suggestions

[Guest guest]

Lu Ann, Do you see any relation between your good/bad days and your dosing

schedule? That might help you determine whether it is a herx or a flare.

Drink tons of water to flush out the toxins, and try to make the extra effort

to eat well even when you don't feel like cooking. Lots of veggies. If your

bad days continue to outweigh the good ones, you might want to call the doctor

about cutting back on the dosage and building up more slowly. I would also

contact the doctor's office if the eye problems continue and let them make the

call on that one. You might consider seeing an eye specialist, as these diseases

can have some effects on the eyes too.

I'm glad you are having some good days too, try and enjoy them and not cram

all your responsibilities into the good days. Nurturing your spirit is important

too for the health of your immune system.

I too have found that family does not always understand no matter how much

they want to. Only my sister who has fibromyalgia and OA really understands what

having RA is like for me. You will find lots of support here, you only need to

ask for it. Take good care, and I hope today is one of those good ones. Write

me anytime if you want to chat. Sincerely, Liz G

[Guest guest]

LuAnn, the blurred vision is a common symptom for fibro. I actually could

not read street signs on bad days. It will clear up as you get better.

Have you ever heard of taking a warm bath with a half a box of Epsom salts

and a large bottle of hydrogen peroxide in the bath water? Dr. Nicolson

recommends this and I know some with severe FMS pain who say it helps them.

It also gets oxygen into the tissues in a harmless way and may help to kill

mycoplasma. Of course, this assumes you are well enough to get in the tub

which many of us are not. Keep writing. You are not alone.

a C.

>

> Hi guys & gals -

>

> Just having a bit of a tough day - been diagnosed with FMS with Franco and

> been on the minocin one month now. I am having severe back,spine pain -

> actually pain all over my body - this is moreso than ever before - my eyes

> have gotten really blurry and I am having trouble focusing more than a

block

> down the street - is this a herx? I had two great days this past week and

> thought this is too cool - I was ready and here Saturday I am worse than I

> have been - any thoughts or suggestions would be very helpful - you know

how

> you don't like to continually depress your family - I am going to start

> relying on you guys - thanks in advance for being there for me.

>

> LuAnn

>

>

[Guest guest]

Hi LuAnn,

This sounds like a typical response pattern. Your two great days are really good

news. You will have a cycle of good and bad days as treatment progresses. You

might like to read our FAQ at www.rheumatic.org/faq.htm for a description of

what to expect. Also Sheila's reports of her progress are very useful as a

record of how this therapy goes - www.rheumatic.org/sheila.htm.

As time goes on, you'll get less bad days and more good days. This cycle can

continue for a very long time, but it gradually gets better and better.

Chris.

Hi guys & gals -

Just having a bit of a tough day - been diagnosed with FMS with Franco and

been on the minocin one month now. I am having severe back,spine pain -

actually pain all over my body - this is moreso than ever before - my eyes

have gotten really blurry and I am having trouble focusing more than a block

down the street - is this a herx? I had two great days this past week and

thought this is too cool - I was ready and here Saturday I am worse than I

have been - any thoughts or suggestions would be very helpful - you know how

you don't like to continually depress your family - I am going to start

relying on you guys - thanks in advance for being there for me.

LuAnn

[Guest guest]

Hi guys,

I need some suggestions. I am having alot of pain swellling. The

pain and swelling is in my feet, ankles, knees, and hands. Also I

just reliezed my one foot or leg is turning out. I am currently off

of the mtx till I go back to the doctor in may. Doctor took me off of

it so I could fit bronchitis that I was keeping. I am trying to

decide if I should call the rhuemy or just wait till May Does anyone

have any suggestions on dealing with all this. Thanks for any help

Thanks

Angie

[Guest guest]

I don't know if it applies to you, but my Rheumy gave me Colchicine for the

swelling. My knees would swell so there was no more room in my pants. As I

understand it, Colchicine is prescribed for Gout, and it worked for me. I

haven't had to take it for almost a year now. You might look into it, maybe

it'll help.

