Re: Missy

[Guest guest]

The garlic does make you smell yucky. Some have suggested simply

swallowing the whole garlic rather than chewing it. I personally cut it

into my salad. As for being a vegitarian, that is kind of tough when you

need to follow a candida diet. Some who were vegitarians have actually

had to change that in order to get better health. The protien is really

important.

Ended up that I have a cold. My kids no doubt gave me that special gift.

This is the first cold that I have had for a long long time. I guess

that because I was so out of control in the past couple of weeks, my

immune system was a bit shotty.

As for the depression... look up the website www.bachflowers.com

The remedies there are fabulous. A couple of drops several times a day

as needed has really made a huge difference to my life and coping

strategies. THey also have a great list that you can join and gain more

info.

Your story sounds so symbiotic with mine it is shocking. I finally found

a homeopath who put me on the bach flowers and vitamin regimine. She did

this non evasive study called " electro-dermal screening " and that told

me all of my food sensitivities and also detects candida and parrasites.

The latter I do not suffer from.

Anyhow.. lots to do..

Remember.. drink tons of water to clean out your system. I am also into

Dandilion. I use the leaves in salad and take a tincture

of drops into water. This is great for any liver problems you may have.

Feel free to write and ask me anything. I hope this is helpful

Chestnut

[Guest guest]

Yes Zach has dysgrahpia. That is one other thing I am trying to get documented

further. The reason you were told your son didn't qualify for an IEP is the same

reason I can't get one for my 11yr old. I also have the same thought concept as

you. Have one now in case he has trouble, don't what until it is too late.

I know Zach shut down.

MISSY

SAHM to some special kids!!!

Excuse Me While I Go

Raise Tomorrow's Future.

( ) Missy

Hi Missy,

I just went back and reread some of your previous posts. Is Zach the

one who has dysgraphia? Has he ever received any help in the school

for that? I also read the post in which the school said that

he " might " qualify for an IEP now that he's flunking 8h grade. Good

Grief. This calls to mind what I told the principal of my son's

school when he was in third grade, getting A's and b's, but he was a

basket case in school and they were telling me that he didn't qualify

for an IEP because he wasn't falling behind academically. I asked

him, " If a child were in the deep end of a pool screaming, 'I'm

drowning! I'm drowning!' would you stand on the side of the pool and

say, 'Gee, he doesn't look like he's drowning. His head is still

above the water. Let's wait and see if he sinks.' ? " Well, it

sounds to me like that's exactly what has happened with your son. He

didn't get the help he needed, it all got too frustrating for him and

he finally stopped trying (and puberty didn't help much either, I'm

sure!). He needs an IEP and some serious attention to be given to

his needs.

was able to get his because we went out and had him privately

tested. The psychologist diagnosed him as having a Learning

Disability in Written Expression. Even though he wasn't failing, his

aptitude scores were just average - nowhere near where they should be

for a child whose verbal IQ score was in the gifted range. So, she

concluded that there was a significant discrepancy between his

intelligence and his achievement levels. In other words, the fact

that he wasn't failing didn't change the fact that he wasn't

achieving anywhere near where he should be. And the law - here in PA

anyway - expressly states the the measure must be based on the

individual child's abilities, not the school's arbitrary criteria.

Therefore, even though he was getting A's and B's in school, he

qualified for the IEP (many schools in PA still ignore this, but

fortunately, once we got him privately tested and walked in with an

advocate, our school buckled.) With the IEP, he is now in 7th grade

and is still getting A's and B's - he also has gone from having a few

minor accomodations to having many accomodations and modifications

AND to having a fulltime aide. If he didn't have that IEP, he would

probably have shut down and be failing too right now.

Hang in there.

Kathy

[Guest guest]

Hi Missy:

I feel so badly for your little girl that she has to

go through all of this too. It's hard enough when you

are a grown adult, but to be a little child and have

to suffer the pain and all of the medications/side

effects is heartbreaking.

My son had severe asthma as a child, and also heart

disease, and he had to take the liquid Prednisone too.

He is now 22 and says he can still smell it and

becomes nauseated just at my Prednisone pills. You

are right, I tried everything I could to try and hide

the smell and taste of it, and all the bribes and

coersion I could think of, and it was a battle every

single day when he was on it. I sure wish they could

come up with something more palitable for children

when they need to take this drug. He also had a

tracheostomy from age 4 to 6, and his vocal chords

were damaged because of it. Kids would, and still do

even as adults, question his voice and his scars.

