Re: FM: We've Come a Long Way

[Guest guest]

I don't know who wrote this. But FM was well known in the 1980's as a

legit disease under Arthritis. Many support groups and they were all

connected to the National support group that is now in Arizona, run by

Thorsen. They started in Bakersfield California, and they

have been to thousands of medical conferences in the last 20 some

years educating doctors on Fibro.

I have many articles that talk about FM or Fibrositis as it was called

until 1985.

I went to the main Lupus Support groups in 1985 and learned about

fibrositis/fibromyalgia from a medical doctor who was touring the

country from NIH.

There was Primary Fibro and Secondary Fibro.

I still have the flyer and I have the support group's number in my

file cabinet.

Fibromyalgia doctors actually came to Washington DC in 1994, to speak

on how to treat patients who have a disease process with out

definitive blood or other medical results.

In fact these FM doctors told the CFS doctors in Washington DC (Bell,

Klimas, Hyde, Shelekov,Goldstein, , and many other CFS " experts " ,

that they were really not serving the patient by giving them the

diagnosis of CFS and then saying take this anti-depressant there is

nothing we can do to help you.

It is on record in Freedom of information.

I was there.

meghan

>

> We've Come a Long Way, Baby! www.about.com

>

> Then...: Seeing a casual mention of fibromyalgia in a national

> magazine recently caused me to reflect upon just how far we have

> come in the past 10 years. When I was first diagnosed in 1996, it

> was challenging to find any information about fibromyalgia (FM). And

> much of what little I did find, we now know to be incorrect.

[Guest guest]

Hi,

yes, when I was recently in the Hospital for a test, they were very aware of the

increased pain I had...it was good

Jeanette French

FM: We've Come a Long Way

We've Come a Long Way, Baby! www.about.com

Then...: Seeing a casual mention of fibromyalgia in a national

magazine recently caused me to reflect upon just how far we have

come in the past 10 years. When I was first diagnosed in 1996, it

was challenging to find any information about fibromyalgia (FM). And

much of what little I did find, we now know to be incorrect.