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Hi everyone!!!

I'm new to the group. I have had LUPUS for about 5years now being

diagnosed and I have noticed also that there weren't that many people

saying they had Lupus. I had read a previous message about that I

can't seam to remember who it was from now. I seam to have some of the

same symtems as her/him. I just wanted to possibly conversate a little

more with that particular person. Could some one let me know who that

was?

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  • 1 year later...
Guest guest

- Hi Gail, You are probably over wt because of the portal

hypertension which causes you to retain water + + + .

Are your legs really swollen? Or your abdomen?

If the transplant team needs you to lose wt then they should be

telling you how or refer you to someone that can help.

You asked why they are reluctant to do surgery on over wt people. Its

just that much harder for the body to recover, hard on the heart and

lungs, which need to be in good order for the surgery. Exactly how

much wt do they want you to lose?? As well adipose tissue[AKA fat]

heels poorly, they are just trying to reduce complications during and

following surgery.

Keep pressing them for the answer

I can understand your frustration when unable to keep up on chores

around the farm. I am still really active , But I know if I couldn't

keep up That would be really hard.

enjoy the beautiful summer days

shell in Creston

-- In Hepatitis CSupportGroupForDummies , " gail "

<gaila@...> wrote:

>

> I know that being overweight reduces your chances of treatment

working and I

> have heard of many doctors refusing to treat because of weight.Why

can't a

> person that is overweight get a new liver.Hope someone can fill me

in on

> that.

> Gail

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- Hi Gail, You are probably over wt because of the portal

hypertension which causes you to retain water + + + .

Are your legs really swollen? Or your abdomen?

If the transplant team needs you to lose wt then they should be

telling you how or refer you to someone that can help.

You asked why they are reluctant to do surgery on over wt people. Its

just that much harder for the body to recover, hard on the heart and

lungs, which need to be in good order for the surgery. Exactly how

much wt do they want you to lose?? As well adipose tissue[AKA fat]

heels poorly, they are just trying to reduce complications during and

following surgery.

Keep pressing them for the answer

I can understand your frustration when unable to keep up on chores

around the farm. I am still really active , But I know if I couldn't

keep up That would be really hard.

enjoy the beautiful summer days

shell in Creston

-- In Hepatitis CSupportGroupForDummies , " gail "

<gaila@...> wrote:

>

> I know that being overweight reduces your chances of treatment

working and I

> have heard of many doctors refusing to treat because of weight.Why

can't a

> person that is overweight get a new liver.Hope someone can fill me

in on

> that.

> Gail

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Ask your doctor why the specialist says treating again wouldn't work.

Gail

Dear Gail: I will ask this time. I got a copy of the questions to ask Dr. They didn't say anything about my weight. I am 40 lbs. overweight now because after loosing too much weight on tx I went the opposite & eat whatever & whenever I wanted because I thought I was just going to die anyways. But I haven't died yet & I don't like this extra weight & since I'm fighting for my life, I have started to loose weight & kicking Dr. butts. Tks for the pep talk. Donna

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Guest guest

Ask your doctor why the specialist says treating again wouldn't work.

Gail

Dear Gail: I will ask this time. I got a copy of the questions to ask Dr. They didn't say anything about my weight. I am 40 lbs. overweight now because after loosing too much weight on tx I went the opposite & eat whatever & whenever I wanted because I thought I was just going to die anyways. But I haven't died yet & I don't like this extra weight & since I'm fighting for my life, I have started to loose weight & kicking Dr. butts. Tks for the pep talk. Donna

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Dear : Tks. for the words of encouragement. I'm only 40 lbs. overweight, so I don't think that's a problem. I have started to loose weight thou. I will give me Spec. another chance as long as he discusses why he does what he does or doesn't do in his case! If he doesn't then Gail was kind enough to find other Spec. for me in my area! That gives me hope. I'm sure I could of used anti-depressants, but same as you, there too expensive & my spirits have lifted so much with this support group & you guys are more friendly to my bad boy liver. I'm going to start asking for my lab tests back too. Will they give me my ultra sound test as well do you think? Tks so much Donna---

