Re: FM: Digestive disturbances

[Guest guest]

I have never been diagnosed with FM, only CFIDS, but I have been having

difficulty swallowing, not with the action as much as getting the food all the

way down. It seems to get stuck in the middle and I have to keep drinking to

get it to go down. It is now a daily issue, no matter how small the bites, no

matter how much I chew, everything gets stuck, it's a scary feeling. Once, it

ended up coming back up because it wouldn't go down. Do others have this too?

Jane

cfpenpal wrote:

Digestive disturbances, abdominal pain, and bloating are quite common

with FM as are constipation and/or diarrhea. Together these symptoms

are usually known as irritable bowel syndrome or IBS. FM patients may

also have difficulty swallowing food. Researchers think this may be a

result of abnormalities in smooth muscle functioning of the esophagus.

[Guest guest]

Hi Jane,

I get the same thing. Especially with things like meat, breads etc..and It

hurts trying to get it to go down my throats. I have to get a drink right

away. I try not to eat meat, a it is the worst for me,

Jeanette

Re: FM: Digestive disturbances

I have never been diagnosed with FM, only CFIDS, but I have been having

difficulty swallowing, not with the action as much as getting the food all

the way down. It seems to get stuck in the middle and I have to keep

drinking to get it to go down. It is now a daily issue, no matter how small

the bites, no matter how much I chew, everything gets stuck, it's a scary

feeling. Once, it ended up coming back up because it wouldn't go down. Do

others have this too?

Jane

cfpenpal wrote:

Digestive disturbances, abdominal pain, and bloating are quite common

with FM as are constipation and/or diarrhea. Together these symptoms

are usually known as irritable bowel syndrome or IBS. FM patients may

also have difficulty swallowing food. Researchers think this may be a

result of abnormalities in smooth muscle functioning of the esophagus.

[Guest guest]

Jeanette,

Have you been dxd with FM?

Jane

Jeanette French wrote:

Hi Jane,

I get the same thing. Especially with things like meat, breads etc..and It

hurts trying to get it to go down my throats. I have to get a drink right

away. I try not to eat meat, a it is the worst for me,

Jeanette

[Guest guest]

Yes, but why are the abnormalities there? Perhaps because of the neck

injuries many people with FMS have? My Mom's IBS went away in two

weeks after using a good probiotic superfood (so did my Dad's

constipation!) My Mom has been using a magnetic necklace for years

though and has never had a problem with her neck. It puts circulation

into the area.

Also just a sidenote about eating meat and bread: both of these foods

should be avoided when you have CF or FMS as they are very

acidifying. Only about 13% of meat protein can be utilized; the rest

turns into uric acid. The body can manufacture protein if it has the

amino acids necessary for this.

If you absolutely must eat meat, be sure to chew it at least 40 times

before swallowing which will help with digestion (probably with

swallowing too!). Be sure it's organic meat too as meat is one of the

most polluted substances passed off for food. Unless you grow it

yourself, it is likely full of hormones, antibiotics and has been fed

some rather disgusting things that no animal should be forced to eat.

Yes, I do eat meat occasionally, only organic!

Have a great day!

Sharon

>

> Digestive disturbances, abdominal pain, and bloating are quite

common

> with FM as are constipation and/or diarrhea. Together these symptoms

> are usually known as irritable bowel syndrome or IBS. FM patients

may

> also have difficulty swallowing food. Researchers think this may be

a

> result of abnormalities in smooth muscle functioning of the

esophagus.

>

> Source: FM Monograph - Fibromyalgia: Symptoms, Diagnosis, Treatment

&

> Research

>

[Guest guest]

Hi Jane,

yes, and CFS and PA. I just read the article where folks with FM have

problems with swallowing due to the smooth muscle involvement.

Jeanette

Re: FM: Digestive disturbances

> Jeanette,

> Have you been dxd with FM?

> Jane

>

> Jeanette French wrote:

> Hi Jane,

> I get the same thing. Especially with things like meat, breads etc..and It

> hurts trying to get it to go down my throats. I have to get a drink right

> away. I try not to eat meat, a it is the worst for me,

> Jeanette

>

>

>

>

>

>

>

>

[Guest guest]

Hi Sharon,

I try to eat meat rarely, but it is fixed everyday here for the male who

lives here, lol. I only eat the veggies, but I do like bread, but even that

isn't eaten often.

