Guest guest Posted February 7, 2005 Report Share Posted February 7, 2005 Hi , Welcome to the group! He had another member awhile back who used Fit Well and was quiet pleased with the treatment as I remember. Some movement is normal as long as it isn't shifting over an ear or inhibiting sight. I hope that his surgery was without complications. Natasha Atlanta, GA --- In Plagiocephaly , " minoura89 " <minoura89@y...> wrote: > > My cousin referred me to this group. Her child also had Plagio. My > son has sagittal synostosis and has had surgery to correct it. After > surgery, he seemed to be favoring his right side, and it is now > flat. We were sent to get a helmet and got it last Thursday. We are > in Utah and use a local company called Fit-Well. Their helmet is > called the P.A.P Orthosis and it is clear and covers almost all of > the head. I have a follow up appointment on Thursday, but my > question before that appt. is whether it is supposed to move at all. > It seems that when I feed him or lay him down that the helmet slips > down his forehead. I have to readjust it when he's done. I'm not > sure if it's because of his head sweating or if it just needs to be > tighter. Has anyone had this problem? > > > mum to Jack, sagittal surgery 1/13/05 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2005 Report Share Posted February 7, 2005 Thanks, Natasha. His surgery went very well. As a matter of fact, they wanted to send him home the day after. I was the wimpy one who asked for another day. So far he is hating the helmet, but he gets better everyday. He only sleeps for about 20 minutes in it, though. mum to Jack, sagittal surgery 1/13/05 > > > > My cousin referred me to this group. Her child also had Plagio. > My > > son has sagittal synostosis and has had surgery to correct it. > After > > surgery, he seemed to be favoring his right side, and it is now > > flat. We were sent to get a helmet and got it last Thursday. We > are > > in Utah and use a local company called Fit-Well. Their helmet is > > called the P.A.P Orthosis and it is clear and covers almost all of > > the head. I have a follow up appointment on Thursday, but my > > question before that appt. is whether it is supposed to move at > all. > > It seems that when I feed him or lay him down that the helmet > slips > > down his forehead. I have to readjust it when he's done. I'm not > > sure if it's because of his head sweating or if it just needs to > be > > tighter. Has anyone had this problem? > > > > > > mum to Jack, sagittal surgery 1/13/05 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2005 Report Share Posted February 8, 2005 Hi , welcome to the group! I'm so glad that his surgery went well. That must've been sooo difficult for you so I'm glad that's behind you. I know that some slipping is normal as long as it doesn't drop below their eyebrows or hurt their ears. I would watch his temperment too as a sign of a correct fit bcz most babies adjust either instantly or in the first week. If in doubt, call your orthotist and/or see them to check it. I always asked about the looseness of my son's STARband and it was normal. Good luck and let us know. Sue Colin F., 16 mos. STARband grad 9/04 --- In Plagiocephaly , " minoura89 " <minoura89@y...> wrote: > > My cousin referred me to this group. Her child also had Plagio. My > son has sagittal synostosis and has had surgery to correct it. After > surgery, he seemed to be favoring his right side, and it is now > flat. We were sent to get a helmet and got it last Thursday. We are > in Utah and use a local company called Fit-Well. Their helmet is > called the P.A.P Orthosis and it is clear and covers almost all of > the head. I have a follow up appointment on Thursday, but my > question before that appt. is whether it is supposed to move at all. > It seems that when I feed him or lay him down that the helmet slips > down his forehead. I have to readjust it when he's done. I'm not > sure if it's because of his head sweating or if it just needs to be > tighter. Has anyone had this problem? > > > mum to Jack, sagittal surgery 1/13/05 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2005 Report Share Posted February 8, 2005 Thanks for all the comments. Now to get my husband to keep it on. When it slides down, he takes it off because he thinks it doesn't fit. I'm about ready to kick his butt! mum to Jack, cranioboy > > My cousin referred me to this group. Her child also had Plagio. My > son has sagittal synostosis and has had surgery to correct it. After > surgery, he seemed to be favoring his right side, and it is now > flat. We were sent to get a helmet and got it last Thursday. We are > in Utah and use a local company called Fit-Well. Their helmet is > called the P.A.P Orthosis and it is clear and covers almost all of > the head. I have a follow up appointment on Thursday, but my > question before that appt. is whether it is supposed to move at all. > It seems that when I feed him or lay him down that the helmet slips > down his forehead. I have to readjust it when he's done. I'm not > sure if it's because of his head sweating or if it just needs to be > tighter. Has anyone had this problem? > > > mum to Jack, sagittal surgery 1/13/05 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2005 Report Share Posted February 8, 2005 Hi , Welcome to the group. How old is Jack? I'm assuming his surgery went well since you are already in a helmet. How often is he having follow-up appointments? The shifting is normal. If it's excessive (more than 1") than I would discuss with the ortho. If it blocks his vision or covers his ear that would also need an adjustment. Let us know how the appt goes. mom to na DOC Grad www.thefilyaws.comminoura89 <minoura89@...