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Dear : Tks. for the words of encouragement. I'm only 40 lbs. overweight, so I don't think that's a problem. I have started to loose weight thou. I will give me Spec. another chance as long as he discusses why he does what he does or doesn't do in his case! If he doesn't then Gail was kind enough to find other Spec. for me in my area! That gives me hope. I'm sure I could of used anti-depressants, but same as you, there too expensive & my spirits have lifted so much with this support group & you guys are more friendly to my bad boy liver. I'm going to start asking for my lab tests back too. Will they give me my ultra sound test as well do you think? Tks so much Donna---

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-Hey everybody, I'm probably getting everyone mixed up. I hope I have

been replying to the right people. Forgive my confusion. I still

getting the hang of this web site.

Thanxs to all that have responded, hopefully I will get it straight

soon.

Thanxs for your patient's

Shell in Creston

-- In Hepatitis CSupportGroupForDummies , " gail "

<gaila@...> wrote:

>

> I know that being overweight reduces your chances of treatment

working and I

> have heard of many doctors refusing to treat because of weight.Why

can't a

> person that is overweight get a new liver.Hope someone can fill me

in on

> that.

> Gail

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Guest guest

-Hey everybody, I'm probably getting everyone mixed up. I hope I have

been replying to the right people. Forgive my confusion. I still

getting the hang of this web site.

Thanxs to all that have responded, hopefully I will get it straight

soon.

Thanxs for your patient's

Shell in Creston

-- In Hepatitis CSupportGroupForDummies , " gail "

<gaila@...> wrote:

>

> I know that being overweight reduces your chances of treatment

working and I

> have heard of many doctors refusing to treat because of weight.Why

can't a

> person that is overweight get a new liver.Hope someone can fill me

in on

> that.

> Gail

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Guest guest

-Hey everybody, I'm probably getting everyone mixed up. I hope I have

been replying to the right people. Forgive my confusion. I still

getting the hang of this web site.

Thanxs to all that have responded, hopefully I will get it straight

soon.

Thanxs for your patient's

Shell in Creston

-- In Hepatitis CSupportGroupForDummies , " gail "

<gaila@...> wrote:

>

> I know that being overweight reduces your chances of treatment

working and I

> have heard of many doctors refusing to treat because of weight.Why

can't a

> person that is overweight get a new liver.Hope someone can fill me

in on

> that.

> Gail

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Guest guest

Dear Gail: Your so right about Dr. The weight lose & gain is what happened to me on tx too, only I'm big boned. I just hope that it's not ascities!

From: gail <gaila@...>Subject: RE: Re: new beeHepatitis CSupportGroupForDummies Received: Monday, July 14, 2008, 4:10 AM

To many doctors explain nothing and it is up to us to find out the answers to our questions.Specialis ts don't coperate.I gained 45pounds after treatment cause I went down past only being 70 pounds when I finished tx,but after treatment food finally tasted good and I went over board and I gained 70 pounds up from 70pounds to 145 and now I have worked down to 130 and trying to get down to 110 cause I have the bone structure of a 10yr old and over 110 and I am overweight.

Gail

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Dear Gail: Your so right about Dr. The weight lose & gain is what happened to me on tx too, only I'm big boned. I just hope that it's not ascities!

From: gail <gaila@...>Subject: RE: Re: new beeHepatitis CSupportGroupForDummies Received: Monday, July 14, 2008, 4:10 AM

To many doctors explain nothing and it is up to us to find out the answers to our questions.Specialis ts don't coperate.I gained 45pounds after treatment cause I went down past only being 70 pounds when I finished tx,but after treatment food finally tasted good and I went over board and I gained 70 pounds up from 70pounds to 145 and now I have worked down to 130 and trying to get down to 110 cause I have the bone structure of a 10yr old and over 110 and I am overweight.