Thanks

Jeanette

Re: FM: Digestive disturbances

> Yes, but why are the abnormalities there? Perhaps because of the neck

> injuries many people with FMS have? My Mom's IBS went away in two

> weeks after using a good probiotic superfood (so did my Dad's

> constipation!) My Mom has been using a magnetic necklace for years

> though and has never had a problem with her neck. It puts circulation

> into the area.

[Guest guest]

Hi Jeanette,

I just read that too - I'm going to my doc next week and am going to ask him

about FM. I'm seeing an attorney today and she suggested over the phone, that I

see a Rheumatologist, which I have never seen. That may end the question

immediately. BTW, what is PA?

Jane

Jeanette French wrote:

Hi Jane,

yes, and CFS and PA. I just read the article where folks with FM have

problems with swallowing due to the smooth muscle involvement.

Jeanette

[Guest guest]

Jane,

My Mother-in-law has that problem and they told her it was a hietal hernia. Do

you also have reflux and IBS problems?that's how hers started. She's had a lot

of stomach problems, the last few years it's grown worse. I think she has FM

because she has a lot of the same symptoms I do, but she won't see a Dr. about

it. (I think she's either in denial, or she maybe doesn't believe it's really a

disease.) Anyway, I hope you find out and you start feeling better.

God bless,

Jane Luft wrote:

I have never been diagnosed with FM, only CFIDS, but I have been having

difficulty swallowing, not with the action as much as getting the food all the

way down. It seems to get stuck in the middle and I have to keep drinking to

get it to go down. It is now a daily issue, no matter how small the bites, no

matter how much I chew, everything gets stuck, it's a scary feeling. Once, it

ended up coming back up because it wouldn't go down. Do others have this too?

Jane

cfpenpal wrote:

Digestive disturbances, abdominal pain, and bloating are quite common

with FM as are constipation and/or diarrhea. Together these symptoms

are usually known as irritable bowel syndrome or IBS. FM patients may

also have difficulty swallowing food. Researchers think this may be a

result of abnormalities in smooth muscle functioning of the esophagus.

[Guest guest]

Hi,

I can't remember if I posted on this before, but I have the same problem,

and it hurts when it gets stuck half way down..

Jeanette

Re: Re: FM: Digestive disturbances

Jane,

My Mother-in-law has that problem and they told her it was a hietal

hernia. Do you also have reflux and IBS problems?that's how hers started.

She's had a lot of stomach problems, the last few years it's grown worse. I

think she has FM because she has a lot of the same symptoms I do, but she

won't see a Dr. about it.

[Guest guest]

,

I went to my doctor today, and he is sending me for a BA Swallow

tommorrow......we'll see what happens next. I think my doctor is in a bit of

denial too - He still is not convinced CFIDS is what I have, he said he's never

heard of anyone with CFIDS that slurs and has abnormal gait - which i have quite

often, on the really exhausted days, like today. who knows???? Thanks for the

info tho, maybe that's what's going on. He also said I may go for a spinal tap

- eek! Anyone had one before?

Howton wrote:

Jane,

My Mother-in-law has that problem and they told her it was a hietal hernia. Do

you also have reflux and IBS problems?that's how hers started. She's had a lot

of stomach problems, the last few years it's grown worse. I think she has FM

because she has a lot of the same symptoms I do, but she won't see a Dr. about

it. (I think she's either in denial, or she maybe doesn't believe it's really a

disease.) Anyway, I hope you find out and you start feeling better.

God bless,

[Guest guest]

will digestive enymes help?

Re: Re: FM: Digestive disturbances

,

I went to my doctor today, and he is sending me for a BA Swallow

tommorrow......we'll see what happens next. I think my doctor is in a bit of

denial too - He still is not convinced CFIDS is what I have, he said he's never

heard of anyone with CFIDS that slurs and has abnormal gait - which i have quite

often, on the really exhausted days, like today. who knows???? Thanks for the

info tho, maybe that's what's going on. He also said I may go for a spinal tap

- eek! Anyone had one before?

[Guest guest]

Hi , no I haven't but sounds like he may suspect MS, good luck...

Jeanette

Re: Re: FM: Digestive disturbances

> ,

> I went to my doctor today, and he is sending me for a BA Swallow

> tommorrow......we'll see what happens next. I think my doctor is in a bit

> of denial too - He still is not convinced CFIDS is what I have, he said

> he's never heard of anyone with CFIDS that slurs and has abnormal gait -

> which i have quite often, on the really exhausted days, like today. who

> knows???? Thanks for the info tho, maybe that's what's going on. He also

> said I may go for a spinal tap - eek! Anyone had one before?

