Guest guest Posted July 3, 2002 Report Share Posted July 3, 2002 Hi, Allie. It is confusing, trying to figure things out. Oral apraxia can coincide with verbal apraxia, but verbal apraxia does happen without oral apraxia. What got me puzzled was reading the opposite, that apraxia happens with voluntary speech, but not involuntary movements such as eating, etc. Apparently, though, oral apraxia (and sensory problems) can result in feeding problems, etc. So my son seems to be getting knocked around by both of them, but it definitely isn't the rule as far as I know. Betsy > >So now I am just totally confused. Does anyone >have kids with just verbal apraxia and that have no problem moving >their tongue around except to say the words? > >Thank you, > >Allie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2002 Report Share Posted July 4, 2002 > Does anyone > have kids with just verbal apraxia and that have no problem moving > their tongue around except to say the words? > Hi Allie. Grace has no problem with her tongue either. It just seems to be in saying words. She can blow bubbles, kisses things like that with her tongue, she just can't get it to move right to say words. The thing I notice with her is when you try to get her to repeat words she does right away and it's like in her mind she thinks she is saying the word except to everyone else it is just sounds like a foreign language. Does anyone else's child talk all the time only you don't know what they are saying. Grace is constantly talking and moving her hands and laughing like she knows exactly what she is saying to me, but I have no clue. It is so frustrating for her. I also notice that if you keep repeating a word, like bubble, if you say " bu " then " ble " and get her to keep repeating the two syllables over and over then she will say bubble but to just say bubble spontaneoulsy she is unable. Sorry to ramble, just wanted to see if this is like anyone elses child. Marsha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2002 Report Share Posted July 4, 2002 Allie, This is , been trying to find your email. Have not been back to the pool in a while, but maybe we can chat sometime. Not sure if you are aware, but Ballard is closing it's doors. I had gotten into the TALK program, so much for that! I am also waiting for are delivery of ProEfa. Hopefully, I will see an improvement. Feel free to email me privately (Veersrt@...) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2002 Report Share Posted July 4, 2002 Hi Marsha. Happy4th! My son sounds like yr daughter. He is speaking alot, sometimes more clearly than other times, but mostly, he is not understandable but yet he know exactly what he is saying. Fortunately, I think I get more frustrated than he does. Randi mom to Tyler 9/5/95 and Dylan 7/4/99 - my Yankee Doodle Birthday Boy! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2002 Report Share Posted July 4, 2002 " " talks " she keeps her mouth closed, and talks with the back of her throat. I can tell that she is saying words and sometimes I understand what she said. Do other apraxic kids do this? " My son is 3y 3 m and he frequently makes sounds from the back of his throat with his mouth closed. He does not carry on whole conversations but he does use the back of his throat. " Also, when she is goofing around with her brother and sister she can move her tongue around with no problems and can lick thing off her mouth so I don't think she as oral apraxia. " My son has been diagnosed severe oral apraxia, he has been able to drink from a straw since he was about 12 months old but otherwise if he is asked to move his tongue on command or make certain faces with his mouth he can not do it without touch cues. He will lick things but not on command, just when in a spontaneous situation. I think there are plenty of children with just verbal apraxia but I do not know the statistics. I hope this is of some help. Daphne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2002 Report Share Posted July 4, 2002 My daughter is pure verbal apraxic. Marie Hi, Allie. >It is confusing, trying to figure things out. Oral apraxia can coincide >with verbal apraxia, but verbal apraxia does happen without oral apraxia. <snip> So my son seems to be getting knocked around by both >of them, but it definitely isn't the rule as far as I know. Betsy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2002 Report Share Posted July 4, 2002 Marsha - My son Zach (4) talks ALL the time and has since he was about 2.5. He's about 70% understandable to strangers but largely because he stays within his " known " phrases. He's pretty shy - not about talking (he doesn't realize he speaks differently, either) - just in general. For us, he's about 65% understandable because of the breadth of his conversations. He also doesn't have problems moving his tongue or copying faces we make. He did have a problem kissing until he was over 2- he used to smack his tongue on his upper lip to make the kissing sound, but didn't get that he was supposed to pucker. Just wanted to throw in my .02! Marina > > Does anyone > > have kids with just verbal apraxia and that have no problem moving > > their tongue around except to say the words? > > > > Hi Allie. Grace has no problem with her tongue either. It just seems to be in > saying words. She can blow bubbles, kisses things like that with her tongue, > she just can't get it to move right to say words. The thing I notice with her > is when you try to get her to repeat words she does right away and it's like > in her mind she thinks she is saying the word