Gail

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Hi ,

Sorry I took so long to answer this but I just don't have much energy these days. I'm supposed to recieve a pager in case something becomes available before my nephew finishes his assessment to donate.

Luckily, I live in the city(small) with the Regional Health Center for this area, which happens to be larger than the country of France but is not at all densely populated at all. There's a Cancer Centre here too that some people come to from Toronto because of treatment waiting lists!

I don't pay for the trips - Disability covers all - transportation, lodging & food for one day. Then they get the Northern Ontario Health Grant $$, subtract what they spent & cut me a cheque for the balance. I've gotten two cheques from them so far for over $2,000! When time comes for the t p, Disability will cover my apartment in T O while I'm there - I have to cover the food from my usual monthly cheque.

As for pain - so far none! Fingers crossed it stays that way.

Hope I answered all your questions.

SuZie & Sir SpYke the Lord & Master - Disability won't pay for his care !!

Save the Earth - it's the only planet with CHOCOLATE!

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Hi ,

Sorry I took so long to answer this but I just don't have much energy these days. I'm supposed to recieve a pager in case something becomes available before my nephew finishes his assessment to donate.

Luckily, I live in the city(small) with the Regional Health Center for this area, which happens to be larger than the country of France but is not at all densely populated at all. There's a Cancer Centre here too that some people come to from Toronto because of treatment waiting lists!

I don't pay for the trips - Disability covers all - transportation, lodging & food for one day. Then they get the Northern Ontario Health Grant $$, subtract what they spent & cut me a cheque for the balance. I've gotten two cheques from them so far for over $2,000! When time comes for the t p, Disability will cover my apartment in T O while I'm there - I have to cover the food from my usual monthly cheque.

As for pain - so far none! Fingers crossed it stays that way.

Hope I answered all your questions.

SuZie & Sir SpYke the Lord & Master - Disability won't pay for his care !!

Save the Earth - it's the only planet with CHOCOLATE!

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Guest guest

Hi ,

Sorry I took so long to answer this but I just don't have much energy these days. I'm supposed to recieve a pager in case something becomes available before my nephew finishes his assessment to donate.

Luckily, I live in the city(small) with the Regional Health Center for this area, which happens to be larger than the country of France but is not at all densely populated at all. There's a Cancer Centre here too that some people come to from Toronto because of treatment waiting lists!

I don't pay for the trips - Disability covers all - transportation, lodging & food for one day. Then they get the Northern Ontario Health Grant $$, subtract what they spent & cut me a cheque for the balance. I've gotten two cheques from them so far for over $2,000! When time comes for the t p, Disability will cover my apartment in T O while I'm there - I have to cover the food from my usual monthly cheque.

As for pain - so far none! Fingers crossed it stays that way.

Hope I answered all your questions.

SuZie & Sir SpYke the Lord & Master - Disability won't pay for his care !!

Save the Earth - it's the only planet with CHOCOLATE!

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Guest guest

Hi Angels,

I'm 5'8" tall & weigh approx 210 lbs. I'm fat & know it but no one at the t p centre even mentioned my weight.

SuZie

Save the Earth - it's the only planet with CHOCOLATE!

From: angela <angela_heavenbound@...>Subject: Re: new beeHepatitis CSupportGroupForDummies Date: Friday, July 11, 2008, 10:44 AM

