Re: Re: Rhumatoid lung disease??Patsy to Jeanine

November 15, 2006

Thank you so much for your info. I haven't written sooner because my new

computer had to be returned to the company. I am writing to you from school.

(I am a part-time teacher).

My doctor might try the old fashioned gold. I am not familiar with Orencia.

Please let me know how it works.

Sincerely,

Patsy

Jeanine <songbirdscout@...> wrote:

Patsy,

I had a similar problem a couple of years ago. I kept getting

Brocnichitis, and finally ended up with Pneumonia. My rheumy had

the same reaction. He took me off of everything until my lungs were

clear and I couldn't stand the pain anymore. I was taking Humira at

the time. The problem with almost all of the new meds is that they

make you more susceptible to infections, especially upper

respiratory. My rheumy referred me to an infectios disease

specialist. His response was that once the infection was clear, and

I had had a pneumonia vaccine, that I had to make a decision between

pain levels and infections. I went back on my Humira after about 4

months. Unfortunaley, until the infection is clear, there isn't a

whole lot you can do. I wish you luck with clearing the infection.

I will say that when I was on Enbrel I was sick almost every month.

I missed an average of 1 week of meds every month. When I went on

the Humira I was sick about once every 3 months, but it was

typically more severe. Now I am waiting to start Orencia because

the others have stopped working. I will be interested to see how I

do on it.

Good luck,

Jeanine from FL.

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