hello i am new

[Guest guest]

Hi Kim,

Welcome to the group. You're not alone, many of us here had to self

diagnosis. The good news is that your baby is still young enough to

receive excellent correction.

It is super hard if not impossible to reposition a baby with

torticollis. Is in PT for his tort? Please let us know how the

casting goes.

--- In Plagiocephaly , " Kimmerlee " <merleebird@y...>

wrote:

> Hello

>

> My name is Kim and my almost-4 month old son was diagnosed

> with Torticollis in January. No one told me he had Plagiocephaly,

> and in fact, they (a doctor) have yet to tell me that he does. But

I

> went on the internet and saw the cranial technologies website and

> about lost it when I saw the pictures of what Plagio looks like,

and

> that his head looks like it! I was so relieved to finally find out

> that it wasn't our imagination that there was soemthing wrong with

> the shape of his head, that I had been repositioning for 3 months

> with no changes!! We went on our own to Cranial Technologies, and

> low and behold they will be casting him in 2 weeks.

>

> We live in the Chicago area, northwest burbs.

>

> Just wanted to introduce ourselves and say hello!

>

> Kim and Jake

[Guest guest]

Hi Kim and welcome! Boy, you are sure on top of things. Way to go

Mom!! CranialTech will definitely take good care of . Let us

know how the casting goes. I see has given you some casting

tips, they really help.

Dustie, mom to , DOCGrad'03

Texas

--- In Plagiocephaly , " Kimmerlee " <merleebird@y...>

wrote:

> Hello

>

> My name is Kim and my almost-4 month old son was diagnosed

> with Torticollis in January. No one told me he had Plagiocephaly,

> and in fact, they (a doctor) have yet to tell me that he does. But

I

> went on the internet and saw the cranial technologies website and

> about lost it when I saw the pictures of what Plagio looks like,

and

> that his head looks like it! I was so relieved to finally find out

> that it wasn't our imagination that there was soemthing wrong with

> the shape of his head, that I had been repositioning for 3 months

> with no changes!! We went on our own to Cranial Technologies, and

> low and behold they will be casting him in 2 weeks.

>

> We live in the Chicago area, northwest burbs.

>

> Just wanted to introduce ourselves and say hello!

>

> Kim and Jake

[Guest guest]

Hi Kim,

Welcome to the group. Many of us on this sight are thankful for the

internet for the same reasons you are. My daughter is also a case

where she probably would never have been treated for her (severe)

plagio if I hadn't found this group and all the other great

information on the internet. I'm sure you will find this group very

helpful in your journey! Good luck at the casting.

, mom to Hannah, DOCgrad

Cape Cod, Ma

--- In Plagiocephaly , " Kimmerlee " <merleebird@y...>

wrote:

> Hello

>

> My name is Kim and my almost-4 month old son was diagnosed

> with Torticollis in January. No one told me he had Plagiocephaly,

> and in fact, they (a doctor) have yet to tell me that he does. But

I

> went on the internet and saw the cranial technologies website and

> about lost it when I saw the pictures of what Plagio looks like,

and

> that his head looks like it! I was so relieved to finally find out

> that it wasn't our imagination that there was soemthing wrong with

> the shape of his head, that I had been repositioning for 3 months

> with no changes!! We went on our own to Cranial Technologies, and

> low and behold they will be casting him in 2 weeks.

>

> We live in the Chicago area, northwest burbs.

>

> Just wanted to introduce ourselves and say hello!

>

> Kim and Jake

[Guest guest]

Thank you!

We had a dr appt today and the ped is not the one we usually see. Tried to tell me that his head would round out on it's own. I really feel like alot of these drs are turning a deaf ear to this problem.

I have a pretty long medical history of my own, had heart surgery at 19 due to a rare condition called Takayasu's Arteritis, which also doesn't get much recognition from the general medical community so I know the signs of the drs that in lack of better terms, just don't care and don't want to learn about it. The warning flags went up real quick with this guy so that's why I kind of set out on my own.

I am very excited to join this group and share our experiences and learn from everyone. Thank you for the warm welcome!

