Fw: MDL question and response to Bev about getting well

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----- Original Message -----

From: " by way of ilena rose " <JMarke@...>

<Recipient List Suppressed:;>

Sent: Saturday, February 09, 2002 11:00 AM

Subject: MDL question and response to Bev about getting well

> Everyone writes about the Dow settlement, no one seems to talk about how

> they are doing in getting money from MDL. I'd love to hear. I myself have

> been unable to meet their criteria for long term disability, despite

> peripheral neuropathy, because of not quite meeting exact criteria. Has

> anyone collected long term disabilitiy money? Jane

>

> I sent this to Bev; if you'd like to send it on to others, that's fine

with

> me. Jane

>

> ~~~~~~~~ Bev, I don't know your story.

>

>

> But, I want to tell you, I'm getting well. It's 2 year since my

> explantation. At that time I had a diffuse connective tissue, autoiommune

> disorder. It affected my nerves (peripheral neuropathy), my sinuses

> (constantly inflamed and attacking themselves, i had so many infections I

> was on intraveous antibiotics and had surgery. Muscle and joint pains all

> the time. Muscle stiffness. Joint pains and aches, swollen joints.

> Autoimmune skin rash from the sun. Diarrhea, constipation, problems with

> bladder function and bowel from the nerve damage. Problems with balance

> and walking. The first year was still hard, the neuropathy got worse.

But

> I started getting fewer infections. This past year I have felt

> increasingly well. The thing which helped more than anything was

> bodywork--myofascial release physical therapy which helped the pain, fibro

> pain, and released pressure on the nerves. Also yoga helps a lot.

>

> I take supplements with the peripheral neuropathy support board at mass

> general's website recommend. I am on partial disability and work part

> time. I'm a doctor. Everything is so much better than it was. I continue

> to improve, even though the neurologists say I have a chronic degenerative

> disease: pn. Rest rest rest is the key for me, also. So, whatever you

> have, if you get the damn things out, you will get worse immediately from

> the disruption of the silicone, but then gradually improve. It's the only

> way. I'm sure there are many other stories like this. Oh, the cognitive

> problems are improved, too. Wish you the best, love to you, jane

>

>