has improved, some of the

visible side effects are still

with me.

LOL,

Carol

Re: rheumatic Prednisone Weaning

Geoff,

You have a beautiful website with the well written web page

<http://www.healingyou.org/prednisone.html>www.healingyou.org/prednisone.html

on the topic of Prednisone weaning.

The following web page is also very informative and well written:

www.sarcinfo.com/weaning.htm. That page addresses Prednisone weaning

in context of the disease sarcoidosis.

In January of this year, I was able to wean myself off Prednisone

after one year for polymyalgia rheumatica. Starting at 10 mg per

day, I was instructed to drop 1 mg every three weeks at first and 1/2

mg every three weeks at the end. I went slower than instructed, with

lengthy plateaus for vacations and setbacks. I think that the key is

not to go any faster than indicated by the gradual healing of the

body, which is helped along by the Prednisone.

I am now off Prednisone completely, but my symptoms are not totally

gone. My body gives be plenty of symptoms two days before rainstorms,

and I sometimes look longingly at my remaining 1 mg Prednisone pills.

I have resisted them so far.

Sincerely, Harald

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