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Re: 'living the life'

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Shauna,

your words are so true....now if we could only get our

families, friends, and bosses to understand...I feel

like we should have a card with your words on it to

hand out! or maybe burn the onto a board to hit them

over the head with..then maybe they could see what is

right in front of their faces!

It's hard enough to deal with the diseases, pain,med

reactions, brain dysfunction, stress, depression and

total lack of enthusiasm for anything....but to then

have to try to explain why you didn't get out of your

jammies today and do the laundry, the vaccuming, the

dishes,make the beds and give the dog a bath is just

too much! Maybe a tatoo on our foreheads would do the

trick...no....they would't even " get it " then! just my

2 cents for today....jenna

Only those who live the life understand the emotional

devastation.

> > The impact of the moment when it really sinks in

this is for EVER.

> > There is no cure.

> > That this is your life, period.

> > It won't get " better. "

> > What you have to look forward to is only more pain

and

> destruction.

> > This is the aspect of the disease that leads to

> > depression and feelings of isolation and

hopelessness.

When you lose a loved one, you gain an angel whos' name you know !

________________________________________________________________________________\

____

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