RE:Tested positive for auto-immune

April 16, 2001

Hi Stella. I, too, have auto-immune disease. At first my rheumatologist

thought it was Lupus but now they have down-graded it to " Unspecified

auto-immune Disease-a Lupus-like Syndrome " . That is an official quote, LOL.

I also have Antiphospholipid Antibody Syndrome which is sometime called

sticky blood. It is a propensity to get blood clots. When they decided I

didn't have Lupus, it was based on the fact that the blood test they do

most commonly for Lupus was negative but anecdotally I have had classic

Lupus symptoms (and continue to) since I was 12 years old. My doctor said

there is so much they DON'T know about AI disease that there isn't a name

for what I have but there is no doubt that I have it. AI Diseases can run

in families and one person can have several at once.

They have given me Plaquenil for the symptoms, the same drug they use for

Lupus. I also take aspirin as an anti-coagulant in an effort to stave off

having to take some of the really big-gun anti-coagulants like Coumadin.

If you are interested, I am in another listserv (a very active one)for

people with AI Dieseases. A lot of people there have fibro, too. I would be

happy to share the URL.

Hugs,

: )

Subject: Re: Fibromyalgia /CFS..auto immune???

However, my pain clinic doctor said that wasn't necessarily true. You can't

say that fibro is

your one and only diagnosis if you have several autoimmune diseases...

I have tested positive for autoimmune now they just have to figure out

which one has anyone ever

had this happen? I do have many symptoms of Fibro and CFS but as I

understand it they would not

make this test come out positive so they are doing further tests for lupus

and the such.

Stella/IL

Chronic Pain ~HUGS~

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