Kim and Jake

Arlington Heights, IL

Jake gets his band a week from Monday!dustiejones <dustiejones@...> wrote:

Hi Kim and welcome! Boy, you are sure on top of things. Way to go Mom!! CranialTech will definitely take good care of . Let us know how the casting goes. I see has given you some casting tips, they really help.Dustie, mom to , DOCGrad'03Texas> Hello> > My name is Kim and my almost-4 month old son was diagnosed > with Torticollis in January. No one told me he had Plagiocephaly, > and in fact, they (a doctor) have yet to tell me that he does. But I > went on the internet and saw the cranial technologies website and > about lost it when I saw the pictures of what Plagio looks like, and > that his head looks like it! I was so relieved to finally find out

> that it wasn't our imagination that there was soemthing wrong with > the shape of his head, that I had been repositioning for 3 months > with no changes!! We went on our own to Cranial Technologies, and > low and behold they will be casting him in 2 weeks.> > We live in the Chicago area, northwest burbs.> > Just wanted to introduce ourselves and say hello!> > Kim and JakeFor more plagio info

[Guest guest]

Well that is the weird thing. The Tort diagnosis did not sit well with me either. Jake had some fluid on his head that was preventing him from turning his head to (his) left side. He tried, but there was a pocket the size of a golf ball and he couldn't. Now that it's almost gone he turns his head just fine, and he does turn it ok. There is no tilt.

When we went to the PT, I told her the above and she did some evaluation and agreed with me that it seemed to be a misdiagnosis because his range of motion now, is just fine.

So I am taking him to PT every other week just to help him "like" to turn his head more and that's only for three months.stripes6060 <taime@...> wrote:

Hi Kim,Welcome to the group. You're not alone, many of us here had to self diagnosis. The good news is that your baby is still young enough to receive excellent correction. It is super hard if not impossible to reposition a baby with torticollis. Is in PT for his tort? Please let us know how the casting goes.> Hello> > My name is Kim and my almost-4 month old son was diagnosed > with Torticollis in January. No one told me he had Plagiocephaly, > and in fact, they (a doctor) have yet to tell me that he does. But I > went on the internet and saw the cranial technologies website and > about lost it when I saw the pictures of what Plagio looks like, and > that his head looks like it! I was

so relieved to finally find out > that it wasn't our imagination that there was soemthing wrong with > the shape of his head, that I had been repositioning for 3 months > with no changes!! We went on our own to Cranial Technologies, and > low and behold they will be casting him in 2 weeks.> > We live in the Chicago area, northwest burbs.> > Just wanted to introduce ourselves and say hello!> > Kim and JakeFor more plagio info

[Guest guest]

Hi Kim and welcome!

I just joined the group earlier this week, so all of this is new to

me as well. My 4.5 month old, Nate, was just diagnosed with

plagio. (Although, like you, I think his diagnosis is off and he

really has bracchy...) We're in the research stage, as our son is a

candidate for a trial of repo. There's a lot of information here,

and everyone seems very nice!

I noticed you're from Arlington Heights... my husband grew up in

Park Ridge. Actually, we're going out to see the in-laws next week.

Nate's first trip in an airplane!

Mom to Nate (4.5 months)

--- In Plagiocephaly , " Kimmerlee " <merleebird@y...>

wrote:

> Hello

>

> My name is Kim and my almost-4 month old son was diagnosed

> with Torticollis in January. No one told me he had Plagiocephaly,

> and in fact, they (a doctor) have yet to tell me that he does. But

I

> went on the internet and saw the cranial technologies website and

> about lost it when I saw the pictures of what Plagio looks like,

and

> that his head looks like it! I was so relieved to finally find out

> that it wasn't our imagination that there was soemthing wrong with

> the shape of his head, that I had been repositioning for 3 months

> with no changes!! We went on our own to Cranial Technologies, and

> low and behold they will be casting him in 2 weeks.

>

> We live in the Chicago area, northwest burbs.

>

> Just wanted to introduce ourselves and say hello!

>

> Kim and Jake

[Guest guest]

Hi

I am right by Park Ridge! I will think good thought so the Chicago crazy-weather-gods look upon you fondly. LOL. Last week it was 55 one day. Today we had snow!! auugh! kjmcpo <kjmcpo@...> wrote:

Hi Kim and welcome!I just joined the group earlier this week, so all of this is new to me as well. My 4.5 month old, Nate, was just diagnosed with plagio. (Although, like you, I think his diagnosis is off and he really has bracchy...) We're in the research stage, as our son is a candidate for a trial of repo. There's a lot of information here, and everyone seems very nice!I noticed you're from Arlington Heights... my husband grew up in Park Ridge. Actually, we're going out to see the in-laws next week. Nate's first trip in an airplane!Mom to Nate (4.5 months)> Hello> > My name is Kim and my almost-4 month old son was diagnosed > with Torticollis in January. No one told me he had

Plagiocephaly, > and in fact, they (a doctor) have yet to tell me that he does. But I > went on the internet and saw the cranial technologies website and > about lost it when I saw the pictures of what Plagio looks like, and > that his head looks like it! I was so relieved to finally find out > that it wasn't our imagination that there was soemthing wrong with > the shape of his head, that I had been repositioning for 3 months > with no changes!! We went on our own to Cranial Technologies, and > low and behold they will be casting him in 2 weeks.> > We live in the Chicago area, northwest burbs.> > Just wanted to introduce ourselves and say hello!> > Kim and JakeFor more plagio info

[Guest guest]

Hi There,

I recently joined this group. We are in the southwest chicago

suburbs. My son is getting his treatment at the oakbrook terrace CT.