> wrote: My cousin referred me to this group. Her child also had Plagio. My son has sagittal synostosis and has had surgery to correct it. After surgery, he seemed to be favoring his right side, and it is now flat. We were sent to get a helmet and got it last Thursday. We are in Utah and use a local company called Fit-Well. Their helmet is called the P.A.P Orthosis and it is clear and covers almost all of the head. I have a follow up appointment on Thursday, but my question before that appt. is whether it is supposed to move at all. It seems that when I feed him or lay him down that the helmet slips down his forehead. I have to readjust it when he's done. I'm not sure if it's because of his head sweating or if it just needs to be tighter. Has anyone had this problem? mum to Jack, sagittal surgery 1/13/05For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2006 Report Share Posted December 4, 2006 Hello, My name is a and this is my first time I've ever joined a group, so please excuse me if I'm unsure of what I'm doing. My online skills are very new. I'm 67 years old and I was diagnosed with RA one year ago. My question is, and I'm hoping someone will have an answer, I am taking paquinil, prednisone, and methotraxate, and I'm wondering if I can take borage and fish oil pills at the same time? Or should I wait a couple of hours or more? Any help will be very much appreciated. a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2006 Report Share Posted December 5, 2006 Welcome to the group, a! This is a question you should really ask your physician and/or pharmacist. Your physician should be made aware of any supplements you are taking along with your RA medications. Your online skills seem fine to me! Not an MD I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] New and have a question > Hello, > > My name is a and this is my first time I've ever joined a group, > so please excuse me if I'm unsure of what I'm doing. My online skills > are very new. I'm 67 years old and I was diagnosed with RA one year > ago. > > My question is, and I'm hoping someone will have an answer, I am taking > paquinil, prednisone, and methotraxate, and I'm wondering if I can take > borage and fish oil pills at the same time? Or should I wait a couple > of hours or more? > > Any help will be very much appreciated. > > a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2006 Report Share Posted December 5, 2006 Hi a and welcome too. I wanted to add that I have been suffering from fatigue quite a lot and thought that vitamin supliments might do the trick to help with that. My problem is that I have always had difficulty digesting vitamins. I found out that I had this problem years ago when I was attempting to take calcium magnesium. I took it with food, without food and it didn't matter I threw it all up within 30 minutes fo taking it. So, I have strayed away from vitamin suppliments until recently when I was diagnosed with RA. Now that I take MTX, folic acid, the doc wants me to take B-6 with it to help the absorption of the folic acid and help with the hair loss. I'm doing ok with it as long as I take it with food. However, I introduced a vitamin complex (just your general everyday vitamin) and have had difficulty taking it. It has caused to to nearly vomit it up, but mostly I deal with nausea the entire day and stomach pains. SO needless to say I don't take the general vitamin much any more and wish I could so that I can help my immune system fight potential colds etc. Hope you get some answers on your questions from your doctor. Take care, Les > > Welcome to the group, a! > > This is a question you should really ask your physician and/or pharmacist. > Your physician should be made aware of any supplements you are taking along > with your RA medications. > > Your online skills seem fine to me! > > > > Not an MD > > I'll tell you where to go! > > Mayo Clinic in Rochester > http://www.mayoclinic.org/rochester > > s Hopkins Medicine > http://www.hopkinsmedicine.org > > > [ ] New and have a question > > > > Hello, > > > > My name is a and this is my first time I've ever joined a group, > > so please excuse me if I'm unsure of what I'm doing. My online skills > > are very new. I'm 67 years old and I was diagnosed with RA one year > > ago. > > > > My question is, and I'm hoping someone will have an answer, I am taking > > paquinil, prednisone, and methotraxate, and I'm wondering if I can take > > borage and fish oil pills at the same time? Or should I wait a couple > > of hours or more? > > > > Any help will be very much appreciated. > > > > a > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2006 Report Share Posted December 6, 2006 -Hl , Thanks for replying to my message. a in CA -- In , " " <Matsumura_Clan@...> wrote: > > Welcome to the group, a! > > This is a question you should really ask your physician and/or pharmacist. > Your physician should be made aware of any supplements you are taking along > with your RA medications. > > Your online skills seem fine to me! > > > > Not an MD > > I'll tell you where to go! > > Mayo Clinic in Rochester > http://www.mayoclinic.org/rochester > > s Hopkins Medicine > http://www.hopkinsmedicine.org > > > [ ] New and have a question > > > > Hello, > > > > My name is a and this is my first time I've ever joined a group, > > so please excuse me if I'm unsure of what I'm doing. My online skills > > are very new. I'm 67 years old and I was diagnosed with RA one year > > ago. > > > > My question is, and I'm hoping someone will have an answer, I am taking > > paquinil, prednisone, and methotraxate, and I'm wondering if I can take > > borage and fish oil pills at the same time? Or should I wait a couple > > of hours or more? > > > > Any help will be very much appreciated. > > > > a > Quote Link to comment Share on other sites More sharing options...
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