Guest guest Posted November 21, 2006 Report Share Posted November 21, 2006 Hi everyone, I was just diagnosed with Lupus/MCTD last week so this is all new to me and I'm quite scared. I was reading about side effects from Plaquenil and it sounds HORRIBLE! What has been your experiences? It may sound strange, but the worst thing to me is hair loss. I really loved my hair and lost a lot recently to cytoxin. It's just starting to be at the point where I'm not embarrassed if I don't wear a hat. The idea of losing it again makes me want to cry! It sounds like it also causing terrible digestive problems, vision loss, and nightmares. What fun. Any experience to share? If it did make your hair fall out (or anything else), is there anything you can do to help with that?? Quote Link to comment Share on other sites More sharing options...
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