Guest guest Posted April 26, 1999 Report Share Posted April 26, 1999 Dear Sue in Colorado: So sorry to hear that you are having a relapse. It must be really tough going back up on the prednisone, but hey, anything to feel better, right? I hope it works quickly for you and that you are back up to par soon. Meanwhile, try not to push yourself too hard. Take care! Kathy (AIH) Seattle area Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 1999 Report Share Posted April 26, 1999 Dear Sue: I've never heard of a 'break point,' but I think I know what he means. You might be in such an active phase right now, that you need the higher dosage to keep it in check. My LFT's went up and down while I was at 15-20 mg, and then they eventually leveled out. It took about 2 years though. I was eventually able to reduce down to 8 mg, but it took a long time. From what I've been reading from others all day, and from my own experience, the doctors tend to rush trying to get us off of prednisone with painful results. I hope you are able to find another drug that you can tolerate to supplement your prednisone therapy. I haven't been able to tolerate the others so am stuck on prednisone for life. Oh well! Once again, I hope that you start feeling better soon! Kathy (AIH) Seattle area Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 1999 Report Share Posted April 26, 1999 Hi Kathy; Yes, it's not fun. I was really hoping to get to at least 10 mg pred. but, nope. I'm worried that my liver functions rose so quickly at 15 mg to just as high when I wasn't on pred. Doesn't sound right. So, now up at 30mg I feel like I have no stuff between the ears. I work alot slower. I can't seem to get things done. He (the doc) said something about finding my break point and he thinks it's between 20-30 mg. Then he wants to switch me out to a different drug. Have you ever heard of this style of treatment? Sue KATBERCOO@... wrote: > > From: KATBERCOO@... > > Dear Sue in Colorado: > > So sorry to hear that you are having a relapse. It must be really tough > going back up on the prednisone, but hey, anything to feel better, right? I > hope it works quickly for you and that you are back up to par soon. > Meanwhile, try not to push yourself too hard. Take care! > > Kathy (AIH) > Seattle area > > ------------------------------------------------------------------------ > Shop.theglobe.com * One-Stop Shopping * Free Shipping in U.S.! > Live Personal Shopper * Satisfaction Guaranteed * No Hassle Returns! > Accessories, Apparel, Jewelry, Kids, Sporting Goods, Apparel, More!! > /ad/shoptheglobe0 > ------------------------------------------------------------------------ > Help someone you may know and love > Be an Organ Donor! > Please support the American Liver Foundation. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 1999 Report Share Posted April 27, 1999 >From: Sue Irons <sue@...> > >Hi to all; > >Sorry I haven't written any more on the Fulk book. > >I had a 'relapse' if you will. I got pretty sick, dizzy, etc and my >liver function went up to an all time high on 15 mg pred. > >Now I'm on 30 mg pred. and don't feel like it's helping much. I still >ache, I'm beyond exhaustion, and can't even *think* clearly. > >The doc thinks we may have tried to reduce the pred too quickly. So >back up to 30 for 3 months :-( > >Sue >Colorado > >(Pray for the Columbine families, it's 10 miles away from my home. My >senior attends a different school, but security is tight. Last night >was prom and after prom party, there were patrol officers everywhere. I >was VERY grateful) Sue, Keep your head up. I'm sending you a big hug. :)C , St. Catharines, Ontario P.S. Our thoughts go out to everyone who feels the loss of the children of Littleton. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 1999 Report Share Posted April 29, 1999 Sue, Sorry you've been having a hard time. I know how you must feel, having to go back to 30 mgs. of Prednisone. I'd hate that! How gradually is your doctor going to decrease the Prednisone now? I'm at 9 and working towards 8 mgs. Tonight I feel like a truck ran over me but no fatigue, at least. I'm determined to work this through, just to see if I can do it. No silly drug is going to take over my life (I keep telling myself.) My thoughts are with the families of the Columbine students and with the people in Denver and the surrounding areas. It's as though no place is safe anymore. I think that we'll see some major changes in school security now, and aren't you grateful that your senior will be out of school soon? It's terrible for parents to have to be afraid for their children to go to school, but I would be if I still had kids at home. Take care, Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2006 Report Share Posted July 10, 2006 Oh Pearl....sorry about your wrist. Glad you are here in spirit and in prayer. I just stuck ya in my prayer journal. -Betz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2006 Report Share Posted July 10, 2006 Pearl So sorry you broke your wrist - hope it is manageable and heals quickly for you. best wishes - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2006 Report Share Posted August 15, 2006 In a message dated 11/07/2006 11:53:47 GMT Daylight Time, math_nawi@... writes: Pearl So sorry you broke your wrist - hope it is manageable and heals quickly for you. Me too Pearl. I must have missed the original mail. I hope it is well on the mend by now as another month has passed since the above post. Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2006 Report Share Posted August 21, 2006 In a message dated 16/08/2006 12:18:58 GMT Daylight Time, kamerillat@... writes: - I understand you finally got SSDI. Congrats. Were you ever diagnosed with another disease like fibromyalgia or attention deficit disorder and, if so, did you combine these (or any other condition that relates to PA) with your application for benefits? Hi Kathy, I'm sorry, it looks like I have confused things with the way I answered someone's mail. It wasn't me who had finally got the SSDI. I have had DLA (Disability Living Allowance which is sort of the UK version of SSDI for around three years now. We can still claim DLA over here while we are working. (Although I am not working) I hope someone in the US can help you with your question Kathy. Good luck, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2006 Report Share Posted September 6, 2006 - I understand you finally got SSDI. Congrats. Were you ever diagnosed , that is great news... Sorry I missed this too but wanted to say Congrats... Love and Peace Always Shaun and Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2006 Report Share Posted September 7, 2006 > > - I understand you finally got SSDI. Congrats. Were you ever diagnosed > > , that is great news... Sorry I missed this too but wanted to say Congrats... Same Here, . I'm so glad you got the ssdi. I have had it now for two years. I had lawyer do it for the beginning and I won the case within a few months. It helps to get the right attorney. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2006 Report Share Posted September 17, 2006 In a message dated 07/09/2006 12:51:07 GMT Daylight Time, SNBFOREVER2@... writes: , that is great news... Sorry I missed this too but wanted to say Congrats... Hi Shaun, You'll also have missed me saying that it wasn't me. lol I think I was congratulating someone at else at the time and it must have looked in the email as if it was me who was saying it. Thanks anyway. lol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2006 Report Share Posted September 25, 2006 In a message dated 08/09/2006 12:46:45 GMT Daylight Time, fam24@... writes: I'm so glad you got the ssdi. I have had it now for two years. I had lawyer do it for the beginning and I won the case within a few months. It helps to get the right attorney Thanks Janet but it wasn't me. lol I was congratulating someone else who had just been granted it and somehow there has been a mix up. Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2006 Report Share Posted October 6, 2006 Hello group I just wanted to let you know that I am still here. I haven't posted in awhile, but I do read your posts. I haven't been doing to well as of late, I was going to quit my job in sept. but decided to wait until the end of the year, so we could get everything in order for us to live on my husbands paycheck. And to get us through christmas. And then quit my job. I'm not sure what I am going to do with myself after that since I have worked from the time I was 17 yrs old. We traded both my car and my husbands truck to get a new truck with lower payments. Saved 100.00 a month doing that, even though I miss my car I know its better than having two car payments. I feel like having to down size is all my fault, I get so depressed over this,I feel I'm such a burden on my husband. He is doing more for me, doing things around the house, cooks, dont have to worry about starving, he is a chef, but I always tried to do the cooking at home, since he did it all day at the restaurant. {He sure comes in handy when the Holidays are here} He can make the most unbelievable meals I have ever tasted. Not to mention how shocked my mother was to find out I found a man that could cook and to be so shy too. Anyway, I am tired alot, got the pain under control to some degree, just like all of you good days and bad, on the bad I rest. Just wanted to let you know I'm still here. Quote Link to comment Share on other sites More sharing options...
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