Had his casting yesterday.

Good luck with 's treatment.

jaysmommy - kavita

--- In Plagiocephaly , " Kimmerlee " <merleebird@y...>

wrote:

> Hello

>

> My name is Kim and my almost-4 month old son was diagnosed

> with Torticollis in January. No one told me he had Plagiocephaly,

> and in fact, they (a doctor) have yet to tell me that he does. But

I

> went on the internet and saw the cranial technologies website and

> about lost it when I saw the pictures of what Plagio looks like,

and

> that his head looks like it! I was so relieved to finally find out

> that it wasn't our imagination that there was soemthing wrong with

> the shape of his head, that I had been repositioning for 3 months

> with no changes!! We went on our own to Cranial Technologies, and

> low and behold they will be casting him in 2 weeks.

>

> We live in the Chicago area, northwest burbs.

>

> Just wanted to introduce ourselves and say hello!

>

> Kim and Jake

[Guest guest]

I am also getting mine done at Oakbrook Terrace! I am very happy with them so far they seem very nice! We get casted next monday.jm2003mom <kpadwal@...> wrote:

Hi There,I recently joined this group. We are in the southwest chicago suburbs. My son is getting his treatment at the oakbrook terrace CT.Had his casting yesterday.Good luck with 's treatment.jaysmommy - kavita> Hello> > My name is Kim and my almost-4 month old son was diagnosed > with Torticollis in January. No one told me he had Plagiocephaly, > and in fact, they (a doctor) have yet to tell me that he does. But I > went on the internet and saw the cranial technologies website and > about lost it when I saw the pictures of what Plagio looks like, and > that his head looks like it! I was so relieved to finally find out > that it wasn't our imagination that there was

soemthing wrong with > the shape of his head, that I had been repositioning for 3 months > with no changes!! We went on our own to Cranial Technologies, and > low and behold they will be casting him in 2 weeks.> > We live in the Chicago area, northwest burbs.> > Just wanted to introduce ourselves and say hello!> > Kim and JakeFor more plagio info

[Guest guest]

hi kavitha

My name is sujatha, my son is diagnosed with plagio in his 5th month now he is 6 months old we need ur suggestion before we start the treatment we r worried whether it will hurt the baby/side effects.Please give us some information on this.

Thank you

Bye

Sujathajm2003mom <kpadwal@...> wrote:

Hi There,I recently joined this group. We are in the southwest chicago suburbs. My son is getting his treatment at the oakbrook terrace CT.Had his casting yesterday.Good luck with 's treatment.jaysmommy - kavita> Hello> > My name is Kim and my almost-4 month old son was diagnosed > with Torticollis in January. No one told me he had Plagiocephaly, > and in fact, they (a doctor) have yet to tell me that he does. But I > went on the internet and saw the cranial technologies website and > about lost it when I saw the pictures of what Plagio looks like, and > that his head looks like it! I was so relieved to finally find out > that it wasn't our imagination that there was

soemthing wrong with > the shape of his head, that I had been repositioning for 3 months > with no changes!! We went on our own to Cranial Technologies, and > low and behold they will be casting him in 2 weeks.> > We live in the Chicago area, northwest burbs.> > Just wanted to introduce ourselves and say hello!> > Kim and JakeFor more plagio info

[Guest guest]

Hi Kim!

Way to go! You are very fortunate to get treatment SO fast. Your baby

will round out beautifully!! Please keep us posted!

--- In Plagiocephaly , " Kimmerlee " <merleebird@y...>

wrote:

> Hello

>

> My name is Kim and my almost-4 month old son was diagnosed

> with Torticollis in January. No one told me he had Plagiocephaly,

> and in fact, they (a doctor) have yet to tell me that he does. But

I

> went on the internet and saw the cranial technologies website and

> about lost it when I saw the pictures of what Plagio looks like,

and

> that his head looks like it! I was so relieved to finally find out

> that it wasn't our imagination that there was soemthing wrong with

> the shape of his head, that I had been repositioning for 3 months

> with no changes!! We went on our own to Cranial Technologies, and

> low and behold they will be casting him in 2 weeks.

