Re: Question - Jill

[Guest guest]

Jill,

You're very welcome. I hope the information helps and leads to

improved health.

Too many of us here have the same problem with their arthritis being

trivialized.

In cases like your son, it could be denial. Kids don't like to think

that a parent is sick.

For that matter, a good amount of us here are in denial, or were in

denial for many years!

RA is so misunderstood, even by the medical profession. Because I was

in denial when my

kids were young, I still don't think they have a clue how RA has

impacted my life, or

theirs for that matter.

I tried to keep things as normal as possible. They just knew some

days mommy didn't

feel well. Even though they saw me go through multiple surgical

procedures, this to them

was just mommy's way of trying to feel better so that I could play

more. I didn't want them

to be afraid of loosing me. Kids have enough insecurities.

My computer has also been my sanity. It has kept my mind active and I

learn so much by having

all of these resources at my fingertips.

If you go to the sites I referred you to, they have information you

can print and bring to your

doctor. Maybe this will help him to be more agreeable to the treatment.

a

On Mar 27, 2006, at 2:03 PM, Jill Simon wrote:

>

> Hi a

> Thank you for the information. I'm so thankful I found you all. It's

> wonderful to be able to talk about RA without folks thinking I'm, a

> whiner.

> When I say have Ra, everyone thinks it's just arthritis. They don't

> understand I can't do stuff some days because I'm so tired.

> My husband and my daughter are great. My son thinks I'm a whimp. My

> mum

> never thought it was anything serious until until last weekend when

> she was

> listing to a radio show on RA.

> I've had RA for nines years. I sold my restaurant and when back to

> school to

> take computer courses. One morning I woke and could hardly move, my

> skin was

> sore to the touch. Within a few weeks I could barely walk. I had fluid

> around my right lung, that took eight months to go away. At one

> point, two

> fingers were all that moved on my whole body. I credit my computer

> with

> saving my sanity.

> I'm glad he gave me the Rx, I can't change doctors I live on an

> Island. I

> think there's only one Rheumatologist for the whole island.

> I'm going to try the antibiotics for six months. I'll be sure to

> pass on my

> progress. I actually feel great today!

> Thank you all so very much for your support.

> Best wishes

> Jill