Guest guest Posted November 23, 2006 Report Share Posted November 23, 2006 > > Hi, > I haven't posted in quite a while, because I really had nothing to > say. My doctors don't have much to say to me, either. My walking > is worse, but x-rays revealed no osteoarthritis in my hips or > knees. I have osteo in my hands and I believe in my shoulders. > My neurologist said that an EMG on my legs was normal, > deepening the confusion. > > That EMG was some time ago. In year or less, can values > change enough to indicate something? > > I was upset about the confusion for a while and even made a > small scene at the neurologists (I waited nearly two hours for a > five-minute visit), but I've calmed down. I can still get out of my > apartment and handle the NYC subways, and I can still work. > Why should I dwell on what I know nothing about? And there is > the old phrase " be careful what you wish for. " My " wish " is for a > diagnosis, and I might not be too happy when I get it. > > Worded somewhat differently, I've posted this information to the > Happy Hobbler's osteo group. >Maybe you have fibromyalgia. It's a diagnosis of elimination. If they can't find anything wrong, sometimes it's that. I finally found Dr. R. St. Amand that treated me http://www.fibromyalgiatreatment.com I went from bedridden and barely able to move to hiking the Great Wall of China in 6 months. Good Luck! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2006 Report Share Posted November 23, 2006 I recently joined this wonderful group and your message caught my attention. Have your doctor's considered fibromyalgia? Paige > > Hi, > I haven't posted in quite a while, because I really had nothing to > say. My doctors don't have much to say to me, either. My walking > is worse, but x-rays revealed no osteoarthritis in my hips or > knees. I have osteo in my hands and I believe in my shoulders. > My neurologist said that an EMG on my legs was normal, > deepening the confusion. > > That EMG was some time ago. In year or less, can values > change enough to indicate something? > > I was upset about the confusion for a while and even made a > small scene at the neurologists (I waited nearly two hours for a > five-minute visit), but I've calmed down. I can still get out of my > apartment and handle the NYC subways, and I can still work. > Why should I dwell on what I know nothing about? And there is > the old phrase " be careful what you wish for. " My " wish " is for a > diagnosis, and I might not be too happy when I get it. > > Worded somewhat differently, I've posted this information to the > Happy Hobbler's osteo group. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2006 Report Share Posted November 27, 2006 Have they though about Psoriatic Arthritis? You don't have to have psoriasis to have it. It tends to affect lower limbs but it can be in the hands, wrist or upper spine. Do you happen to have planter facetious? Kate At 02:38 AM 11/23/2006, you wrote: >Hi, >I haven't posted in quite a while, because I really had nothing to >say. My doctors don't have much to say to me, either. My walking >is worse, but x-rays revealed no osteoarthritis in my hips or >knees. I have osteo in my hands and I believe in my shoulders. >My neurologist said that an EMG on my legs was normal, >deepening the confusion. > >That EMG was some time ago. In year or less, can values >change enough to indicate something? > >I was upset about the confusion for a while and even made a >small scene at the neurologists (I waited nearly two hours for a >five-minute visit), but I've calmed down. I can still get out of my >apartment and handle the NYC subways, and I can still work. >Why should I dwell on what I know nothing about? And there is >the old phrase " be careful what you wish for. " My " wish " is for a >diagnosis, and I might not be too happy when I get it. > >Worded somewhat differently, I've posted this information to the >Happy Hobbler's osteo group. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2010 Report Share Posted September 5, 2010 Hi Can you insist on the Achalasia test being carried out. It took 8 months before my wife had this. It involves a camera going down and swallowing fluid the camera " sees what is going on " then you get the problem identified. Not a barium swallow via xray or ct scan Daveyb > > Hi all > After 4 & a half years of what feels like time wasted, I'm angry. Each doc orders tests, most come back normal so it's adios. Meanwhile, my symptoms worsen. Then many tests are repeated, months lost waiting for scheduling, follow-up, & no help. > Finally an esophagram 7 months ago showed the walls of my esophagus have thickened, tight ring of tissue & hiatal hernia. The tight ring was stretched twice in Feb for no help. That GI doc then sent me to Phoenix (8 hour round trip) for an ultrasound which came back normal. I had to wait 3 more wks for those results & my local GI bounced into the room, said " normal " & began to write out a script. I asked what it was for & he said Flonase, an asthma medication, just in case I had some inflammation. This is nuts. So I lost 7 months on him. > Now a general surgeon here wants a 3rd barium swallow. He's not skilled enough to tackle my esophagus & would rather just operate on the small hiatal hernia. > I've had it. There's no more time to lose. I'm on liquids which barely go down & nobody's doing anything. My anger will get me on the ball first thing Tuesday. Thanks for listening. Susie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2010 Report Share Posted September 5, 2010 Yes i am new to this but the last test my wife had was carried out this way and " saw " the lower spinkter not working when she had to swallow fluid whilst the camera was inside looking. Based on what happened i can only say. This is how the specialist arrived at the diagnosis after 8 months of all the other tests inc CT scan X Rays Ultrasound many blood tests barium swallow and endoscopy as well. Daveyb > > > > Hi > > Can you insist on the Achalasia test being carried out. It took 8 months before my wife had this. It involves a camera going down and swallowing fluid the camera " sees what is going on " then you get the problem identified. Not a barium swallow via xray or ct scan > > Daveyb > > > Quote Link to comment Share on other sites More sharing options...
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