>

> We live in the Chicago area, northwest burbs.

>

> Just wanted to introduce ourselves and say hello!

>

> Kim and Jake

[Guest guest]

Devin Houston who makes the Houstons enzymes was instrumental in the

development of Serenaid. HNI enzymes are the all new, improved Sereniad LOL. I

would

look into switching when your current supply runs out.

_www.houstonni.com_ (http://www.houstonni.com)

HTH

Mandi in UK

hello my daughter hfa has been gfcf for 6 mnths we went off diet for

6 days to make sure it wrks and it really did. she is back on diet

my dan doctor gave her serenaid anty body heard of that or houstons

is better .

[Guest guest]

Dear ,

Welcome to our friendly helpful group. The first step towards curing

candida is education, with my article " How to Successfully Overcome

Candida " being the most important. When you've had a chance to read it

you will understand what our group is all about, and why foods are very

important for helping your body do its job of healing, and in getting

rid of candida and chronic fatigue, which is caused by candida

overgrowth in your body.

I'm short on time this morning but we are all here to help you.

The best in health,

Bee

[Guest guest]

HELLO i am new - I look like very early stage ra with fingers

beginning to bend a little on both hands - I have rosacea sun problems

and a lot of migraine and now realise that these other problems may

be ra related .No pain or swelling yet hopefully stay like that but

one finger a little stiff so I thought I would join you guys early on

to learn a little more.

[Guest guest]

Are you doing anything for your hands?

I just made my appointment today for my hand surgeon consult to get my hand

fixed. For the past 4 months I have been in braces for fix my drift. Two years

ago my fingers were only at a 15 degree drift. Now they are at a 45 degree

drift.

I would recommend going to a hand specialist and get night splints if you

haven't done so already. Luckily, only one of my hands have drifted but it

really hurts and is really inconvenient!

Shandi

[ ] hello i am new

HELLO i am new - I look like very early stage ra with fingers

beginning to bend a little on both hands - I have rosacea sun problems

and a lot of migraine and now realise that these other problems may

be ra related .No pain or swelling yet hopefully stay like that but

one finger a little stiff so I thought I would join you guys early on

to learn a little more.

[Guest guest]

>

> HELLO i am new - I look like very early stage ra with fingers

> beginning to bend a little on both hands - I have rosacea sun

problems

> and a lot of migraine and now realise that these other problems may

> be ra related .No pain or swelling yet hopefully stay like that but

> one finger a little stiff so I thought I would join you guys early

on

> to learn a little more.

>

Welcome to the group you will find alot of info here and everyone is

great

Janet IN IL

[Guest guest]

I would be surprised if you found anyone being cruel about the helmet. I guess that possibility sometimes comes from family members who aren't making fun of the baby, but think the parents are over the top. Like another person said, just use the comparison to braces - it is very much the same idea. Strangers were never cruel in any way with my baby. I have older daughters (almost 6) and their friends at school were always concerned and asked questions. No one made fun of the baby or teased my girls. My daughters didn't even seem worried about our son getting a helmet. They just accepted it. And, I was also very worried about the helmet changing the personality of our little boy. It did not!! At first I was kind of depressed and my son was rather subdued, but as soon as I perked up, he did, too. He was happy and smiley while he wore the helmet. Yes, the helmet is going to draw some looks from

strangers, but what can you do? You're doing the best for your baby. I'm betting the strangers will either ask nice questions or won't say anything at all. Good luck! Colleen mom to Logan 7mos - Starband gradmamatotwo2000 <mamatotwo2000@...> wrote: It all started about four weeks ago when I took my little one for herfirst scan. I am so thankful that they caught her's in time. Thedoctor informed me after her first scan that he wanted me to get

heroff of that side of her head as much as possible over the next fourweeks. I did everything in my power to get her off of the right sideof her head. She tries with all her might to get back on that side,too. I put her in a bumbo seat, her exersaucer, more tummy time and Iput her in a side sleep to sleep at night. While it helped some therewas not enough improvement according to her second scan which tookplace yesterday. So, we go back in two weeks for the fitting. I am okay with it because I know it is the best thing for her in thelong run. Hubby has his concerns about drawing more attention to us asthe older ones tend to draw looks whenever we are out due to behaviorand there age plus it doesn't help much that our son (7) was justunofficially diagnosed with Asperger's long story and our daughter (4)is hyperactive. Plus, his family already thinks that I am crazy and heis afraid this will put them over the edge

with me. We are alsoconcerned that this will change our happy go lucky baby who rarelycries or fusses. Even a change doesn't throw her off, she kind of goeswith the flow. I'm looking for information on how to make this transition easier onthe whole family. How we can explain it to the older ones as to whyshe is needing a special helmet and how to help them when othersbecome cruel? How to get the little one used to wearing the helmet andany other information would be of great help. Thanks for reading andsorry so long.

