Hi to everyone.....first time posting..

[Guest guest]

I had your post come to my email list for while now. I have been

diagnosed this past may, but started about 6 months prior. Funny how

you go along life. You see relatives when you were younger, then they

gradually pass away , and gatherings get smaller as few more years

dissappear. When I was diagnosed, it was very quick. But, the weird

thing about this all is that my grandmothers sister had ra, then lupus

came to visit her eventually, and no one ever mentioned about this to

anyone in the family. Quess people in my family do not talk about

things like that. Did anyone else find out the news later after they

were diagnosed it was in their family , or maybe my family just the

non communicating kind...lol.. anyhow, I am on methraxte, and they

tried putting the enbrel with that. The first shot after few hours

later of the enbrel did me in. my lips got so swollen, looked like i

had those fancy expensive fat injections in them..lol.. and I also had

rash, and itchy along with throat swelling. no more enbrel for me. so

they will go back to drawing board soon to add more stuff with mtx.

How is everyone doing on their meds? thanks for letting me write. and

hope to get to know all of you. bye ..jc

[Guest guest]

In a message dated 1/3/2006 6:41:23 AM Central Standard Time,

jaking12003@... writes:

How is everyone doing on their meds? thanks for letting me write. and

hope to get to know all of you. bye ..jc

Hi Jc, I'm . I kinda know how you feel about the family not

communicating about health issues. I found out recently that my mother had it.

Gee

thanks dad. Oh well i guess i'll have to go another route for info. I have RA

also. Sorry to hear you had a bad reaction to the enbrel. Maybe try Humira? I

am

taking that along with methotrexate and it has done wonders for me. lately i

have had some flare ups because of cutting back on the Mtx, but that will be

remedied soon. Hope you ufind a medicine that works for you. HUGS

[Guest guest]

I didn't know until after I was diagnosed with RA that my mother's

sister had it. I thought she had osteoarthritis, because she didn't

talk very much about it. And she wore long sleeves to hide the enormous

nodules on her elbows. Sue

On Tuesday, January 3, 2006, at 01:14 AM, JC wrote:

> Did anyone else find out the news later after they

> were diagnosed it was in their family , or maybe my family just the

> non communicating kind...lol..

[Guest guest]

Welcome JC,

So glad your here with us, it's a great place to be, Tawny

>

> I had your post come to my email list for while now. I have been

> diagnosed this past may, but started about 6 months prior. Funny

how

> you go along life. You see relatives when you were younger, then

they

> gradually pass away , and gatherings get smaller as few more years

> dissappear. When I was diagnosed, it was very quick. But, the

weird

> thing about this all is that my grandmothers sister had ra, then

lupus

> came to visit her eventually, and no one ever mentioned about this

to

> anyone in the family. Quess people in my family do not talk about

> things like that. Did anyone else find out the news later after

they

> were diagnosed it was in their family , or maybe my family just the

> non communicating kind...lol.. anyhow, I am on methraxte, and they

> tried putting the enbrel with that. The first shot after few hours

> later of the enbrel did me in. my lips got so swollen, looked like

i

> had those fancy expensive fat injections in them..lol.. and I also

had

> rash, and itchy along with throat swelling. no more enbrel for me.

so

> they will go back to drawing board soon to add more stuff with mtx.

> How is everyone doing on their meds? thanks for letting me write.

and

> hope to get to know all of you. bye ..jc

>

[Guest guest]

JC,

I am glad that you found our group. I know that you

will find some helpful info here. I hope they find

something for you soon. I take enbrel and am doing

well with it. I hope you feel better soon.

Beth in AR

--- JC <jaking12003@...> wrote:

> I had your post come to my email list for while now.

> I have been

> diagnosed this past may, but started about 6 months

> prior. Funny how

> you go along life. You see relatives when you were

> younger, then they

> gradually pass away , and gatherings get smaller as

> few more years

> dissappear. When I was diagnosed, it was very

> quick. But, the weird

> thing about this all is that my grandmothers sister

> had ra, then lupus

> came to visit her eventually, and no one ever

> mentioned about this to

> anyone in the family. Quess people in my family do

> not talk about

> things like that. Did anyone else find out the news

> later after they

> were diagnosed it was in their family , or maybe my

> family just the

> non communicating kind...lol.. anyhow, I am on

> methraxte, and they

> tried putting the enbrel with that. The first shot

> after few hours

> later of the enbrel did me in. my lips got so

> swollen, looked like i

> had those fancy expensive fat injections in

> them..lol.. and I also had

> rash, and itchy along with throat swelling. no more

> enbrel for me. so

> they will go back to drawing board soon to add more

> stuff with mtx.

> How is everyone doing on their meds? thanks for

> letting me write. and

> hope to get to know all of you. bye ..jc

>

>

>

>

>

>

>

__________________________________________

DSL – Something to write home about.

Just $16.99/mo. or less.

dsl.