The transplant team I saw here in Florida at Shands said that they can not transplant you if you have to much body fat. I am a little overweight and she said I was close to that point. Don't ever lose hope - they could find a cure tomarrow - we just don't know. Sounds like you really need to get new doctors. You just have to keep trying till you find a doctor you click with. What I do is request all my test results and keep them in a file. Then when I go to a new doctor I have everthing right there. I find it easier since you have to see so many doctors. Also, Hep C can cause depression - you may need to address that as well. I did and I felt so much better. I need to get back on the anti-depreasents - I let it go due to $$$ but I really need to figure a way. Best of luck > >> > Hi : You sound just like my carboncopy on the other side> of> Canada. I am now living in New Brunswick & have been for 8 years.> I> used to live in the Yukon. I also have Hep.C geno 1a Stage 3> (fibrosis) & I'm a non-responder since 06. I'm also new to this> site;> also I live on a farm with cows, chick., ducks, etc. I used to> have> horses, but I became too sick to keep them so I had to give them> up & > you must know how horrible that is! At least I get to look

out> into> my neighbours field to spy one of my ponies:( I miss them! This> group> has been fantastic for me in the short time I have been pouring> out> all my problems. I had even given up on life until they taught me> how> to fight for my medical needs since my Dr. hasn't been of much> help.> You will love this site & believe me, their no Dummies. Sincerely> yours Donna> > > > > ------------ --------- --------- --------- --------- --------- ---------> --> Looking for the perfect gift? Give the gift of Flickr!>

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Guest guest

Hi Angels,

I'm 5'8" tall & weigh approx 210 lbs. I'm fat & know it but no one at the t p centre even mentioned my weight.

SuZie

Save the Earth - it's the only planet with CHOCOLATE!

From: angela <angela_heavenbound@...>Subject: Re: new beeHepatitis CSupportGroupForDummies Date: Friday, July 11, 2008, 10:44 AM

The transplant team I saw here in Florida at Shands said that they can not transplant you if you have to much body fat. I am a little overweight and she said I was close to that point. Don't ever lose hope - they could find a cure tomarrow - we just don't know. Sounds like you really need to get new doctors. You just have to keep trying till you find a doctor you click with. What I do is request all my test results and keep them in a file. Then when I go to a new doctor I have everthing right there. I find it easier since you have to see so many doctors. Also, Hep C can cause depression - you may need to address that as well. I did and I felt so much better. I need to get back on the anti-depreasents - I let it go due to $$$ but I really need to figure a way. Best of luck > >> > Hi : You sound just like my carboncopy on the other side> of> Canada. I am now living in New Brunswick & have been for 8 years.> I> used to live in the Yukon. I also have Hep.C geno 1a Stage 3> (fibrosis) & I'm a non-responder since 06. I'm also new to this> site;> also I live on a farm with cows, chick., ducks, etc. I used to> have> horses, but I became too sick to keep them so I had to give them> up & > you must know how horrible that is! At least I get to look

out> into> my neighbours field to spy one of my ponies:( I miss them! This> group> has been fantastic for me in the short time I have been pouring> out> all my problems. I had even given up on life until they taught me> how> to fight for my medical needs since my Dr. hasn't been of much> help.> You will love this site & believe me, their no Dummies. Sincerely> yours Donna> > > > > ------------ --------- --------- --------- --------- --------- ---------> --> Looking for the perfect gift? Give the gift of Flickr!>

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Guest guest

Hi Angels,

I'm 5'8" tall & weigh approx 210 lbs. I'm fat & know it but no one at the t p centre even mentioned my weight.

SuZie

Save the Earth - it's the only planet with CHOCOLATE!

From: angela <angela_heavenbound@...>Subject: Re: new beeHepatitis CSupportGroupForDummies Date: Friday, July 11, 2008, 10:44 AM

The transplant team I saw here in Florida at Shands said that they can not transplant you if you have to much body fat. I am a little overweight and she said I was close to that point. Don't ever lose hope - they could find a cure tomarrow - we just don't know. Sounds like you really need to get new doctors. You just have to keep trying till you find a doctor you click with. What I do is request all my test results and keep them in a file. Then when I go to a new doctor I have everthing right there. I find it easier since you have to see so many doctors. Also, Hep C can cause depression - you may need to address that as well. I did and I felt so much better. I need to get back on the anti-depreasents - I let it go due to $$$ but I really need to figure a way. Best of luck > >> > Hi : You sound just like my carboncopy on the other side> of> Canada. I am now living in New Brunswick & have been for 8 years.> I> used to live in the Yukon. I also have Hep.C geno 1a Stage 3> (fibrosis) & I'm a non-responder since 06. I'm also new to this> site;> also I live on a farm with cows, chick., ducks, etc. I used to> have> horses, but I became too sick to keep them so I had to give them> up & > you must know how horrible that is! At least I get to look

