Fw: Comments Mayo Clinic on FM and CFS

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----- Original Message -----

From: " ilena rose " <ilena@...>

<Recipient List Suppressed:;>

Sent: Monday, February 04, 2002 3:43 PM

Subject: Comments Mayo Clinic on FM and CFS

> From: KSJoenne@...

> Date: Mon, 4 Feb 2002 12:53:47 EST

> Subject: Re: Mayo Clinic on FM and CFS

>

> I do not believe this is true. I was seen at the Mayo clinic and diag.

with

> Lupus. I was seen in the Rheumatology clinic. The phy. I saw was very

> knowledgeable about Fibromalagia (which I also have) and very

> understanding. He tried to explain the difference in the pain and

symptoms

> of the two, and treatment for both. He refered me to a Rheumatologist here

> in town. I wish I could have seen him long term. This was not possible

> since I live in Kansas. We really clicked. I had been suffering with

Lupus

> symptoms, and had the positive ANA for about three years, but no one here

> in town pulled it all together. I went to Mayo for a Pulm. problem, and

was

> initially seen in the Pulm. clinic. They did such a detailed blood work

up,

> that they caught a very high ANA level, and then did the whole auto-immune

> panel and referred me to the Rheum. clinic. I do not have CFS, so I can

> not say how they feel about that syndrome. I was very impressed with the

> entire cllinic. For as busy as they are, and the amount of patients that

go

> through there in a day, everyone was very kind and patient. My visit was

> very positive. They also have a library there, and will look up any

> syndrome or disease for you and print out information. They also have

> information sessions on Fibro. I attended one, and it was excellent. They

> keep you very busy while you are there, so you do not have a lot of free

> time. Hope this helps some one else. Thanks Joenne

>

> ~~~~~~~~~~~

>

> From: Gr8luk@...

> Date: Sat, 2 Feb 2002 02:54:24 EST

> Subject: Re: Mayo Clinic on FM and CFS

>

> The Mayo studies have been controversial due to the fact their b.i.

studies

> were performed on women that were not ill (YET) from implants placed. One

> must wear silicone/polyurethane for a certain length of time before the

> implants contents migrates into the body causing harm, and body immune

> problems.. Remember, the MAYO study is not your study. Your medical

> records is your own science. Tell the MAYO Clinic to pop the impalnts,

> place them in the women, and see what happens. Heaven help us for being

> taken advantage of in a study that is backwards wasting time money and

> risking lives. THX

> ~~~~~~~~~~~

>

> From: ANGELWORK888@...

> Date: Sat, 2 Feb 2002 11:18:08 EST

> Subject: Re: Mayo Clinic on FM and CFS

>

> The mayo clinic told me back in 91 (for my silicone related problems) I

had

> no more than 6 months to live, there was nothing they could do. With

> alternative methods and natural (what is called clean )food I'm still here

> to tell the story. Love Mare

>

>

> ~~~~~~~~~~~

>

> From: Bgreen286@...

> Date: Sat, 2 Feb 2002 12:40:26 EST

> Subject: Re: Mayo Clinic on FM and CFS

> Who in the world expects Mayo Clinic to do anything............except get

rich.

>

> ~~~~~~~~~~~

>

> From: HGloryann@...

> Date: Sun, 3 Feb 2002 19:02:41 EST

> Subject: re: Mayo on fibromyaliga & CFS

>

>

http://www.mayoclinic.com/findinformation/diseasesandconditions/invoke.cfm?i

d=DS

> 00079 Here is a website that may help clarify the post on whether Mayo

> ville treats for fibroymyalgia and chronic fatigue. Their main

> phone # is 904-954-2000, and I would ask to speak to someone in

> Rheumatology. I was diagnosed for both of these diseases in 1993 by Mayo

> ville and am still being treated for them there (along with other

> health problems). I hope this helps. :)Gloria

> ~~~~~~~~~~~

>

> From: " Barbara Hasenour " <mtbears@...>

> " ilena rose " <ilena@...>

> Subject: Re: Mayo Clinic on FM and CFS

> Date: Sun, 3 Feb 2002 13:08:44 -0500

>

> Isn't there a clinic started by a Dr. Chainey in North Carolina that

treats

> FM and CFS?

>

> ~~~~~~~~

>

> ORIGINAL POST:

>

> Please don't use my name or address Ilena. Thanks. But please post.

>

> This information was volunteered to me by a Mayo Clinic phone consultant.

> I did not ask for this information.

>

> In Jan 2002 the Mayo Clinic in ville told me they do not treat for

> fibromyalgia or chronic fatigue. Please pass this information on to

> other BI women so they don't waste their precious energy and time trying

> to get help there for these two conditions.

>

>

>

>