Even adults can be so unthinking.

Again, my heart goes out to your little girl, and to

you. It's so hard to watch your child suffer and know

there is nothing you can do but love and care for

them, and hope for a cure and end to the pain.

Kathe in CA

--- MELISSA CRIGLER <nmsanders@...> wrote:

> Hi . I'm new with this site also. My daughter,

> has JRA. She's six now - was DX when she was

> two. I have researched her disease since she was DX

> and I've learned more from this group in the two

> weeks I've been posting than I did when I researched

> it for the past four years. Very informative while

> at the same time supportive and NEVER judgemental

> (which with this disease is very important-a lot of

> prejudice with slow and dangerous scooter drivers

> lol and prednisone side effects and all {my 2 year

> old gained nearly 25 lbs in 2 months on Pred).

>

> By the way the docs put poor Emmie on 20 mg of

> prednisone a day for a week then taper to 15 mg the

> next week. She's been in a lot of pain - been

> flaring for about 2 weeks now. I hope she doesn't

> gain too much weight. Being in first grade, kids can

> be mean. She's very skinny now so she's got a little

> leway. Last time she was on steroids she was on them

> for a year and a half. She was on 40 and 67.5 mg of

> pred a day then. Has osteoporosis still and even

> grew blonde " fuzzies " on her face from it while the

> hair on her head and arms fell out from the

> Methotrexate (horribly ironic hugh?). It was awful,

> I'm so scared of what will happen this time. She's

> been sitting at the table with a cookie in front of

> her as a bribe waiting and stalling to take her

> Prednisone now. She can't swallow pills, so she has

> to take the liquid. It truly is horrid smelling. If

> I put it in anything when she's done with the meds

> she will never touch that food product again. She

> won't eat applesauce now or drink

> applejuice or chocolate milk either. Can just never

> win as a sneaky mommy.

> Well, mail ya later

> hugs Missy

> N2kids@... wrote:

>

>

>

> In a message dated 1/5/2006 12:18:40 PM Central

> Standard Time,

> mtbargeman30@... writes:

>

> Hi, guys. My name is . I was dx'ed with RA on

> Monday. I wonder if

> anyone can give me suggestions about how to take

> care of myself and

> fight fatigue. (I know that sounds whiny, but I

> really feel like

> roadkill). Also, should I tell my kids now, or wait

> til I get my

> regular meds for this? Does any one have any info or

> suggestions?

>

> Any info at all is appreciated.

>

>

>

> Hi and Welcome! I'm I'm fairly new

> here too and this group has

> been so helpfull! Please dont hesitate to vent,

> whine whatever youneed to

> do, we understand. here is a link to the main site

> that was given to me:

>

> _http://arthritissupport.info/_

> (http://arthritissupport.info/)

>

> there is tons of info and links on this site. Have

> you seen a Rheumatologist

> yet? Have they given you any meds? Tell your

> children if you feel they need

> to know. Hugs take care talk soon

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

>

>

>

[Guest guest]

Hi Missy:

As far as the Enbrel is concerned, the only site

reactions I have had is a slight bruising once in a

while. No itching, swelling, and no burning. Make

sure that when you put the alcohol wipes on the skin

that you let them dry before you give the shot, or it

will sting. They are very small tiny needles, and do

not hurt me when I put them in. Sometimes I will get

a little spot of blood at the injection site, like I

have hit a little vessel, and sometimes this will

bleed a little, but nothing more. Don't be afraid of

the Enbrel injections - the medication has given me so

much benefit that I was almost in remission at one

time. I also take Mtx 10 mg. weekly.

I absolutely understand your saying that we have to do

what we have to do as parents - my son was very ill

for years, and I was in charge of taking care of his

tracheostomy (never did I think I could do that) and

his medications, 24/7, and I did it because it was for

my son, and I would do anything, just like most

parents, for their children, even if it is something

that might cause them some pain, because it will be of

benefit to them in the long run. It takes a lot of

strength and courage to do what you are doing, and I

applaud you, and other parents who have care of

chronically ill children.

Best of luck to you and with Enbrel. I will be

keeping you both in my prayers.

Kathe in CA

Kathe

" To ride a horse is to borrow freedom. "

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