Dennis

[ ] suggestions

> Hi guys,

>

> I need some suggestions. I am having alot of pain swellling. The

> pain and swelling is in my feet, ankles, knees, and hands. Also I

> just reliezed my one foot or leg is turning out. I am currently off

> of the mtx till I go back to the doctor in may. Doctor took me off of

> it so I could fit bronchitis that I was keeping. I am trying to

> decide if I should call the rhuemy or just wait till May Does anyone

> have any suggestions on dealing with all this. Thanks for any help

>

> Thanks

> Angie

[Guest guest]

Angie~

I'm so sorry to hear about what you're going through and May is still a few

weeks away. It would be a shame to go that long with your symptoms and then

find out you could have gotten relief.

I used to be reluctant to call the Doctors but it's a no lose gamble.

Usually, I'm glad I did. And don't be shy about telling them about your pain

and that you need an appt as soon as possible. They will sometimes fit you

in with a different doctor that has an appt open right away if that's works

for you. I'm sure you know all this.

Pain takes a toll on your body and something physical is causing your foot

to turn out so you need someone to look at you right away~

You're in my thoughts~

IAN

[ ] suggestions

>>

>>

>> > Hi guys,

>> >

>> > I need some suggestions. I am having alot of pain swellling.

> The

>> > pain and swelling is in my feet, ankles, knees, and hands. Also

> I

>> > just reliezed my one foot or leg is turning out. I am currently

> off

>> > of the mtx till I go back to the doctor in may. Doctor took me

> off of

>> > it so I could fit bronchitis that I was keeping. I am trying to

>> > decide if I should call the rhuemy or just wait till May Does

> anyone

>> > have any suggestions on dealing with all this. Thanks for any

> help

>> >

>> > Thanks

>> > Angie

>> >

>> >

>> >

>> >

>> >

>> >

>> >

>> >

>> >

[Guest guest]

Please call your physician, Angie.

If I were you, I would also be looking for a new rheumatologist. From the

start, your RA hasn't been very well controlled.

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] suggestions

> Hi guys,

>

> I need some suggestions. I am having alot of pain swellling. The

> pain and swelling is in my feet, ankles, knees, and hands. Also I

> just reliezed my one foot or leg is turning out. I am currently off

> of the mtx till I go back to the doctor in may. Doctor took me off of

> it so I could fit bronchitis that I was keeping. I am trying to

> decide if I should call the rhuemy or just wait till May Does anyone

> have any suggestions on dealing with all this. Thanks for any help

>

> Thanks

> Angie

[Guest guest]

GIna,

I tried to call today but couldn't get through during my; break time

at work. Unfortuantly I cannot find another rheumy there were two

by us and the one is the one I started with but it is downtown and

my husband doesn't like to drive to it so I switched to this one. I

am going to tell him something has to be done I am not ready and 32

to be having so much issues already I know with this disease things

happen but I feel I should be having so much pain, swelling and foot

turning in already. THanks for all your support you have been great.

Thanks

Angie

>

> Please call your physician, Angie.

>

> If I were you, I would also be looking for a new rheumatologist.

From the

> start, your RA hasn't been very well controlled.

>

>

>

> Not an MD

>

> I'll tell you where to go!

>

> Mayo Clinic in Rochester

> http://www.mayoclinic.org/rochester

>

> s Hopkins Medicine

> http://www.hopkinsmedicine.org

>

>

> [ ] suggestions

>

>

> > Hi guys,

> >

> > I need some suggestions. I am having alot of pain swellling.

The

> > pain and swelling is in my feet, ankles, knees, and hands. Also

I

> > just reliezed my one foot or leg is turning out. I am currently

off

> > of the mtx till I go back to the doctor in may. Doctor took me

off of

> > it so I could fit bronchitis that I was keeping. I am trying to

> > decide if I should call the rhuemy or just wait till May Does

anyone

> > have any suggestions on dealing with all this. Thanks for any

help

> >

> > Thanks

> > Angie

>

[Guest guest]

Angie,

I would call your doctor ASAP, Tawny

>

> Hi guys,

>

> I need some suggestions. I am having alot of pain swellling. The

> pain and swelling is in my feet, ankles, knees, and hands. Also I

> just reliezed my one foot or leg is turning out. I am currently off

> of the mtx till I go back to the doctor in may. Doctor took me off

of

> it so I could fit bronchitis that I was keeping. I am trying to

> decide if I should call the rhuemy or just wait till May Does

anyone

> have any suggestions on dealing with all this. Thanks for any help

>

> Thanks

> Angie

>