RE: Jill [was moratorium]

[Guest guest]

Jill:

Really this time around HAS been a friendly debate -- in the past, and on the Cranial Technologies parents' board it did get a little heated. In creating a new forum, those who wish to discuss these issues are more than welcome to discuss and give their opinions on the whole FDA thing on that e-mail group -- while those who are here just finding out their child has positional plagiocephaly and is just now starting to deal with the different ramifications and choices or someone who is in the midst of needing information can come here to ease their minds.

I'm on several e-mail groups on various topics, and creating a new e-mail list is standard when one thread "outlives" itself on the main board.

H.

-----Original Message-----From: Shane & Jill [mailto:shaneandjill@...]Sent: Sunday, May 21, 2000 9:10 PMPlagiocephalyegroupsSubject: moratorium

I think it is great that there is a new group for people to discuss the FDA issues.However, I think that whoever thought the 'discussions' regarding the FDA,HELMET & BANDS were creating a stressful and angry environment are wrong. That may have been the way they 'perceived' it ,but I thought it was just an intelligent debate . Lots of people had some personal thoughts on this...and where of all places should we feel welcome to express those views -but here? I think that lots of parents(caegivers) here would like to vent some of there frustration over the availability of treatment for our children.(whether it the availability problem be due to insurance pymts or anything else) Sorry to run on...just had to give my two cents. I am glad that this place is here to offer help for parents in need. I've found there are a lot of nic e people here. I hope it says this way ! ) ~Jill << Kaye wrote:

As creator and moderator of the Positional Plagiocephaly Email Community; I am putting a moratorium on FDA debates. Clear and concise information has been given regarding this issue. This forum is to help parents (or caretakers) get their kids diagnosed (if there's a problem), and to deal with the treatment they have chosen to go with. Whether it be a band or a helmet. I'm not oblivious to the fact that important changes need to take place in order for treatment for positional plagiocephaly to be more widely available; but the "discussion" on this subject creates a stressful and angry environment. Our purpose here is to support and help. An email group has been created to address the concerns of people on the FDA/DOC Band issue. The URL is listed below to join. FDA_DocBand-subscribeegroups Kaye /subscribe/Plagiocephaly >>