Fussy? Opinionated? Impossible to please? Perfect. Join 's user panel and lay it on us.

[Guest guest]

Hi Jacki, It all started when I went to my plasic

surgeon for my yearly visit. He noticed, I already

new, that Scarlet's had was flatter on one side than

the other. He could tell just by looking at her and

the position of her ears, she was sitting in a

stroller. He then sent me out a referral and we went

from there.

As far as the doctor who is working with us with the

helmet, he seems to take the let's try this and this

first approach. Which I think is great.

Hey, that's a good one about them needing braces. I

may have to use that one.

What is the difference between the band and the helmet

or are they the same thing?

I'm glad to hear that he is the same happy little boy.

Thanks for the tip. I will make sure my two older ones

are no where in sight when I take her helmet on and

off because I know they will try to do it themselves.

--- Jacki Henriksen <eikcajh@...> wrote:

> Plagiocephaly

> From: Jacki Henriksen <eikcajh@...>

> Date: Wed, 25 Jul 2007 15:30:01 -0700 (PDT)

> Subject: Re: Hello I am new

>

> Hi and welcome. You are fortunate that your doctor

> is well informed about plagio and got you started on

> the right track with repositioning. It certainly

> sounds like you are doing everything right.

> I worried about my family's reaction when I told

> them that Tyler needed a band as well. They actually

> took it quite well. One of the arguments that I was

> prepared with was that if it's OK for kids to have

> braces to look normal why not a helmet too.

> Tyler just got his Starlight Band last week and with

> the exception of a sweaty head, he's doing great. As

> for Tyler's personality. He's the same smiling happy

> little boy that he has always been. He just has a

> new accessory now.

> Granted his cousins are younger than your children,

> we simply told them that Tyler is wearing a special

> hat for a while. They accepted it and even wanted

> hats for themselves. So I brought them some baseball

> caps and they loved it. The only potential problem

> so far is that 1 cousin has discovered the Velcro on

> Tyler's helmet. Also you may want to avoid letting

> your other kids watch the helmet go on and off. Kids

> are curious and helpful and may want to assist.

> The few times that we've been to the mall, I've

> heard kids who are probably about your children's

> age ask their parents why he has a plastic hat on

> his head and I've seen a couple starring but for

> them most part it's been no problem.

>

> Jackie

> Mom to Tyler, Starlight Band 07/19/2007

>

>

>

> Hello I am new

>

> It all started about four weeks ago when I took my

> little one for her

> first scan. I am so thankful that they caught her's

> in time. The

> doctor informed me after her first scan that he

> wanted me to get her

> off of that side of her head as much as possible

> over the next four

> weeks. I did everything in my power to get her off

> of the right side

> of her head. She tries with all her might to get

> back on that side,

> too. I put her in a bumbo seat, her exersaucer, more

> tummy time and I

> put her in a side sleep to sleep at night. While it

> helped some there

> was not enough improvement according to her second

> scan which took

> place yesterday. So, we go back in two weeks for the

> fitting.

>

> I am okay with it because I know it is the best

> thing for her in the

> long run. Hubby has his concerns about drawing more

> attention to us as

> the older ones tend to draw looks whenever we are

> out due to behavior

> and there age plus it doesn't help much that our son

> (7) was just

> unofficially diagnosed with Asperger's long story

> and our daughter (4)

> is hyperactive. Plus, his family already thinks that

> I am crazy and he

> is afraid this will put them over the edge with me.

> We are also

> concerned that this will change our happy go lucky

> baby who rarely

> cries or fusses. Even a change doesn't throw her

> off, she kind of goes

> with the flow.

>

> I'm looking for information on how to make this

> transition easier on

> the whole family. How we can explain it to the older

> ones as to why

> she is needing a special helmet and how to help them

> when others

> become cruel? How to get the little one used to

> wearing the helmet and

> any other information would be of great help. Thanks

> for reading and

> sorry so long.

>

>

>

>

>

>

>

________________________________________________________________________________\

____

> Take the Internet to Go: Go puts the Internet

> in your pocket: mail, news, photos & more.