except to everyone else it is > just sounds like a foreign language. Does anyone else's child talk all the > time only you don't know what they are saying. Grace is constantly talking > and moving her hands and laughing like she knows exactly what she is saying > to me, but I have no clue. It is so frustrating for her. I also notice that > if you keep repeating a word, like bubble, if you say " bu " then " ble " and get > her to keep repeating the two syllables over and over then she will say > bubble but to just say bubble spontaneoulsy she is unable. Sorry to ramble, > just wanted to see if this is like anyone elses child. > > Marsha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2002 Report Share Posted July 4, 2002 Allie, The first thing that they had to teach Abigail is to talk with her mouth open. Her therapist worked constantly to open her mouth- lots of bubbles, whistles, straws - oral motor excercises. She would say things like loud or big sounds - i hate that i can't remember the exact word she used now.. amazing what a year will do. Anyway, Marsha had mentioned saying word is syllables. That is exactly what our therapist has me doing as we read books. Any book like the hungry catepillar, anything with the multiple syllable words - we clap out the syllables and that helps her say them... otherwise she misses most of the word... I agree that this method really helps. Abigail- will be 4 July 31st was diagnosed with oral verbal apraxia early this year, but started receiving speech therapy a few months before her 3rd birthday. Hope this helps. [ ] " talking " I was just curious to see if anyone else's child did this. When " talks " she keeps her mouth closed, and talks with the back of her throat. I can tell that she is saying words and sometimes I understand what she said. For example the other day my other daughter held the door open for me as we were going out. I said thank you to her and at the same time was going out too and she said thank you with her mouth closed. She can have whole conversations with me like this, of course 99% of the time I don't understand her. Do other apraxic kids do this? Also, when she is goofing around with her brother and sister she can move her tongue around with no problems and can lick thing off her mouth so I don't think she as oral apraxia. Her SLP things that she has verbal apraxia, based on " losing words " and regression. However after reading about apraxia it said that it was rare to have verbal without oral apraxia. So now I am just totally confused. Does anyone have kids with just verbal apraxia and that have no problem moving their tongue around except to say the words? Thank you, Allie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2002 Report Share Posted July 4, 2002 Hi! My son, was EXACTLY the same way, when he started pre-school, actually starting in nursery school (2 1/2)! He would babbble it up, but noone could realy understand him with the exception of of certain words and phrases that were only understandable to familiar listners. Sponateous speech, like you metioned, was pretty much zero. He has no underlying conditions (ie, autism, CP, etc). But, with ST, he has overcome the " apraxia " part of his speech delay (yea!) and is now " learining " language. So yes, my son was just like that! Vivian in HOT Phoenix Mom to DJ (5.0, language delay) <<<Hi Allie. Grace has no problem with her tongue either. It just seems to be in > saying words. She can blow bubbles, kisses things like that with her tongue, > she just can't get it to move right to say words. The thing I notice with her > is when you try to get her to repeat words she does right away and it's like > in her mind she thinks she is saying the word except to everyone else it is > just sounds like a foreign language. Does anyone else's child talk all the > time only you don't know what they are saying. Grace is constantly talking > and moving her hands and laughing like she knows exactly what she is saying > to me, but I have no clue. It is so frustrating for her. I also notice that > if you keep repeating a word, like bubble, if you say " bu " then " ble " and get > her to keep repeating the two syllables over and over then she will say > bubble but to just say bubble spontaneoulsy she is unable. Sorry to ramble, > just wanted to see if this is like anyone elses child. > > Marsha>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2002 Report Share Posted July 5, 2002 Hi - I read your email, I can only tell you about my boys. At 2 years of age they were diagnosed with oral apraxia, now they are talking and moving their mouths and tongue alot more their speech therapist told me they have verbal apraxia. They push their tongue in front of their mouth. Not in the back of their mouth. And they talk very loud. Everything is a D sound " dound dtairs " . We all have been working on F's and S's for almost a year now, and they are starting to correct themselves. JOYA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2006 Report Share Posted June 17, 2006 > > Sorry this is so long. I don't want to worry my hubby or kids with > > this and yet I feel like I am going to be enveloped by saddness and > > fear. > > > > in St. Louis I'd really suggest sharing your feelings with your husband. You need support right now and he can't help if he doesn't know how you feel. Besides, this disease will impact your family and " hiding " it might make things harder on everyone... Good luck... Quote Link to comment Share on other sites More sharing options...
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