[Guest guest]

Hi, my last post was supposed to be to Jane, not , sorry...

Jeanette

Re: Re: FM: Digestive disturbances

> ,

> I went to my doctor today, and he is sending me for a BA Swallow

> tommorrow......we'll see what happens next. I think my doctor is in a bit

> of denial too - He still is not convinced CFIDS is what I have, he said

> he's never heard of anyone with CFIDS that slurs and has abnormal gait -

> which i have quite often, on the really exhausted days, like today. who

> knows???? Thanks for the info tho, maybe that's what's going on. He also

> said I may go for a spinal tap - eek! Anyone had one before?

>

> Howton wrote:

> Jane,

> My Mother-in-law has that problem and they told her it was a hietal

> hernia. Do you also have reflux and IBS problems?that's how hers started.

> She's had a lot of stomach problems, the last few years it's grown worse.

> I think she has FM because she has a lot of the same symptoms I do, but

> she won't see a Dr. about it. (I think she's either in denial, or she

> maybe doesn't believe it's really a disease.) Anyway, I hope you find out

> and you start feeling better.

> God bless,

>

[Guest guest]

Sounds like underactive thyroid to me.

Barbie

[Guest guest]

I've been taking digestive enzymes for 3 months now, they seem to help with the

bloating and nauseated feeling, but the getting food caught halfway down is just

a daily thing now! Keeps it interesting right? LOL

Jane

fagbemi1@... wrote:

will digestive enymes help?

[Guest guest]

Funny thing is, the neurologists have already ruled out MS, but my doc (who by

the way, dxd me with CFIDS from the start!) mentioned MS again

yesterday.......wouldn't I have the same symptoms everyday if it was MS?

Jane

Jeanette French wrote:

Hi , no I haven't but sounds like he may suspect MS, good luck...

Jeanette

[Guest guest]

Hi Jane,

MS symptoms come and go like CFS can. There can be flare up, there can be times

when symptoms go away for awhile. And times when they are severe. There are many

treatments, new treatments out there now for MS, and I have a friend who had it.

She still works, but does miss some days. My sister in law just attended a

seminar for her credit hours to maintain her Physical therapy lic., and it was

on MS. Some folks have it mildly, some severe, but most have the mild form and

can lead a long life. I hope you don't have it, but if it turns out you do,

don't despair, it isn't a death sentence. Let us know,

Take care

Jeanette

Re: FM: Digestive disturbances

Funny thing is, the neurologists have already ruled out MS, but my doc (who by

the way, dxd me with CFIDS from the start!) mentioned MS again

yesterday.......wouldn't I have the same symptoms everyday if it was MS?

Jane

Jeanette French wrote:

Hi , no I haven't but sounds like he may suspect MS, good luck...

Jeanette

[Guest guest]

I know Jane, I always make sure I have water near by if I eat bread or meat...

Jeanette

Re: FM: Digestive disturbances

I've been taking digestive enzymes for 3 months now, they seem to help with

the bloating and nauseated feeling, but the getting food caught halfway down is

just a daily thing now! Keeps it interesting right? LOL

Jane

fagbemi1@... wrote:

will digestive enymes help?

[Guest guest]

WOW Jeannette - Thank you so much - I had no idea, so......that leaves me to

wonder, how do they determine it's MS? Wouldn't the brain, spine/cervical MRI's

show MS? I'm mean, I've been to 3 neurologists, wouldn't someone have detected

it by now? HA, what am I thinking, putting all my faith into physicians? LOL

Thanks for all your info - Jane

Jeanette French wrote:

Hi Jane,

MS symptoms come and go like CFS can. There can be flare up, there can be times

when symptoms go away for awhile. And times when they are severe. There are many

treatments, new treatments out there now for MS, and I have a friend who had it.

She still works, but does miss some days. My sister in law just attended a

seminar for her credit hours to maintain her Physical therapy lic., and it was

on MS. Some folks have it mildly, some severe, but most have the mild form and

can lead a long life. I hope you don't have it, but if it turns out you do,

don't despair, it isn't a death sentence. Let us know,

Take care

Jeanette

[Guest guest]

Oh, me too! I drink tons of water a day! It's funny to see my kids eat a

meal..... my gosh, they can just shovel it in, without a sip! I'm over here,

little bitty bites, chew the *% & $ outta everything and washing it

down.............Ah......to be young again! LOL

Jeanette French wrote:

I know Jane, I always make sure I have water near by if I eat bread or

meat...

