Guest guest Posted July 14, 2006 Report Share Posted July 14, 2006 > > I see you are in IL. so am I. where IN IL are you I am southern IL. Janet IN IL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2006 Report Share Posted July 14, 2006 Hi Janet, I'm in the Chicago area. I grew up in the city and moved out to the 'burbs when I was 36 & single mom with many flares, a boy teen and a girl pre-teen. (What a mess that was!!!) Now my kids are 26 & 22 and turned out to be wonderful, responsible and on their own (they even get along, quite well, which I never would have imagined by the way they fought growing up). I have been divorced since 1983 and finally met my man on match.com. After a year of dating, I sold my house (I really couldn't keep up with it anymore) and moved in with Dave. After 2 years of living together (combining his 2 dogs with my 2 dogs, his cat with my 2 cats and my parakeet & parrot) things are going well. I still flare, but not as often. I'm on SSDI now and the stress level has gone way down being able to do things when I feel good and NOT when I don't. That's my story in a nutshell. I'll be lurking around... Joanne, IL [ ] joanne > > I see you are in IL. so am I. where IN IL are you I am southern IL. Janet IN IL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2006 Report Share Posted July 14, 2006 > > Hi Janet, > > I'm in the Chicago area. I grew up in the city and moved out to the 'burbs when I was 36 & single mom with many flares, a boy teen and a girl pre-teen. (What a mess that was!!!) Now my kids are 26 & > Joanne, IL > > > ----- Original Message ----- > Nice to meet you Joanne, I am 48 married 3 kids and soon to be 7 grands, I have been here about 15 yrs came from CA. I to am on ssd have been now 7 months and yes it does take the stress off some. I am have a flare this week not getting much sleep up every hour in the bathroom I have IC and it is acting up. take care again nice to meet you Janet IN IL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2008 Report Share Posted August 28, 2008 I will keep looking. I have had a 100 % failure rate so far tho. I have worked with the patient advocates at the hospitals, I owe thousands of dollars to 3 of them here in town, and they want my bank numbers and all and they try to press me into saying I will pay certain amounts of money to them, and I just wont do that, especially since 2 of them almost killed me, due to errors, and refusal of the doctor to look at the records I took to them. I just am in a funk....but I will pursue it again sometime. I have a friend that likes her doctor, ( gen practice ) I may go see her....then work from there. How are you tonight ? ? Love you ~ Dede**************It's only a deal if it's where you want to go. Find your travel deal here. (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2008 Report Share Posted August 28, 2008 Hi Joanne, thank you ! ! I will keep looking. I know I need a good team right now. How did you find out about going to germany for your surgery ? ? What a way to go, being treated so kindly, and all. Wow, I am amazed ! Ya, I wouldnt work back in that field for anything. Not the way it is. They are a huge embarrasment to society. I will have to rent Sicko sometime. I have wanted to see it since it came out. I have written a few times. I am just in a funk right now, trying to decide what to do. It has been 6 months now since they found the lung nodules and it is time to check them again, and I havent decided what avenue to take. The oncologist said to re scan in 6 months, so I dont know...its time tho....... I appreciate the kind words ! Love Dede**************It's only a deal if it's where you want to go. Find your travel deal here. (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2008 Report Share Posted August 28, 2008 Hi Dede, Thanks for venting. I really wish that you would rent that movie, Sicko. It would really hit home. I was put out to pasture with massive adhesions (following my hysterectomy) on Methadone, Ativan, Prozac, Trazadone and Neurontin. They simply told me that there wasn't anything that they could do for me. I was so lucky to find a doctor in Germany that was having success with an adhesion barrier. My surgery cost 1,400 dollars and my hospital stay was 350 dollars a day including all labs. I stayed for 5 days for a laparoscopy. What a treat. Then, they were kind enough to put me in an apartment in the building next door for 40 dollars a night while I awaited my second look surgery. It was so wonderful. Volunteers picked me up at the airport, etc, etc. The nurses even had my clothes washed. I also worked in the health care profession as a nurse from 1979 to 1998. I worked for Kaiser. It has always been about money with them. I wouldn't go back into that field for a million bucks. But, Rogene is right. There are a few good ones out there. I took my son to Urgent Care last month for the panic attacks and he saw a Physician's Assistant that talked to him for 30 minutes and told him that he was too stressed and that he needed to drop off the summer baseball and just rest for the rest of the summer. My son totally relaxed after that and enjoyed the summer. I was amazed that we found someone like that, willing to listen and take the time. So, I have to believe that there are some out there who still care and want to help.Don't give up. Love, Joanne > > Goodmorning Joanne ~ > > The sad thing, I have story after > story of how horrible the medical care > is here in the US. I worked in the field > for 26 years and had to stop working > in 99, so I worked in it when there were > doctors that had a true desire to be > doctors, and were careing and compassionate > and were people of honor, and they respected > their hippocratic oath to first do no harm. > If they didnt know something, they