fatigue

[Guest guest]

Does everyone have

> overwhelming fatigue? I get up in the morning, take a shower, then

> lay back down. I get up, make the bed, and have to lay back down

> again. It seems like I have to rest sooo much, I am exhausted. The

> last 2 nights I have slept very well, but still I am so tired.

Hi Holly, I'm definitely in the same place. On a lot of days I can do

more than you (or just have to) like work (at home) and deal with

appts and kids (older, tho, so it's mostly just constant ferrying them

around.) But I hardly do any work around the house and I'm having a huge

time coping with it it all. And at least a couple of days a month I'm a

total vegetable.

Right now I can only work a couple of hours a day, and I used to put

in 60 or so hours a week. I built my business up for 8 years until last

year when I finally made semi-decent money, at least enough to have hope

for the future. Then RA hit.

Part of my trouble is that I haven't yet found a drug that works for me.

I just went off Arava and am starting Enbrel soon, luckily my insurance

will pay for it, yay! Altho I'm scared of the injections.

I worry that I won't ever be able to make any money, and if not whether

or not I'll be able to

get SSDI, if I'll ever get out of bed, etc, so I empathize. I wonder how

so many of you are able to work full time, do you just push thru it or

are you in better shape cuz of your meds?

What are you on? Maybe if you can get the RA under better control

it'll help. Not that I know what 'better control' is, but from what

others say on this list, it does exist

Good luck