> http://mobile./go?refer=1GNXIC

mamatotwo2000@...

dawnoftheearth.com

Braxton(7):Mixed Receptive/Expressive Language Disorder

Sensory Motor Integration Anxiety Disorder NOS

Developmental Coordination Disorder Regulatory Concerns

Savanna(4):Sensory Integration Disorder

Scarlet(4 mnths):reflux and small for gestational age

________________________________________________________________________________\

____Ready for the edge of your seat?

Check out tonight's top picks on TV.

http://tv./

[Guest guest]

Hi , Oh wonderful, I can imagine the things that

they can come up with why she is needing the helmet.

Ha, that won't happen with my husband. He would rather

me avoid the whole issue all together and just have it

disappear while she is here. Well, you think I am

going to stop taking her picture because she has a

helmet on, um no. It doesn't bother me at all but I

guess because I grew up with a mom who occasionally

wore a prosthetic arm with a hook on the end of it.

She was born with only part of her right arm.

--- lka_236 <lka_236@...> wrote:

> Plagiocephaly

> From: " lka_236 " <lka_236@...>

> Date: Wed, 25 Jul 2007 23:07:54 -0000

> Subject: Re: Hello I am new

>

> Kid's get it...you'll be surprised! I had kids stun

> me with why

> they thought my son needed a helmet and surprisingly

> sometimes they

> were right on. As far as family, hopefully, your

> husband can tell

> them this is what's best. Good luck. It really

> isn't that bad.

>

>

>

>

> >

> > Hi and welcome. You are fortunate that your doctor

> is well

> informed about plagio and got you started on the

> right track with

> repositioning. It certainly sounds like you are

> doing everything

> right.

> > I worried about my family's reaction when I told

> them that Tyler

> needed a band as well. They actually took it quite

> well. One of the

> arguments that I was prepared with was that if it's

> OK for kids to

> have braces to look normal why not a helmet too.

> > Tyler just got his Starlight Band last week and

> with the exception

> of a sweaty head, he's doing great. As for Tyler's

> personality. He's

> the same smiling happy little boy that he has always

> been. He just

> has a new accessory now.

> > Granted his cousins are younger than your

> children, we simply told

> them that Tyler is wearing a special hat for a

> while. They accepted

> it and even wanted hats for themselves. So I brought

> them some

> baseball caps and they loved it. The only potential

> problem so far

> is that 1 cousin has discovered the Velcro on

> Tyler's helmet. Also

> you may want to avoid letting your other kids watch

> the helmet go on

> and off. Kids are curious and helpful and may want

> to assist.

> > The few times that we've been to the mall, I've

> heard kids who are

> probably about your children's age ask their parents

> why he has a

> plastic hat on his head and I've seen a couple

> starring but for them

> most part it's been no problem.

> >

> > Jackie

> > Mom to Tyler, Starlight Band 07/19/2007

> >

> >

> >

> > Hello I am new

> >

> > It all started about four weeks ago when I took my

> little one for

> her

> > first scan. I am so thankful that they caught

> her's in time. The

> > doctor informed me after her first scan that he

> wanted me to get

> her

> > off of that side of her head as much as possible

> over the next four

> > weeks. I did everything in my power to get her off

> of the right

> side

> > of her head. She tries with all her might to get

> back on that side,

> > too. I put her in a bumbo seat, her exersaucer,

> more tummy time

> and I

> > put her in a side sleep to sleep at night. While

> it helped some

> there

> > was not enough improvement according to her second

> scan which took

> > place yesterday. So, we go back in two weeks for

> the fitting.

> >

> > I am okay with it because I know it is the best

> thing for her in

> the

> > long run. Hubby has his concerns about drawing

> more attention to

> us as

> > the older ones tend to draw looks whenever we are

> out due to

> behavior

> > and there age plus it doesn't help much that our

> son (7) was just

> > unofficially diagnosed with Asperger's long story

> and our daughter

> (4)

> > is hyperactive. Plus, his family already thinks

> that I am crazy

> and he

> > is afraid this will put them over the edge with

> me. We are also

> > concerned that this will change our happy go lucky

> baby who rarely

> > cries or fusses. Even a change doesn't throw her

> off, she kind of

> goes

> > with the flow.

> >

> > I'm looking for information on how to make this

> transition easier

> on

> > the whole family. How we can explain it to the

> older ones as to why

> > she is needing a special helmet and how to help

> them when others

> > become cruel? How to get the little one used to

> wearing the helmet

> and

> > any other information would be of great help.

> Thanks for reading

> and

> > sorry so long.

> >

> >

> >

> >

> >

> >

> >

>

_____________________________________________________________________

> _______________

> > Take the Internet to Go: Go puts the

> Internet in your

> pocket: mail, news, photos & more.

