Re: Hi from a new member Heidi

Posted October 28, 2006 · October 28, 2006

Hello Heidi, and Welcome to the Group!

You will find a lot of very friendly, helpful and

supportive people here, and great information as well.

I have RA dx 7 years ago, and OA, Fibromyalgia, and

Raynaud's. I think that many of us here have both RA

and Fibro, so we understand both of those diseases and

the problems they cause in one's life.

What medications are you on? I take Enbrel and

Methotrexate for my RA, and Skelaxin, Zanaflex,

Lyrica, Cymbalta, and Ambien CR for my Fibro, then

Ultram ER for the pain of both, as well as meds for

high blood pressure and asthma. I hope no more meds

come along, as I have run out of space in my bathroom!

My RA has been under pretty good control for several

months, but currently is giving me some problems.

More joint pain in my elbows, wrists, ankles and

knees. The tops of my feet always hurt, more so the

left foot, don't know what that is, fibro or RA? I am

always fatigued, think it's a double whammy on that

one. But, all in all, I am doing okay, I think. I

have forgotten what it is to feel " normal " , so I guess

this is now " normal " for me lol.

Anyway, glad to have you here with us, and I know that

you will really enjoy this group!

Take care - Kathe in CA

--- Heidi Jaye <heidijaye2@...> wrote:

> Hi my name is Heidi 33 from Sydney Australia.

> I have been diagnosed with rheumatoid arthritis for

> 5 years, and have

> ankylosing spondylitis and fibromyalgia.

> I thought this would be a good list to join to meet

> fellow sufferers.

> Hugs

> Heidi

>

> ____________________________________________

>

> Heidi Jaye AKA Lady Magenta Aalotar

> www.ilmamagic.com

> " People are strange, when your'e a stranger "

>

> ______________________________________________

>

> [Non-text portions of this message have been

> removed]

>

________________________________________________________________________________\

____

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Posted October 29, 2006 · October 29, 2006

Hi Kathe and thank you for the warm welcome...

Sounds like you have a lot to cope with..

I know how you mean that your feet hurt, that is almost the first thing that

I feel in a flare up.. Today they are sore, so it is a given that tomorrow

morning I will be in the middle of a flare.. GULP.

I am actually in the process of setting up an online business, and I have

found a good sleeping pattern.. I go to bed about midnight, get up about 9

or 10.. And then I sleep about 1 in the afternoon for a couple of hours, I

feel I am able to cope..

I actually take Baclofen as a muscle relaxant and morphine for the pain.. I

have tried just about every med there is for fibro and RA and I have found

the best is just the muscle relaxant and morphine...

I also take meds for epilepsy, restless leg syndrome, bipolar, high blood

pressure as well as regular amounts of codeine for the pain...

I have a good set of doctors that look after me and actually listen.

I was recently sent to a psychiatrist because I was not coping with the pain

and she told me I am just fine and coping well...

Because of my bipolar meds they have to watch what they give me because

there are so many drug interactions..

The doctors agree I am on a combination that can be considered dangerous,

but I see my GP monthly, my specialists 3 to 4 times a year and they all

work together.

Strangely my neurologist has given me a lot of help..

I was on Neurontin (for epilepsy) and that also helps with pain.. But it was

putting on weight so they changed it to Lamicatal and now the pain has

returned, so I have to see the GP again in a couple of weeks to look at what

they are going to do..

I am feeling at home here already, this is a great bunch of people..

Hugs

Heidi

____________________________________________

Heidi Jaye AKA Lady Magenta Aalotar

" People are strange, when your'e a stranger "

______________________________________________

-- Re: [ ] Hi from a new member Heidi