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, I did NOT have psoriasis at the time of my first large

flare. Like you, I was misdiagnosed as having a spider bite. That

was 10 years ago. I had very little problem over the next 10 years.

A little pain in my knee and stiff finger joints. I didn't pay much

attention to it - just chalked it up to middle-age.

Then I started having a problem with peeling fingertips. They found

I had severe contact allergy to rubber and nickel. We thought that

explained it. It got worse and worse. Then it spread to the soles

of my feet. Finally I had a full-body flare of arthritis pain -

BINGO! They finally figured out what was wrong with me all along.

The only P I have is my hands and feet and small patches on both

elbows, which developed later. I'm thankful for that. You may not

get any or much at all. Don't panic. Just deal with it as it

comes. There are meds that can help you, no matter what happens.

Just be alert and notify your doctor about anything that concerns you.

best regards and welcome,

sherry z

>

> Thank you for the welcome. I have only read a few emails from this

group,

> however, I have seen that fatigue is one of the symptoms. I have

very

> severe fatigue and its hard on my family (and me) I was just

diagnosed with

> PA and Fibromyalgia this past week after a summer long of pain

because all

> the specialists and doctors thought that my joint pain and swelling

was from

> a virus or a spider bite, not any specific arthritis, because it

came on so

> quickly. I have NOT got psoriasis, thank goodness. Do you think

it will

> come eventually?

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I forgot to ask - why do they think it is PA if you don't have any P?

just curious and still learning myself,

sherry z

>

> Thank you for the welcome. I have only read a few emails from this

group,

> however, I have seen that fatigue is one of the symptoms. I have

very

> severe fatigue and its hard on my family (and me) I was just

diagnosed with

> PA and Fibromyalgia this past week after a summer long of pain

because all

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Hi , welcome......I have had PA quite some time now and never had

psoriasis anywhere on my body. I had horrible issues with fatigue also until

someone at my gym told me to try a product you can buy at GNC or online at

bodybuilding.com.....its made by a co called Muscletech and its called

thermoshredd.....I tell you what- I do not know what is in it and I do not

care....it took care of it and now as long as I take this with breakfast and

lunch-no issues. I am sure it is probably horrible for you, but really, its

better the Devil you know then the devil you don't

Give it a try if you are ok with caffeine and weird herbs....I will not go

anywhere without it...

nne

s@...> wrote:

Thank you for the welcome. I have only read a few emails from this

group,

however, I have seen that fatigue is one of the symptoms. I have very

severe fatigue and its hard on my family (and me) I was just diagnosed with

PA and Fibromyalgia this past week after a summer long of pain because all

the specialists and doctors thought that my joint pain and swelling was from

a virus or a spider bite, not any specific arthritis, because it came on so

quickly. I have NOT got psoriasis, thank goodness. Do you think it will

come eventually?

Thanks

Ontario

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This is Kate....I don't have P. My sister does. My Rheumy said that PA

and plantar fasciitis go hand and hand( I was diagnosed with that in

June). In fact she gave me a check list that had that on it. I've read

the 15% of the people with PA don't have P, some never develope it.

(I'm still learning too)

Kate

At 06:17 PM 11/28/2006, you wrote:

>I forgot to ask - why do they think it is PA if you don't have any P?

>

>just curious and still learning myself,

>sherry z

>

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That would certainly be great not to develop it.

Re: [ ] Re: New Member -

This is Kate....I don't have P. My sister does. My Rheumy said that PA

and plantar fasciitis go hand and hand( I was diagnosed with that in

June). In fact she gave me a check list that had that on it. I've read

the 15% of the people with PA don't have P, some never develope it.

(I'm still learning too)

Kate

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I also have been diagnosed with Fibro., which would also explain some of the

fatigue. Right now I am waiting for the diagnosis to be confirmed and then will

look at my med options. I do understand that both of my options have issues

with my live and my eyes, which is scary.

Re: [ ] New Member -

Hi , welcome......I have had PA quite some time now and never had

psoriasis anywhere on my body. I had horrible issues with fatigue also until

someone at my gym told me to try a product you can buy at GNC or online at

bodybuilding.com.....its made by a co called Muscletech and its called

thermoshredd.....I tell you what- I do not know what is in it and I do not

care....it took care of it and now as long as I take this with breakfast and

lunch-no issues. I am sure it is probably horrible for you, but really, its

better the Devil you know then the devil you don't

Give it a try if you are ok with caffeine and weird herbs....I will not go

anywhere without it...

nne

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From what I have been reading here, everyone is different with symptoms, meds

etc. This is normal in life. What works for one may not work for another. It

is all trial and error. I was on prednisone for 4 months in the summer and

gained 55 lbs. I HATE this drug, but it does help with the pain. I am not back

on it, because it was important for me to have pain relief in order to get up

and get going more. Especially at Christmas time. Lots of gift certificates

will be given this year.!