> > http://mobile./go?refer=1GNXIC

> >

>

>

>

mamatotwo2000@...

dawnoftheearth.com

Braxton(7):Mixed Receptive/Expressive Language Disorder

Sensory Motor Integration Anxiety Disorder NOS

Developmental Coordination Disorder Regulatory Concerns

Savanna(4):Sensory Integration Disorder

Scarlet(4 mnths):reflux and small for gestational age

________________________________________________________________________________\

____

Be a better Heartthrob. Get better relationship answers from someone who knows.

Answers - Check it out.

http://answers./dir/?link=list & sid=396545433

[Guest guest]

If you are getting a STARband, contact the company that makes it,

Orthomerica, and see if you can get a copy of the book " My Sister has a

Crooked Head " . We got the book when my son was banded and read it to his

older brothers. Of course, we replaced the word " crooked " with " flat " :>)

It helped them understand what was going on. We also took the book and the

banded brother to school for show-and-tell and read the book to all of the

kids so that they would understand as well. We were fortunate that we

didn't get any cruel comments from strangers.

Molly

California

Nicolas, 21.5 months, tort & plagio, STARband 4/25/06-9/12/06, Graduate!

, 4

, 7.5

Hello I am new

It all started about four weeks ago when I took my little one for her first

scan. I am so thankful that they caught her's in time. The doctor informed

me after her first scan that he wanted me to get her off of that side of her

head as much as possible over the next four weeks. I did everything in my

power to get her off of the right side of her head. She tries with all her

might to get back on that side, too. I put her in a bumbo seat, her

exersaucer, more tummy time and I put her in a side sleep to sleep at night.

While it helped some there was not enough improvement according to her

second scan which took place yesterday. So, we go back in two weeks for the

fitting.

I am okay with it because I know it is the best thing for her in the long

run. Hubby has his concerns about drawing more attention to us as the older

ones tend to draw looks whenever we are out due to behavior and there age

plus it doesn't help much that our son (7) was just unofficially diagnosed

with Asperger's long story and our daughter (4) is hyperactive. Plus, his

family already thinks that I am crazy and he is afraid this will put them

over the edge with me. We are also concerned that this will change our happy

go lucky baby who rarely cries or fusses. Even a change doesn't throw her

off, she kind of goes with the flow.

I'm looking for information on how to make this transition easier on the

whole family. How we can explain it to the older ones as to why she is

needing a special helmet and how to help them when others become cruel? How

to get the little one used to wearing the helmet and any other information

would be of great help. Thanks for reading and sorry so long.

For more plagio info

[Guest guest]

Your baby will look SO cute in their band! I loved decorating. Try

to have fun with it and still enjoy your little one. Hopefully, your

husband will do the same.

lisa

> > >

> > > Hi and welcome. You are fortunate that your doctor

> > is well

> > informed about plagio and got you started on the

> > right track with

> > repositioning. It certainly sounds like you are

> > doing everything

> > right.

> > > I worried about my family's reaction when I told

> > them that Tyler

> > needed a band as well. They actually took it quite

> > well. One of the

> > arguments that I was prepared with was that if it's

> > OK for kids to

> > have braces to look normal why not a helmet too.

> > > Tyler just got his Starlight Band last week and

> > with the exception

> > of a sweaty head, he's doing great. As for Tyler's

> > personality. He's

> > the same smiling happy little boy that he has always

> > been. He just

> > has a new accessory now.

> > > Granted his cousins are younger than your

> > children, we simply told

> > them that Tyler is wearing a special hat for a

> > while. They accepted

> > it and even wanted hats for themselves. So I brought

> > them some

> > baseball caps and they loved it. The only potential

> > problem so far

> > is that 1 cousin has discovered the Velcro on

> > Tyler's helmet. Also

> > you may want to avoid letting your other kids watch

> > the helmet go on

> > and off. Kids are curious and helpful and may want

> > to assist.

> > > The few times that we've been to the mall, I've

> > heard kids who are

> > probably about your children's age ask their parents

> > why he has a

> > plastic hat on his head and I've seen a couple

> > starring but for them

> > most part it's been no problem.

> > >

> > > Jackie

> > > Mom to Tyler, Starlight Band 07/19/2007

> > >

> > >

> > >

> > > Hello I am new

> > >

> > > It all started about four weeks ago when I took my

> > little one for

> > her

> > > first scan. I am so thankful that they caught

> > her's in time. The

> > > doctor informed me after her first scan that he

> > wanted me to get

> > her

> > > off of that side of her head as much as possible

> > over the next four

> > > weeks. I did everything in my power to get her off

> > of the right

> > side

> > > of her head. She tries with all her might to get

> > back on that side,

> > > too. I put her in a bumbo seat, her exersaucer,

> > more tummy time

> > and I

> > > put her in a side sleep to sleep at night. While

> > it helped some

> > there

> > > was not enough improvement according to her second

> > scan which took

> > > place yesterday. So, we go back in two weeks for

> > the fitting.

