Fibromyalgia /CFS..auto immune???

[Guest guest]

Greetings Stella and All the Group,

My name is pam and I decided to join this group for probably the same reason

as everyone else - living with pain every day. I live in the Daytona Beach

area of Florida and it is already too hot. I can not wait for the day we

can move north. The air will be cleaner and I welcome the stress-free

countryside. It is much better then the road rage which exists here!! : )

Stella, at the same time I am going through pretty much the same thing as

you are and trying to find answers. It is almost more unbearable then

living with a disease condition.

I was tested high positive RA Factor and ANA. My doctor has not decided

what I have as yet but tentatively labels it MCTD (mixed connective tissue

disease). This opens me up to having most any of the auto-immune diseases,

if not some of everything. The doctor seems to think Lupus Syndrome and RA

at this time but I have heard he has written on my record FM and

Spondylitis.

For the past 6 weeks, off and on, I have been dealing with pain in the left

arm and hand of which there appears to be a lack of circulation so am not

sure exactly what is going on there. My fingernails have turned purple and

look like they are about to explode. The nurse told me to call this week

and she will try and get me in to see the doctor - he is double and triple

booked!

I have many other problems like the classic malar rash and have to wear

sunblock, hat and sunglasses when i go outside. It is much easier staying

inside. I also have asthma, hypertension, OA of the spine, GERD, chronic

sinusitis, essential tremors, major depression and who knows what else is

lerking behind the flesh.

Am sure you will experience some relief when the doctor figures out what is

wrong with you. I almost wanted to jump for joy because i was tired of

fighting with doctors that this pain was not " all in my head. "

I wish you best.

Read... read... read!

Always,

pam / cloud

> Date: Sun, 15 Apr 2001 06:46:03 -0700 (PDT)

>

>Subject: Re: Fibromyalgia /CFS..auto immune???

> (snip)

>I have tested positive for autoimmune now they just have to figure out

which one has anyone ever

>had this happen? I do have many symptoms of Fibro and CFS but as I

understand it they would not

>make this test come out positive so they are doing further tests for lupus

and the such.

>Stella/IL

>Chronic Pain ~HUGS~