Re: Big Bad Ugly Flare and Medrol?

[Guest guest]

Steroids will make you extra hungry, especially when you first start to take

them.

Also need to watch your blood sugar closely if you are diabetic. in WI

Semalee <sbilbrey@...> wrote:

Hi Everyone!

I had a remicade infusion back on the 12th of June and for the first time in

a year and a half of infusions I felt NOTHING! Usually I feel great

afterwards, the fatigue is virtually gone, my knuckles instantly go down, it

is like I don't have this blasted disease. But not this time. I waited for

3 weeks to see if it would finally kick in, but it never has. So I went

back to my rheumy yesterday and he did some extra blood work (which I don't

know the results of yet) and said he has had it happen occasionally when

someone will have an infusion that doesn't take, but it doesn't necessarily

mean it isn't working. So we will go ahead as planned and have my next

infusion in August, but if that one doesn't work then we obviously have a

problem. He wanted to give me a shot in my knuckles, but gosh that sounds

painful and I am barely holding it together as it is! So he gave me a

Medrol Dose Pack to take for 6 days and if that doesn't work then I come in

for the shot whether I like it or not. My question is has anyone taken this

before and/or had this happen with the Remicade? And why am I STARVING? I

can't get enough to eat! Is that because of the Medrol stuff or am I just

PMSing? LOL!!

Love and Peace,

Semalee

My Blog:

http://jellodoesntnail.blogspot.com

My webpage:

http://360./considerablewellness

Words to live by:

" A meaningful life will not be found in the next job or the next car. The

way you get meaning in your life is to devote yourself to helping others and

creating something that gives you purpose. "

Morrie Schwartz

[Guest guest]

Semalee,

Trust me it's the Medrol!!(been there, done that) It

makes me feel like I could eat a horse!!And I don't

eat much usually on a good day at all. You just have

to try and watch it because you can pack on 10 lb's

real fast with it! You are using it short term so you

shouldn't have a big prolblem with weight...just stay

away from the horses!!! AND THE GOOD NEWS is that you

are probably going to feel really good really

fast....be careful that you don't think youre " cured "

and hurt yourself by doing something that you

ordinarily wouldn't!!! It gives you a false sense of wellness!!Jenna

__________________________________________________

[Guest guest]

HI, MY DOC. JUST GAVE ME A MEDROL PACK AND I HAVE TOOK IT BEFORE. IT DOES GREAT

FOR ME. BUT, IT MAKES ME HUNGRY AND VERY HOT IN THE BEGGINING. I HOPE IT MAKES

YOU FEEL BETTER.

LOVE,

KIM

Semalee <sbilbrey@...> wrote:

Hi Everyone!

I had a remicade infusion back on the 12th of June and for the first time in

a year and a half of infusions I felt NOTHING! Usually I feel great

afterwards, the fatigue is virtually gone, my knuckles instantly go down, it

is like I don't have this blasted disease. But not this time. I waited for

3 weeks to see if it would finally kick in, but it never has. So I went

back to my rheumy yesterday and he did some extra blood work (which I don't

know the results of yet) and said he has had it happen occasionally when

someone will have an infusion that doesn't take, but it doesn't necessarily

mean it isn't working. So we will go ahead as planned and have my next

infusion in August, but if that one doesn't work then we obviously have a

problem. He wanted to give me a shot in my knuckles, but gosh that sounds

painful and I am barely holding it together as it is! So he gave me a

Medrol Dose Pack to take for 6 days and if that doesn't work then I come in

for the shot whether I like it or not. My question is has anyone taken this

before and/or had this happen with the Remicade? And why am I STARVING? I

can't get enough to eat! Is that because of the Medrol stuff or am I just

PMSing? LOL!!

Love and Peace,

Semalee

My Blog:

http://jellodoesntnail.blogspot.com

My webpage:

http://360./considerablewellness

Words to live by:

" A meaningful life will not be found in the next job or the next car. The

way you get meaning in your life is to devote yourself to helping others and

creating something that gives you purpose. "

Morrie Schwartz

[Guest guest]

Hi,

I just finished a medrol dosepak as well.

Yes, I gained weight. Probably 5 lbs. I wanted heavy meals. It is

like the communication with the brain and stomach is interrupted.

You feel like you have a bottomless pit for a stomach. Not good.

But the medrol give quick relief of the inflammation. And I also

need to keep the aircon on when taking the medrol as well. It is

probably the reason I need hip replacements, but it helps with the

inflammation.

I have listed below the side effects found at rxlist.com:

SIDE EFFECTS

Fluid and Electrolyte Disturbances: Sodium retention, congestive

heart failure in susceptible patients, hypertension, fluid retention,

potassium loss, hypokalemic alkalosis, hypertension.

Musculoskeletal: Muscle weakness; loss of muscle mass; steroid

myopathy; osteoporosis; tendon rupture, particularly of the Achilles

tendon; vertebral compression fractures; aseptic necrosis of femoral

and humeral heads; pathologic fracture of long bones.

Gastrointestinal: Peptic ulcer with possible perforation and

hemorrhage; pancreatitis; abdominal distention; ulcerative

esophagitis; increases in alanine transaminase (ALT, SGPT), aspartate

transaminase (AST, SGOT), and alkaline phosphatase have been observed

following corticosteroid treatment. These changes are usually small,

not associated with any clinical syndrome, and are reversible upon

discontinuation.

Dermatologic: Impaired wound healing, petechiae and ecchymoses, may

suppress reactions to skin tests, thin fragile skin, facial erythema,

increased sweating.

Neurological: Increased intracranial pressure with papilledema

(pseudo-tumor cerebri) usually after treatment, convulsions, vertigo,

headache.

healing energy,

Ebony