I have FMS, I hope I'm not the only one who does this on the bed!

[Guest guest]

I have a queen size bed, and have it up against the wall so i have

less chance of falling....i actually have it made up like a couch with

all the pillows against the wall, it gives me support that way,

plus...i have a very high thread count sheet that i got at sams cheap,

its 1000 thread count (I like it because liek the princess and the

pea, I feel everythread!) anyway i lay that sheet down on top of the

already made bed, and sleep on top of it with my cylinder pillow and

special summer quilt as my cover(it is a quilted top, looking like a

quilt, but the bottom is a high count sheet sewed together!) it is

light so not too heavy on my body, in the am i bunch both items all up

in a ball and hide them behind one of my big pillows!!! if i dont do

it in the am, if someone is coming over it takes me 10 seconds to make

the bed, and i dont have to take a nap afterwards! or hurt all day

long!!! By the way, I can wash the sheet and blanket I use as often as

i need to, since i dont have to fold them!(that is painful!)

love becca

[Guest guest]

that kinda reminds me of myself. I sleep on top of the bed and cover myself

with my little down comfortet that is lightweight but oh so warm when i need it

to be............i have a hard time making the bed too so this way all i do is

gently fole the small comforter in the am and my bed is made. I cannnot

remember the last time I slept in the sheets.,,,,,

Pat in So Ore.

crazyteacher13 <crazyteacher13@...> wrote:

I have a queen size bed, and have it up against the wall so i have

less chance of falling....i actually have it made up like a couch with

all the pillows against the wall, it gives me support that way,

plus...i have a very high thread count sheet that i got at sams cheap,

its 1000 thread count (I like it because liek the princess and the

pea, I feel everythread!) anyway i lay that sheet down on top of the

already made bed, and sleep on top of it with my cylinder pillow and

special summer quilt as my cover(it is a quilted top, looking like a

quilt, but the bottom is a high count sheet sewed together!) it is

light so not too heavy on my body, in the am i bunch both items all up

in a ball and hide them behind one of my big pillows!!! if i dont do

it in the am, if someone is coming over it takes me 10 seconds to make

the bed, and i dont have to take a nap afterwards! or hurt all day

long!!! By the way, I can wash the sheet and blanket I use as often as

i need to, since i dont have to fold them!(that is painful!)

love becca

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[Guest guest]

Hi Becca,

No, you are not the only one. My approach is different but has the same goal.

Sometimes it does take come creating thinking figuring to sleep. Seems like you

have it made. Fortunately my feet are less painful now than they were a couple

years ago. EVERYTHING, that includes moving air, hurt my feet to the extent I

could not tolerate it. Of course I did tolerate it some as I had no other

choice at times, but sleeping I figured away around that. I slept on the couch

with the calves of my legs resting on the arm rest of the couch and pillows to

not stress my knees. That elevated my feet as well as keeping anything from

touching. I still had lots of pain but that was my best solution. My feet felt

like they were in a fireplace and I could just feel the flames liking, moving

around my feet. At least I didn't need any covers on my feet no matter the

temperature. So I just put a blanket over my body. Morning bed making

consisted of picking up the pillows and folding the blanket.

Then my feet began to go numb and didn't hurt quiet as much. It reached a

point that I tried my bed again. I tried several different material for sheets.

I had some good, high count sheets that I thought would work. One night when I

moved my foot it felt like I had hit a big jagged stick. So I tore the bed

apart looking. It was the hem of the sheet. Then I decided to go with flannel

as it is soft. That was good until I washed it a couple of times and it got

those little knots that flannel makes. (You wouldn't know they were there under

normal circumstances.) I found a couple of old old cotton sheets that had been

washed a zillion times. That was sort of ok but they weren't actually suited to

my bed, wrong size. T Shirt material, now that might do it. So I bought a set.

With the improving in my feet the t shirt ones are actable. Before that point

it hurt just to rest my feet on anything and that is why I slept on the couch so

that nothing touched them. My closet is well stock with sheets that I will

probably never use.

During those stages shoes were almost impossible but barefoot walking on the

carpet was bad. A grain of sand or a wrinkle in thick socks added in the mix

made it where I could walk around in the house. Shopping I had to use their

cart but I did very little of that. My husband took over grocery buying and

even though I am improved he still does it and I appreciate that.

My hands were not a problem but I hit a brick wall as to diagnosing or treating

feet It was like, well everybody has foot pain sometimes. I searched the

computer from every I could think of. I was not on any of these boards at that

time.

I went to an orthopedist my sister knew. Right off he said " causalgia " ,

something I had not run across. He told me to go to a Neurologist. When I got

home and checked that and found RSDS I was convenience that was the problem.

The Neurologist said that I just have neuropathy and " my mother has that and it

will just get worse " . Boy am I glad I'm not his mother.

Now neuropathy has entered the picture in my hands. My hands and feet are so

different I can't believe it is the same thing. I have Raynards and my hands

are always freezing. The oxygen checkers they use in the hospital will not

register the oxygen which has caused some minor problems. I am scheduled for

cataract surgery in a couple weeks. The last surgery was almost a problem as

they couldn't get any reading. Finally they put it on my ear and it registered

at least once and the surgery continued. But I have progressed, or regress I

think to the point that I doubt that they will be able to get any count. Each

surgery was more difficult to get an oxygen count. I was told they won't do

surgery without an oxygen count. I have told the eye doctor that. He was not

aware of that during previous, 3 eye surgeries, there was a problem. He

assured me that would not stop the surgery. I sure hope he knows what he is

talking about as OR have their rules. The first surgery the oxygen alarm kept

going off and when they became aware I was hearing it they turned it off. How

could the doctor not know that?

Now I need to figure something to keep my hands warm while watching TV. The

best so far is an electric heat pad that I put on my lap and put my hands under

it.

[ ] I have FMS, I hope I'm not the only one who does this on

the bed!

.

I have a queen size bed, and have it up against the wall so i have

less chance of falling....i actually have it made up like a couch with

all the pillows against the wall, it gives me support that way,

plus...i have a very high thread count sheet that i got at sams cheap,

its 1000 thread count (I like it because liek the princess and the

pea, I feel everythread!)