Re: Need Group Help

[Guest guest]

CJ

You have found the right place! You are welcome to vent, laugh or cry here and

we will do it right along with you.

I'm so sorry you are in so much pain, but this flare will eventually pass (that

is what keeps me from doing something stupid when it gets really bad) and you

will feel better or at least at a level tolerable.

I recently fired my rheumy also........seems like their aren't enough of them

judging from the wait times for an appt. I wish you lots of luck with your new

one.

Again, Welcome!!

Hugs

[Guest guest]

CJ,

Sorry to hear about your situation. I am new to all this and was

wondering how long you were on Methotrexate?

>

> Hi... I was diagnosed with RA 30 years ago, so this is nothing new

to

> me. I didn't become totally disabled from the disease until 16

years

> ago. Since then have been a series of drugs, damaged joints,

surgeries,

> and of course pain and limitation. Through it all I've been able

to

> bounce back and live with an UP spirit. In November I was put on

> oxygen because of the damage done by long term use of

Methotrexate. A

> couple months ago I was taken off Metho and left with a small dose

of

> prednisone and Mobic. Arava was offered but I read nothing but

bad

> stuff about it's use. I'm just coming out of a six week flareup

of

> pain like I've never had in my life! Even my fingernails were

> painful. I've never joined a support group before for anything,

but I

> think I'd better start to connect with others in my boat. I need

> feedback on various meds and their pros & cons from your

experience. I

> fired my arrogant, pompous, rude Rheumatologist and can't get in

to see

> another until early October. In the meantime, someone tell me

that

> there is a way to have a life beyond just getting through the pain.

>

> CJ

>

[Guest guest]

>Hi CJ'

You have come to the right place. We are all in the same boat...it's

just that some of us have more leaks inthe boat and have to paddle

harder!! This is a great place to learn and to share ideas....so ask

all your questions....someone here is on the same meds ,has the same

symptoms, or has had the same side effects..as you do...you only have

to ask your questions to have them answered!!! Welcome.....jenna

> Hi... I was diagnosed with RA 30 years ago, so this is nothing new

to

> me. I didn't become totally disabled from the disease until 16

years

> ago. Since then have been a series of drugs, damaged joints,

surgeries,

> and of course pain and limitation. Through it all I've been able

to

> bounce back and live with an UP spirit. In November I was put on

> oxygen because of the damage done by long term use of

Methotrexate. A

> couple months ago I was taken off Metho and left with a small dose

of

> prednisone and Mobic. Arava was offered but I read nothing but bad

> stuff about it's use. I'm just coming out of a six week flareup of

> pain like I've never had in my life! Even my fingernails were

> painful. I've never joined a support group before for anything,

but I

> think I'd better start to connect with others in my boat. I need

> feedback on various meds and their pros & cons from your

experience. I

> fired my arrogant, pompous, rude Rheumatologist and can't get in to

see

> another until early October. In the meantime, someone tell me that

> there is a way to have a life beyond just getting through the pain.

>

> CJ

>

[Guest guest]

>

> In November I was put on

> oxygen because of the damage done by long term use of Methotrexate.

Hello, CJ I am on Mxt and have been of about 2 yrs now,, what is this

lung damage you talk about? That has me scared,,

I also take Enbrel once a week and other meds for my RA but only a

sleep pill for the Fribo.

Janet IN IL