out> into> my neighbours field to spy one of my ponies:( I miss them! This> group> has been fantastic for me in the short time I have been pouring> out> all my problems. I had even given up on life until they taught me> how> to fight for my medical needs since my Dr. hasn't been of much> help.> You will love this site & believe me, their no Dummies. Sincerely> yours Donna> > > > > ------------ --------- --------- --------- --------- --------- ---------> --> Looking for the perfect gift? Give the gift of Flickr!>

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To many doctors explain nothing and it is up to us to find out the answers to our questions.Specialists don't coperate.I gained 45pounds after treatment cause I went down past only being 70 pounds when I finished tx,but after treatment food finally tasted good and I went over board and I gained 70 pounds up from 70pounds to 145 and now I have worked down to 130 and trying to get down to 110 cause I have the bone structure of a 10yr old and over 110 and I am overweight.

Gail

-----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ]On Behalf Of Donna Glen-ZagarSent: July 12, 2008 3:12 AMHepatitis CSupportGroupForDummies Subject: RE: Re: new bee

Ask your doctor why the specialist says treating again wouldn't work. Gail

Dear Gail: I will ask this time. I got a copy of the questions to ask Dr. They didn't say anything about my weight. I am 40 lbs. overweight now because after loosing too much weight on tx I went the opposite & eat whatever & whenever I wanted because I thought I was just going to die anyways. But I haven't died yet & I don't like this extra weight & since I'm fighting for my life, I have started to loose weight & kicking Dr. butts. Tks for the pep talk. Donna

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To many doctors explain nothing and it is up to us to find out the answers to our questions.Specialists don't coperate.I gained 45pounds after treatment cause I went down past only being 70 pounds when I finished tx,but after treatment food finally tasted good and I went over board and I gained 70 pounds up from 70pounds to 145 and now I have worked down to 130 and trying to get down to 110 cause I have the bone structure of a 10yr old and over 110 and I am overweight.

Gail

-----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ]On Behalf Of Donna Glen-ZagarSent: July 12, 2008 3:12 AMHepatitis CSupportGroupForDummies Subject: RE: Re: new bee

Ask your doctor why the specialist says treating again wouldn't work. Gail

Dear Gail: I will ask this time. I got a copy of the questions to ask Dr. They didn't say anything about my weight. I am 40 lbs. overweight now because after loosing too much weight on tx I went the opposite & eat whatever & whenever I wanted because I thought I was just going to die anyways. But I haven't died yet & I don't like this extra weight & since I'm fighting for my life, I have started to loose weight & kicking Dr. butts. Tks for the pep talk. Donna

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To many doctors explain nothing and it is up to us to find out the answers to our questions.Specialists don't coperate.I gained 45pounds after treatment cause I went down past only being 70 pounds when I finished tx,but after treatment food finally tasted good and I went over board and I gained 70 pounds up from 70pounds to 145 and now I have worked down to 130 and trying to get down to 110 cause I have the bone structure of a 10yr old and over 110 and I am overweight.

Gail

-----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ]On Behalf Of Donna Glen-ZagarSent: July 12, 2008 3:12 AMHepatitis CSupportGroupForDummies Subject: RE: Re: new bee

Ask your doctor why the specialist says treating again wouldn't work. Gail

Dear Gail: I will ask this time. I got a copy of the questions to ask Dr. They didn't say anything about my weight. I am 40 lbs. overweight now because after loosing too much weight on tx I went the opposite & eat whatever & whenever I wanted because I thought I was just going to die anyways. But I haven't died yet & I don't like this extra weight & since I'm fighting for my life, I have started to loose weight & kicking Dr. butts. Tks for the pep talk. Donna

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Hi Gail, Wow you must have been like a tooth pick on Tx. I as well

gained wt + + + after my Tx years ago, It is only now that it's

coming off. Thank goodness. If they would only talk to us about all

the sides, So we could be at least aware of what was coming.