[ ] Re: New Member -

, I did NOT have psoriasis at the time of my first large

flare. Like you, I was misdiagnosed as having a spider bite. That

was 10 years ago. I had very little problem over the next 10 years.

A little pain in my knee and stiff finger joints. I didn't pay much

attention to it - just chalked it up to middle-age.

Then I started having a problem with peeling fingertips. They found

I had severe contact allergy to rubber and nickel. We thought that

explained it. It got worse and worse. Then it spread to the soles

of my feet. Finally I had a full-body flare of arthritis pain -

BINGO! They finally figured out what was wrong with me all along.

The only P I have is my hands and feet and small patches on both

elbows, which developed later. I'm thankful for that. You may not

get any or much at all. Don't panic. Just deal with it as it

comes. There are meds that can help you, no matter what happens.

Just be alert and notify your doctor about anything that concerns you.

best regards and welcome,

sherry z

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Thanks for the info, Kate. I also had plantar fasciitis as a big part

of my symptoms. I didn't realize that it was a diagnostic criteria for

PA.

sherry z

>

> This is Kate....I don't have P. My sister does. My Rheumy said

that PA

> and plantar fasciitis go hand and hand( I was diagnosed with that in

>

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Sorry I didn't word myself well, it is one of the possible criteria. IE

the list was you must have a certain number from this list. I'll dig the

paper out later I need to head to bed.

Kate

At 12:24 PM 11/29/2006, you wrote:

>Thanks for the info, Kate. I also had plantar fasciitis as a big part

>of my symptoms. I didn't realize that it was a diagnostic criteria for

>PA.

>

>sherry z

>

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I understand, kate. No need to go searching for the list...

sherry z

>

> Sorry I didn't word myself well, it is one of the possible criteria.

IE

> the list was you must have a certain number from this list. I'll dig

the

> paper out later I need to head to bed.

>

> Kate

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In a message dated 27/11/2006 19:09:38 GMT Standard Time,

fortheluvofgoldens@... writes:

Hello Everyone. I am new here. I was just diagnosed, finally, with

Psoriatic Arthritis, in London Ontario. I have not been able to work

or walk very much for 9 months now. I also have a herniated disc in

my back, so this is making things worse. I look forward to reading

everyone's questions and answers.

Hi ,

A late welcome to the group. I hope you have settled in ok over the last few

days and managed to get to know a few people here. They are a great bunch.

Reading on through your subsequent posts, I see you have done just that.

That's great.

Again, welcome.

Take care,

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  • 3 years later...
Guest guest

I always suggest to women that they request a copy of their operative report

from the explant surgery. This is a report that the doctors are required to file

when they complete any surgical procedure. In this report, they will discuss

everything that was done during the surgery, in detail.

The reason for requesting this report is because this is the only way you can

know for sure what was done during explant. You will be able to read on the

report exactly what the doctor took out of your body, and will describe the

process by which it was accomplished.

This is how you can know if you received a total capsulectomy, or en bloc

removal. Some women who were TOLD that the doctor would do a total capsulectomy

have been stunned to read on the operative report that they in fact only

received a partial capsulectomy.

Many times doctors will not want to take the time and effort necessary to remove

the posterior capsule, and so will only remove the anterior capsule. They will

do this, even knowing that the woman has requested a total capsulectomy. They

might say something like, " once I got in there, I found I could not get it all. "

That may or may not be true, but I can safely say that the best surgeons will

make sure they get it all!

So....be careful. Your safest bet is to get a copy of the operative report and

not trust everything the doctor says, no matter how nice they seem.

I am not trying to slam any one doctor or discredit anyone in particular. I am

just saying that I know of more than several instances when women were told one

thing before surgery, only to find out by reading the operative report that

something different was done. Women have even found out that they had silicone

gel implants for years when they had believed they had saline! I guess some

doctors think that we will not be able to find out the truth...unless we act

smarter than they think we are, and figure it out.

Buyer beware applies!

Patty

>

> Hi everyone,

>

> My name is and I'm 39 yrs old. I have been miserable with saline implant

since I got them almost 3 years ago. I was online looking for symptoms, surgeons

for explantation, and support and came across this group. I health has gone

downhill since the implants. I have muscle aching and burning, pain underneath

one implant, confusion, memory loss, and a hard time breathing at times. I'm not

sure what is associated to the implants and actually there is so much I can't

even remember all of my symptoms all the time. I even read that muscle twitching

can be associated, and I developed that recently. I am incredibly fatigued. I

had a horrible day today, blaming my husband to the point of causing him to have

to go the the er with chest pains. I am very scared to go through another

surgery. I hate life now. I have a poor 12 yr old that needs me to be healthy so

I've been crying all day again. Thanks.

>

> ------------------------------------

>

>

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