> > >

> > > I am okay with it because I know it is the best

> > thing for her in

> > the

> > > long run. Hubby has his concerns about drawing

> > more attention to

> > us as

> > > the older ones tend to draw looks whenever we are

> > out due to

> > behavior

> > > and there age plus it doesn't help much that our

> > son (7) was just

> > > unofficially diagnosed with Asperger's long story

> > and our daughter

> > (4)

> > > is hyperactive. Plus, his family already thinks

> > that I am crazy

> > and he

> > > is afraid this will put them over the edge with

> > me. We are also

> > > concerned that this will change our happy go lucky

> > baby who rarely

> > > cries or fusses. Even a change doesn't throw her

> > off, she kind of

> > goes

> > > with the flow.

> > >

> > > I'm looking for information on how to make this

> > transition easier

> > on

> > > the whole family. How we can explain it to the

> > older ones as to why

> > > she is needing a special helmet and how to help

> > them when others

> > > become cruel? How to get the little one used to

> > wearing the helmet

> > and

> > > any other information would be of great help.

> > Thanks for reading

> > and

> > > sorry so long.

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> >

>

_____________________________________________________________________

> > _______________

> > > Take the Internet to Go: Go puts the

> > Internet in your

> > pocket: mail, news, photos & more.

> > > http://mobile./go?refer=1GNXIC

> > >

> >

> >

> >

>

>

> mamatotwo2000@...

> dawnoftheearth.com

> Braxton(7):Mixed Receptive/Expressive Language Disorder

> Sensory Motor Integration Anxiety Disorder NOS

> Developmental Coordination Disorder Regulatory Concerns

> Savanna(4):Sensory Integration Disorder

> Scarlet(4 mnths):reflux and small for gestational age

>

>

>

>

_____________________________________________________________________

_______________

> Be a better Heartthrob. Get better relationship answers from

someone who knows. Answers - Check it out.

> http://answers./dir/?link=list & sid=396545433

>

[Guest guest]

I would hope not but you should see some of the looks

that I get when I wear a bandanna on my head to keep

my hair out of my face. Yup, that's hubby's mom, she

thinks that I am way over the top and make

illnesses/diagnosis's up to excuse my children's

behaviors. I'm not worried about the looks as much as

the comments. I hope they ask nice questions because I

am not nice when someone tics me off. I am glad to

hear that it did not change your little ones

personality that is by biggest concern. She is always

happy go lucky and it sort of balances the household.

_________________________________________________-

I would be surprised if you found anyone being cruel

about the helmet. I guess that possibility sometimes

comes from family members who aren't making fun of the

baby, but think the parents are over the top. Like

another person said, just use the comparison to braces

- it is very much the same idea. Strangers were never

cruel in any way with my baby. I have older daughters

(almost 6) and their friends at school were always

concerned and asked questions. No one made fun of the

baby or teased my girls. My daughters didn't even seem

worried about our son getting a helmet. They just

accepted it. And, I was also very worried about the

helmet changing the personality of our little boy. It

did not!! At first I was kind of depressed and my son

was rather subdued, but as soon as I perked up, he

did, too. He was happy and smiley while he wore the

helmet. Yes, the helmet is going to draw some looks

from strangers, but what can you do? You're doing the

best for your baby.

I'm betting the strangers will either ask nice

questions or won't say anything at all. Good luck!

Colleen

mom to Logan 7mos - Starband grad

________________________________________________________________________________\

____

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[Guest guest]

Not sure what a Star Band is but Scarlet's paperwork

calls it a Plagiocephaly Helmet. That book would be

neat to get, though.

___________________________________________________

If you are getting a STARband, contact the company

that makes it,

Orthomerica, and see if you can get a copy of the book

" My Sister has a

Crooked Head " . We got the book when my son was banded

and read it to his

older brothers. Of course, we replaced the word

" crooked " with " flat " :>)

It helped them understand what was going on. We also

took the book and the

banded brother to school for show-and-tell and read

the book to all of the

kids so that they would understand as well. We were

fortunate that we

didn't get any cruel comments from strangers.

Molly

California

Nicolas, 21.5 months, tort & plagio, STARband

4/25/06-9/12/ 06, Graduate!

, 4

, 7.5

________________________________________________________________________________\

____

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