Forgive me if I have asked you before, Where are you now with the

Hep? Hang in there you are doing great.

Shell in Creston, PS [do you know how I can change the title of my

mail?? Thanx

>

> To many doctors explain nothing and it is up to us to find out the

answers

> to our questions.Specialists don't coperate.I gained 45pounds after

> treatment cause I went down past only being 70 pounds when I

finished tx,but

> after treatment food finally tasted good and I went over board and

I gained

> 70 pounds up from 70pounds to 145 and now I have worked down to 130

and

> trying to get down to 110 cause I have the bone structure of a 10yr

old and

> over 110 and I am overweight.

> Gail

> RE: Re: new bee

>

>

>

> Ask your doctor why the specialist says treating again

wouldn't

> work.

> Gail

>

> Dear Gail: I will ask this time. I got a copy of the

questions to

> ask Dr. They didn't say anything about my weight. I am 40 lbs.

overweight

> now because after loosing too much weight on tx I went the opposite

& eat

> whatever & whenever I wanted because I thought I was just going to

die

> anyways. But I haven't died yet & I don't like this extra weight &

since I'm

> fighting for my life, I have started to loose weight & kicking Dr.

butts.

> Tks for the pep talk. Donna

>

>

>

>

>

>

>

>

>

> --------------------------------------------------------------------

--

> Looking for the perfect gift? Give the gift of Flickr!

>

>

> --------------------------------------------------------------------

--------

> --

> Looking for the perfect gift? Give the gift of Flickr!

>

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Guest guest

>

>

>

> Hi there all you girls AKA Angels

 

> So much going on in everbody's life. Susie is your nephew {i think

that's who you said] Just going through the donor match stuff now?

As well will you be on call for a potential random match. Regaurd

less I hope it goes well for you, One day at a time. Thank goodness

you have disability funds.

keep the faith

shell in creston

>

>

>

>

> Hi Angels,

>   I'm 5'8 " tall & weigh approx 210 lbs.  I'm fat & know it but no

one  at the t p centre even mentioned my weight.

> SuZie

>  

> Save the Earth - it's the only planet with CHOCOLATE!

>  

>  

>  

>

>

> >

>

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Guest guest

>

>

>

> Hi there all you girls AKA Angels

 

> So much going on in everbody's life. Susie is your nephew {i think

that's who you said] Just going through the donor match stuff now?

As well will you be on call for a potential random match. Regaurd

less I hope it goes well for you, One day at a time. Thank goodness

you have disability funds.

keep the faith

shell in creston

>

>

>

>

> Hi Angels,

>   I'm 5'8 " tall & weigh approx 210 lbs.  I'm fat & know it but no

one  at the t p centre even mentioned my weight.

> SuZie

>  

> Save the Earth - it's the only planet with CHOCOLATE!

>  

>  

>  

>

>

> >

>

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Guest guest

>

>

>

> Hi there all you girls AKA Angels

 

> So much going on in everbody's life. Susie is your nephew {i think

that's who you said] Just going through the donor match stuff now?

As well will you be on call for a potential random match. Regaurd

less I hope it goes well for you, One day at a time. Thank goodness

you have disability funds.

keep the faith

shell in creston

>

>

>

>

> Hi Angels,

>   I'm 5'8 " tall & weigh approx 210 lbs.  I'm fat & know it but no

one  at the t p centre even mentioned my weight.

> SuZie

>  

> Save the Earth - it's the only planet with CHOCOLATE!

>  

>  

>  

>

>

> >

>

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