went > and learned. They would charge a reasonable > fee and handle what ever you went in for, > and didnt feel the need to charge you for every > single thing you approached them with. Many > times they would see a couple kids for one > office visit, and it was affordable. You didnt > have to fill out 10 papers of CYA legalities for > the doctor to protect " them " from their negligent -malpractice ways, like > you do now....... > > They actually used to examine you, look in your > ears, eyes, mouth, nose, feel your neck, check your > lymph nodes, listen to your chest and back, check your reflexes, and anything > else pertaining to you and your symptoms. > They actually asked you questions and listened to > your answers. > > Now, you see a doctor, and they move so fast, they are quickly listening > to your chest while they are talking. > ( how talented, I wonder if they hear anything at all ? ? also, do they > learn that technique in med school ? ) Then, they hand you a lab slip for a CBC, > and maybe a urinaylsis, then give you a list of doctors to see for each one of > your symptoms. The whole visit took 2-3 full minutes ! For the list of > doctors to see, say, you have a cold, headache, cough, hot sweats, fever with a > fast pulse due to the fever, and a runny nose. Your list of doctors to see will > be: ENT for the runny nose, neurologist for the headache, a lung specialist > for the cough, an endocrinologist for the hot sweats, and a heart doctor for > the fast pulse. Now 1500 bucks down and a month later, your cold is gone, all > on its own....... > > This is one huge place where the US medical system > is failing everyone. > Treating symptoms as a disease, with drugs that give you side effects is > another huge failure, only a bandaid with toxins on it....never getting to any > root cause. > > It is not just insurace companies that are the problem, it is the way doctors > no longer practice medicine. > They just shuffel people, papers, and collect money. > Nutrician is at least 3/4 of health, and there is very > little real true nutrician taught, and with all the fast foods, and > restaurants to help our fast paced lives, and foods sold that have been manipulated > with toxins, hormones, antibiotics, pasturization and no telling what else, it is > a wonder any of us are alive, and there is certainly many sick people due to > it. > > Speaking of the healthcare system or insurance companies failing the people, > I was in the hospital > for 36 hours for a hystorectomy, bladder repair, and > breast surgery, 11 inches, cut on my chest, 3 inches under each breast, and > 5 inches under my right arm pit, where they removed strips and strips of my > tissue that was riddled with cysts, siliconomas, granulomas, and things of that > sort, even strips up over my right shoulder ! They sent me home with a > catheter since my bladder wouldnt work, had it for 15 days ! ! > That is alot of surgery to be sent home a day and a half later ! I went in > on a thursday morning and went home friday evening ! > It was a horrible experience ! One I hope no one ever has to experience. > I too, hope that I find a doc to help me. But you > can see my hesitation...... > Have a wonderful day ! more venting helped mine ! ! > Hugs > Dede > > > > > > > ************** > It's only a deal if it's where you want to go. Find your > travel deal here. > > (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2008 Report Share Posted August 28, 2008 Hi Dede, I found the doctor from a girl who used to be my au pair when my kids were little. I went to a gynecologist at UCLA and she told me about a product that would not be approved by the FDA for about 3 years. I just thought I would ask my friend Evi if she could see if they were using it in her country and, wouldn't you know it, she was working for a doctor who was using it to treat males who developed adhesions after hernea operations. That doctor told her about my doctor and next thing I knew I had my surgery scheduled. I was a member of an on-line support group for adhesion sufferers at the time and everyone started to fly to Germany after that. That's when they opened a floor in the nurses apartments for families and patients. Dr. Korell became quite famous. I am completely healed of the adhesions today (and convinced now that it was from the leaking silicone). So, I was very much like you, unable to even walk for 5 minutes or do any housework. I lost my relationship to my 10 year boyfriend and almost gave up on life. But, you never know what kind of miracles God has up his sleeve. I am doing really well tonight, thank you. There is nothing on TV and no movies in the mail today (Netflix). So, here I am. Hope you are having a good evening too. Love, Joanne > > Hi Joanne, thank you ! ! I will keep looking. I know I need a good team > right now. How did you find out about going to germany for your surgery ? ? > What a way to go, being treated so kindly, and all. > Wow, I am amazed ! > Ya, I wouldnt work back in that field for anything. > Not the way it is. They are a huge embarrasment > to society. I will have to rent Sicko sometime. I have wanted to see it > since it came out. I have written a few times. > I am just in a funk right now, trying to decide what to do. It has been 6 > months now since they found the lung nodules and it is time to check them again, > and I havent decided what avenue to take. The oncologist said to re scan in > 6 months, so I dont know...its time tho....... > I appreciate the kind words ! > Love Dede > > > ************** > It's only a deal if it's where you want to go. Find > your travel deal here. > > (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047) > Quote Link to comment Share on other sites More sharing options...
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