Jeanette

Re: FM: Digestive disturbances

I've been taking digestive enzymes for 3 months now, they seem to help with the

bloating and nauseated feeling, but the getting food caught halfway down is just

a daily thing now! Keeps it interesting right? LOL

Jane

[Guest guest]

Jeanette,

I read your post. They think you have MS. I have not check back post. If

you eat grains and If they don't know what you have, check into gluten

ataxia and Celica's disease. This can explain unknown problems.

Shari

_____

From: CFAlliance [mailto:CFAlliance ] On

Behalf Of Jane Luft

Sent: Tuesday, June 06, 2006 9:07 AM

To: CFAlliance

Subject: Re: FM: Digestive disturbances

Funny thing is, the neurologists have already ruled out MS, but my doc (who

by the way, dxd me with CFIDS from the start!) mentioned MS again

yesterday.......wouldn't I have the same symptoms everyday if it was MS?

Jane

Jeanette French <yonderfrontiernet (DOT) <mailto:yonder%40frontiernet.net> net>

wrote:

Hi , no I haven't but sounds like he may suspect MS, good luck...

Jeanette

[Guest guest]

Hi Shari,

I think this may have been meant for Jane, Thanks

Jeanette

RE: Re: FM: Digestive disturbances

Jeanette,

I read your post. They think you have MS. I have not check back post. If

you eat grains and If they don't know what you have, check into gluten

ataxia and Celica's disease. This can explain unknown problems.

Shari

[Guest guest]

Shari,

Thanks - I'm Googling as we speak!

Jane

Jeanette French wrote:

Hi Shari,

I think this may have been meant for Jane, Thanks

Jeanette

RE: Re: FM: Digestive disturbances

Jeanette,

I read your post. They think you have MS. I have not check back post. If

you eat grains and If they don't know what you have, check into gluten

ataxia and Celica's disease. This can explain unknown problems.

Shari

[Guest guest]

Hi Jane,

I think they take spinal fluid and test that. I can't remember what I read on

that now, or maybe it is the symptoms to. Since they come and go it can be hard

to diagnose it. They may also be able to do nerve conduction studies on any part

of the body that seems effected. The nerves pathways can be interrupted by the

lose of the Myelin sheath that covers the nerves. That's what MS does, eats away

at the nerve covering so that the messages(electrical impulses) don't get

through like they are supposed to. If you search on the internet there is a ton

of info out there, more than I can remember, lol

Good Luck,

Jeanette

Re: FM: Digestive disturbances

WOW Jeannette - Thank you so much - I had no idea, so......that leaves me to

wonder, how do they determine it's MS? Wouldn't the brain, spine/cervical MRI's

show MS? I'm mean, I've been to 3 neurologists, wouldn't someone have detected

it by now? HA, what am I thinking, putting all my faith into physicians? LOL

Thanks for all your info - Jane

Jeanette French wrote:

Hi Jane,

MS symptoms come and go like CFS can. There can be flare up, there can be

times when symptoms go away for awhile. And times when they are severe. There

are many treatments, new treatments out there now for MS, and I have a friend

who had it. She still works, but does miss some days. My sister in law just

attended a seminar for her credit hours to maintain her Physical therapy lic.,

and it was on MS. Some folks have it mildly, some severe, but most have the mild

form and can lead a long life. I hope you don't have it, but if it turns out you

do, don't despair, it isn't a death sentence. Let us know,

Take care

Jeanette

[Guest guest]

They've done a nerve conduction & as most tests, they were normal. I love that

- I'm completely normal !! LOL

It just seems unnecessary for me to waste the time and money to get a spinal

tap, when all other tests, MRI's, Nerve Conduction, eye exams, etc have ruled MS

out. I will do what I'm told though, just to satisfy my doc since I still have

ins coverage thru my husband. Just seems silly!

Jeanette French wrote:

Hi Jane,

I think they take spinal fluid and test that. I can't remember what I read on

that now, or maybe it is the symptoms to. Since they come and go it can be hard

to diagnose it. They may also be able to do nerve conduction studies on any part

of the body that seems effected. The nerves pathways can be interrupted by the

lose of the Myelin sheath that covers the nerves. That's what MS does, eats away

at the nerve covering so that the messages(electrical impulses) don't get

through like they are supposed to. If you search on the internet there is a ton

of info out there, more than I can remember, lol

Good Luck,

Jeanette