Re: Long time posting Tawny

[Guest guest]

It's good to hear from you again, Tawny, but I am so

sorry that things have been so rough on your

medically. I will keep your little granddaughter and

yourself in my prayers, as always, and remember to

take care of yourself too along with everyone else -

Kathe in CA

--- tdianaok <tdianaok@...> wrote:

> It's been so long since I have posted. I feel like

> things have been

> spinning out of control. I have a granddaughter,

> she will be two

> weeks old on Monday. Her name is Chloe Makayla, she

> weighed 7.6, and

> 19inches long. She is a beautiful girl. We got bad

> news on Friday.

> She tested positive for cystic fibrosis. In two

> weeks she will be

> getting a sweat test done at OU Medical Center in

> OKC, I suppose to

> confirm the diagnose. I have been searching for

> information on this

> disease. I have just been so upset over the news.

> I have been to so many doctors, I need a vacation.

> I went to a

> neurologist with all my symptoms they wanted to see

> if I could have

> MS. With the MRI brain scan, they don't think so,

> but if other

> symptoms, they will do a spinal tap. They did other

> tests. I have

> neurofibromatosis, which tumors grow on the nerves.

> I have about 4

> that have to be cut out in my brain. They usually

> are not cancerous,

> so hopefully everything will be ok. They also

> diagnosed me with

> peripheral neuropathy from the Lupus. The doctor

> talked to me about

> Lyme's Disease, a lot of my symptoms seem like it.

> I have been sick

> for so long. So, I will discuss this to my rheumy

> on my next visit.

> That would be something to have LD all this time,

> and not RA.

> I went to a hematologist Friday. Have to get lab

> work done, hep C

> test, and ultrasound of my liver. So, all I have

> been doing is going

> to doctors, and too many hospitals. It just seems

> like I get worse

> each year, instead of better.

> I have missed my RA family. It has grown so much,

> and a big welcome

> to all the new members. I hope soon I can feel

> better, and get back

> on here, I miss you guys.

> If anyone would like to see a pic of my

> granddaughter you can check

> out the hospital site. www.unityhealthcenter.net

> click on web

> nursery, and put in March 20 O6 for the birth date,

> and click on

> Chloe Makayla

> Please, keep me, and the family in my prayers, love

> you all, Tawny

>

>

>

>

Kathe

" To ride a horse is to borrow freedom. "

__________________________________________________

[Guest guest]

Kathe,

I am glad to be able to spend some time on the board. Thanks so much

for your prayers, and know your in mine, hugs Tawny

>

> > It's been so long since I have posted. I feel like

> > things have been

> > spinning out of control. I have a granddaughter,

> > she will be two

> > weeks old on Monday. Her name is Chloe Makayla, she

> > weighed 7.6, and

> > 19inches long. She is a beautiful girl. We got bad

> > news on Friday.

> > She tested positive for cystic fibrosis. In two

> > weeks she will be

> > getting a sweat test done at OU Medical Center in

> > OKC, I suppose to

> > confirm the diagnose. I have been searching for

> > information on this

> > disease. I have just been so upset over the news.

> > I have been to so many doctors, I need a vacation.

> > I went to a

> > neurologist with all my symptoms they wanted to see

> > if I could have

> > MS. With the MRI brain scan, they don't think so,

> > but if other

> > symptoms, they will do a spinal tap. They did other

> > tests. I have

> > neurofibromatosis, which tumors grow on the nerves.

> > I have about 4

> > that have to be cut out in my brain. They usually

> > are not cancerous,

> > so hopefully everything will be ok. They also

> > diagnosed me with

> > peripheral neuropathy from the Lupus. The doctor

> > talked to me about

> > Lyme's Disease, a lot of my symptoms seem like it.

> > I have been sick

> > for so long. So, I will discuss this to my rheumy

> > on my next visit.

> > That would be something to have LD all this time,

> > and not RA.

> > I went to a hematologist Friday. Have to get lab

> > work done, hep C

> > test, and ultrasound of my liver. So, all I have

> > been doing is going

> > to doctors, and too many hospitals. It just seems

> > like I get worse

> > each year, instead of better.

> > I have missed my RA family. It has grown so much,

> > and a big welcome

> > to all the new members. I hope soon I can feel

> > better, and get back

> > on here, I miss you guys.

> > If anyone would like to see a pic of my

> > granddaughter you can check

> > out the hospital site. www.unityhealthcenter.net

> > click on web

> > nursery, and put in March 20 O6 for the birth date,

> > and click on

> > Chloe Makayla

> > Please, keep me, and the family in my prayers, love

> > you all, Tawny

> >

> >

> >

> >

>

>

> Kathe

>

> " To ride a horse is to borrow freedom. "

>

>

>

> __________________________________________________

>